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Karni, L., Memedi, M. & Klein, G. O. (2019). Targeting Patient Empowerment via ICT interventions: An ICT-specific Analytical Framework. In: AMCIS 2019 Proceedings: . Paper presented at 25th Americas Conference on Information Systems (AMCIS 2019), Cancun, Mexico, August 15-17, 2019. Cancun, Mexico: Association for Information Systems
Öppna denna publikation i ny flik eller fönster >>Targeting Patient Empowerment via ICT interventions: An ICT-specific Analytical Framework
2019 (Engelska)Ingår i: AMCIS 2019 Proceedings, Cancun, Mexico: Association for Information Systems, 2019Konferensbidrag, Publicerat paper (Refereegranskat)
Abstract [en]

Empowerment of patients is today often an explicit goal of various ICT interventions where the patients themselves use ICT tools, often via the internet. This study is proposing a framework model for ICT interventions aiming to empower patients. Our new model includes different aspects of the Empowerment concept, general possible strategies to achieve Empowerment using different ICT services. Finally, the ICT services and the underlying strategic model can be used to define evaluations of such interventions where the aim is to demonstrate Empowerment. Our model is based on a review of various general models of Empowerment and the Behavioral Intervention Technology Model (BIT). The implications of our model are discussed using two case studies projects, the C3-Cloud EU project about empowering patients with 4 chronic diseases and the EMPARK project about Internet-of-Things sensors based real time feedback to Parkinson patients.

Ort, förlag, år, upplaga, sidor
Cancun, Mexico: Association for Information Systems, 2019
Nyckelord
Empowerment, ICT-Intervention, Framework mode
Nationell ämneskategori
Systemvetenskap, informationssystem och informatik
Forskningsämne
Informatik
Identifikatorer
urn:nbn:se:oru:diva-75987 (URN)2-s2.0-85084021446 (Scopus ID)
Konferens
25th Americas Conference on Information Systems (AMCIS 2019), Cancun, Mexico, August 15-17, 2019
Projekt
EMPARK
Forskningsfinansiär
KK-stiftelsen
Tillgänglig från: 2019-08-30 Skapad: 2019-08-30 Senast uppdaterad: 2020-05-12Bibliografiskt granskad
Traore, L., Assélé Kama, A., Lim Choi Keung, S., Karni, L., Klein, G. O., Lilja, M., . . . Jaulent, M.-C. (2019). User-Centered Design of the C3-Cloud Platform for Elderly with Multiple Diseases - Functional Requirements and Application Testing. Paper presented at 17th World Congress of Medical and Health Informatics (MEDINFO 2019), Lyon, France, August 25-30, 2019.. Studies in Health Technology and Informatics, 264, 843-847
Öppna denna publikation i ny flik eller fönster >>User-Centered Design of the C3-Cloud Platform for Elderly with Multiple Diseases - Functional Requirements and Application Testing
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2019 (Engelska)Ingår i: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 264, s. 843-847Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

The number of patients with multimorbidity has been steadily increasing in the modern aging societies. The European C3-Cloud project provides a multidisciplinary and patient-centered “Collaborative Care and Cure-system” in the management of elderly with multimorbidity, enabling continous coordination of care activities between multidisciplinary care teams (MDTs), patients and informal care givers (ICG). In this paper, we report how various components of the infrastructure were tested to fulfill the functional requirements and how the entire system was subjected to an early application testing involving different groups of end-users. MDTs from participating European regions were involved in requirement elicitation and test formulation, resulting in 57 questions, distributed via an internet platform, to 48 test participants (22 MDTs, 26 patients) from three pilot sites. The results indicate an overall high level of satisfaction for all Information and Communication Technologie (ICT) components among the users. The early testing also provided user feedback important to consider for technical improvement of the entire system. 

