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Rönnåsen, Berit
Publikasjoner (5 av 5) Visa alla publikasjoner
Rönnåsen, B., Möller, K., Möller, C., Lyxell, B. & Anderzén Carlsson, A. (2016). Aspects of learning from the perspective of people with Alström syndrome. Disability and Rehabilitation: Assistive Technology, 38(7), 644-652
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2016 (engelsk)Inngår i: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 38, nr 7, s. 644-652Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Purpose: The aim of the study was to explore aspects of learning, from a lifelong perspective, in individuals with Alstro ̈m syndrome (AS). AS is an autosomal recessive disorder causing early blindness, progressive sensorineural hearing loss, cardiomyopathy, endocrine disorders, metabolic dysfunction, and abbreviated lifespan.

Method: Eleven individuals with AS participated. The study had a qualitative explorative design, giving voice to the participants’ perspectives on their situation. Data were collected using semi-structured interviews, which were subjected to conventional (inductive) qualitative content analysis.

Results: The analysis revealed in the participants a quest for independence and an image of themselves as capable people willing to learn, but in constant need of support to continue learning throughout their lives to be as independent as possible.

Conclusion: Based on the levels of functioning, i.e. personal resources, revealed in the interviews, supervisors, caregivers, and teachers are encouraged to allow people with AS to be their own advocates, as they know best how, what, and with whom they learn, and what type of sensory material – tactile, auditory, visual, or a combination – is most helpful. Implications for RehabilitationIndividuals with AS strive for independence, and to be independent they need to continue to learn throughout their lives.Individuals with AS know best how they learn, and should be asked what modalities are the most effective for them.The tactile modality for learning will continue throughout life and should be emphasized early in the individual's education and rehabilitation.

sted, utgiver, år, opplag, sider
Taylor & Francis, 2016
Emneord
Alström syndrome (AS), deafblindness, dual sensory loss, learning, sensoneural progressive hearing loss, vision loss
HSV kategori
Forskningsprogram
Handikappvetenskap
Identifikatorer
urn:nbn:se:oru:diva-47760 (URN)10.3109/09638288.2015.1055381 (DOI)000367902500005 ()26084572 (PubMedID)2-s2.0-84954546359 (Scopus ID)
Forskningsfinansiär
Swedish Research Council
Merknad

Funding Agency:

Swedish Institute for Disability Research, Linnaeus Centre HEAD

Tilgjengelig fra: 2016-01-25 Laget: 2016-01-25 Sist oppdatert: 2017-11-30bibliografisk kontrollert
Rönnåsen, B. (2015). Aspekter på lärande vid dövblindhet: möjligheter och begränsningar för personer med Alström syndrom. (Licentiate dissertation). Örebro: Örebro universitet
Åpne denne publikasjonen i ny fane eller vindu >>Aspekter på lärande vid dövblindhet: möjligheter och begränsningar för personer med Alström syndrom
2015 (svensk)Licentiatavhandling, med artikler (Annet vitenskapelig)
sted, utgiver, år, opplag, sider
Örebro: Örebro universitet, 2015. s. 91
Serie
Studies from The Swedish Institute for Disability Research, ISSN 1650-1128 ; 70
Emneord
Alström syndrome (AS), learning, vision loss, sensoneural progressive hearing loss, progressive vestibular loss, deafblindness
HSV kategori
Forskningsprogram
Handikappvetenskap
Identifikatorer
urn:nbn:se:oru:diva-44667 (URN)978-91-7529-068-3 (ISBN)
Veileder
Tilgjengelig fra: 2015-05-22 Laget: 2015-05-20 Sist oppdatert: 2017-10-17bibliografisk kontrollert
Frölander, H.-E., Möller, C., Marshall, J. D., Sundqvist, A., Rönnåsen, B., Falkensson, L. & Lyxell, B. (2014). Theory-of-mind in adolescents and young adults with Alström Syndrome. International Journal of Pediatric Otorhinolaryngology, 78(3), 530-537
Åpne denne publikasjonen i ny fane eller vindu >>Theory-of-mind in adolescents and young adults with Alström Syndrome
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2014 (engelsk)Inngår i: International Journal of Pediatric Otorhinolaryngology, ISSN 0165-5876, E-ISSN 1872-8464, Vol. 78, nr 3, s. 530-537Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Objective: The study focuses on theory-of-mind in adolescents and young adults with Alström syndrome (ALMS). ALMS, an autosomal recessive syndrome causes juvenile blindness, sensorineural hearing loss, cardiomyopathy, endocrinological disorders and metabolic dysfunction. Theory-of-mind (ToM) refers to the ability to impute mental states to one self and to others. Clinical observations have revealed an increased occurence of deviances in mental state understanding in ALMS. In the present study ToM will be examined and related to working memory (WM), verbal ability and sensory loss.

Methods: Twelve young individuals (16-37 years) with ALMS and 24 nondisabled individuals matched on age, gender and educational level participated. ToM was assessed by means of a multiple task that taxes the ability to understand thoughts and feelings of story chraracters´. WM was examined by means of a reading span task and verbal ability by means of a vocabulary test.

Results: The ALMS group performed at significantly lower levels in ToM tasks and displayed a higher variability in performance than the control group. Individuals with ALMS and a relatively poor level performance provided fewer correct mental state inferences in ToM tasks than ALMS individuals with relatively higher performance levels. ALMS individuals with relatively high performance levels made as many correct inferences in ToM tasks as the control group, but their inferences were more often incomplete. Vocabulary skills and educational level, but not WM-capacity predicted ToM performance. Degree of deafblindness did not have an impact on ToM. Age of onset of visual loss but not hearing loss related to ToM.

Conclusions: The individuals with ALMS display a high degree of heterogeneity in terms of ToM, where some individuals reached performance levels comparable to nondisabled individuals. The results are discussed with respect to how cognitive and verbal abilities and factors related to the disability affect ToM.

sted, utgiver, år, opplag, sider
Elsevier, 2014
Emneord
Alström syndrome (ALMS), Deafblindness, Theory-of-mind, Working memory, Verbal ability, Dual sensory loss
HSV kategori
Identifikatorer
urn:nbn:se:oru:diva-33957 (URN)10.1016/j.ijporl.2013.12.038 (DOI)000334394400026 ()24485176 (PubMedID)2-s2.0-84893729756 (Scopus ID)
Merknad

Funding Agencies:

Linnaeus Centre HEAD

JDM

NIH

Tilgjengelig fra: 2014-02-27 Laget: 2014-02-27 Sist oppdatert: 2018-06-05bibliografisk kontrollert
Rönnåsen, B., Möller, K., Möller, C., Lyxell, B. & Anderzen-Carlsson, A.Aspects of Learning from the Perspective of People With Alström Syndrome.
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(engelsk)Manuskript (preprint) (Annet vitenskapelig)
Emneord
Alström syndrome (AS), deafblindness, dual sensory loss, learning, sensoneural progressive hearing loss, vision loss
HSV kategori
Forskningsprogram
Handikappvetenskap
Identifikatorer
urn:nbn:se:oru:diva-44682 (URN)
Tilgjengelig fra: 2015-05-22 Laget: 2015-05-22 Sist oppdatert: 2017-10-17bibliografisk kontrollert
Möller, C., Rönnåsen, B., Jutegren, G., Maffei, P., Naggert, J. & Marshall, J.Auditory and vestibular pathology in Alström syndrome.
Åpne denne publikasjonen i ny fane eller vindu >>Auditory and vestibular pathology in Alström syndrome
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(engelsk)Manuskript (preprint) (Annet vitenskapelig)
HSV kategori
Forskningsprogram
Handikappvetenskap
Identifikatorer
urn:nbn:se:oru:diva-44681 (URN)
Tilgjengelig fra: 2015-05-22 Laget: 2015-05-22 Sist oppdatert: 2017-10-17bibliografisk kontrollert
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