Ort, förlag, år, upplaga, sidor
IOS Press, 2019
Nyckelord
Evaluation Studies, Multimorbidity, User-computer Interface
Nationell ämneskategori
Hälsovetenskaper Systemvetenskap, informationssystem och informatik med samhällsvetenskaplig inriktning
Identifikatorer
urn:nbn:se:oru:diva-76079 (URN)10.3233/SHTI190342 (DOI)31438043 (PubMedID)2-s2.0-85071462253 (Scopus ID)978-1-64368-002-6 (ISBN)978-1-64368-003-3 (ISBN)
Konferens
17th World Congress of Medical and Health Informatics (MEDINFO 2019), Lyon, France, August 25-30, 2019.
Forskningsfinansiär
EU, Horisont 2020, 689181
Anmärkning

This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 689181. Project website: http://c3-cloud.eu/ 

Tillgänglig från: 2019-09-04 Skapad: 2019-09-04 Senast uppdaterad: 2020-01-31Bibliografiskt granskad
Karni, L., Memedi, M., Kolkowska, E. & Klein, G. O. (2018). EMPARK: Internet of Things for Empowerment and Improved Treatment of Patients with Parkinson's Disease. In: : . Paper presented at International Congress of Parkinson´s Disease and Movement Disorders, Hong Kong, People's Republic of China, 5-9 October, 2018. John Wiley & Sons
Öppna denna publikation i ny flik eller fönster >>EMPARK: Internet of Things for Empowerment and Improved Treatment of Patients with Parkinson's Disease
2018 (Engelska)Konferensbidrag, Poster (med eller utan abstract) (Övrig (populärvetenskap, debatt, mm))
Abstract [en]

Objective: This study aims to assess the effects of patient-directed feedback from remote symptom, medication, and disease activity monitoring on patient empowerment and treatment in Parkinson’s disease (PD).

Background: There is a need to empower patients with PD to be able to understand better and control their disease using prescribed medication and following recommendations on lifestyle. The research project EMPARK will develop an Internet of Things system of sensors, mobile devices to deliver real-time, 24/7 patient symptom information with the primary goal to support PD patients empowerment and better understanding of their disease. The system will be deployed in patient homes to continuously measure movements, time-in-bed and drug delivery from a micro-dose levodopa system. Subjective symptom scoring, time of meals and physical activities will be reported by the patients via a smartphone application. Interfaces for patients and clinicians are being developed based on the user center design methodology to ensure maximal user acceptance. 

Methods: This is a randomized controlled trial where 30 PD patients from 2 university clinics in Sweden will be randomized to receive (intervention group) or not (control group) continuous feedback from the results of the EMPARK home monitoring for 2 weeks. Disease-specific (UPDRS, PDQ-39), Quality of Life (QoL) (modified EuroQoL EQ-5D) and empowerment questionnaires will be collected prior and after the intervention. The correlation of technology-based objective and patient-reported subjective parameters will be assessed in both groups. Interviews will be conducted with the clinicians and observations will be made about the patient-clinician interaction to assess the potential treatment benefits of the intervention.

Results: Preliminary results from workshops with patients and clinicians show potential to improve patient empowerment and disease control among patients. Completion of the trial will show the degree of patient empowerment, individualized treatment, and patientclinician interactions.

Conclusions: Raising patients’ awareness about disease activity and home medication is possible among PD patients by providing them with feedback from the results of a home monitoring system. This randomized, controlled trial aims to provide evidence that this approach leads to improved patient empowerment and treatment results.

Ort, förlag, år, upplaga, sidor
John Wiley & Sons, 2018
Nationell ämneskategori
Data- och informationsvetenskap
Forskningsämne
Informatik
Identifikatorer
urn:nbn:se:oru:diva-69955 (URN)
Konferens
International Congress of Parkinson´s Disease and Movement Disorders, Hong Kong, People's Republic of China, 5-9 October, 2018
Forskningsfinansiär
KK-stiftelsen
Tillgänglig från: 2018-10-30 Skapad: 2018-10-30 Senast uppdaterad: 2018-11-14Bibliografiskt granskad
Alexopoulou, S., Fart, F., Jonsson, A.-S., Karni, L., Kenalemang, L. M., Krishna, S., . . . Widell, B. (2018). Successful ageing in an interdisciplinary context: popular science presentations. Örebro: Örebro University
Öppna denna publikation i ny flik eller fönster >>Successful ageing in an interdisciplinary context: popular science presentations
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2018 (Engelska)Bok (Övrig (populärvetenskap, debatt, mm))
Ort, förlag, år, upplaga, sidor
Örebro: Örebro University, 2018. s. 127
Nationell ämneskategori
Gerontologi, medicinsk/hälsovetenskaplig inriktning Övrig annan samhällsvetenskap
Identifikatorer
urn:nbn:se:oru:diva-66306 (URN)978-91-87789-18-2 (ISBN)
Tillgänglig från: 2018-04-03 Skapad: 2018-04-03 Senast uppdaterad: 2019-03-26Bibliografiskt granskad
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