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Rönnåsen, B., Möller, K., Möller, C., Lyxell, B. & Anderzen-Carlsson, A. (2017). Aspects of learning in deafblindness: opportunities and limitations for persons with Alström syndrome. In: : . Paper presented at The 9th Dbl European Conference on Deafblindness, Aalborg, Denmark, September 5-8, 2017.
Open this publication in new window or tab >>Aspects of learning in deafblindness: opportunities and limitations for persons with Alström syndrome
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2017 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Learning
Identifiers
urn:nbn:se:oru:diva-67388 (URN)
Conference
The 9th Dbl European Conference on Deafblindness, Aalborg, Denmark, September 5-8, 2017
Available from: 2018-06-21 Created: 2018-06-21 Last updated: 2018-06-21Bibliographically approved
Durisala, N., Manchaiah, V., Granberg, S. & Möller, K. (2017). Determination and classification of the problems experienced by adults with single-sided deafness using ICF classification: an exploratory study using 26 participants. Clinical Otolaryngology, 42(3), 748-752
Open this publication in new window or tab >>Determination and classification of the problems experienced by adults with single-sided deafness using ICF classification: an exploratory study using 26 participants
2017 (English)In: Clinical Otolaryngology, ISSN 1749-4478, E-ISSN 1365-2273, Vol. 42, no 3, p. 748-752Article in journal (Refereed) Published
Abstract [en]

 1. Previous studies have shown the application of ICF in classifying hearing problems using open ended questionnaire.

2. The present study leveraged on that concept and used ICF in classifying hearing related problems and their effects on life style in adults with single-sided deafness.

3. We have used "problem and life effects" questionnaire to which patients were asked to list the problems and effects of hearing loss on their lives.

4. Apart from hearing and emotional related problems, use of an open ended questionnaire allowed tapping onto some of the non-auditory problems that these individuals may experience. 5.ICF classification provided basic information on the complex character of single sided deafness and can serve as a key element for rehabilitation.

Place, publisher, year, edition, pages
John Wiley & Sons, 2017
Keywords
Single-sided deafness, International classification of Functioning, Disability and Health (ICF)
National Category
Otorhinolaryngology
Research subject
Oto-Rhino-Laryngology
Identifiers
urn:nbn:se:oru:diva-50386 (URN)10.1111/coa.12671 (DOI)000399941300038 ()27184914 (PubMedID)2-s2.0-85018741268 (Scopus ID)
Available from: 2016-05-30 Created: 2016-05-24 Last updated: 2018-07-24Bibliographically approved
Strandberg, T., Möller, K. & Widén, S. (2017). Doctoral theses within the Swedish Institute for Disability Research 2000-2012: A review of content and interdisciplinarity. International Journal of Health Sciences, 5(2), 1-10
Open this publication in new window or tab >>Doctoral theses within the Swedish Institute for Disability Research 2000-2012: A review of content and interdisciplinarity
2017 (English)In: International Journal of Health Sciences, ISSN 2372-5060, Vol. 5, no 2, p. 1-10Article in journal (Refereed) Published
Abstract [en]

The Swedish Institute for Disability Research (SIDR) was founded in 2000. The SIDR graduate programmedis a leading research programmedin disability science. The scientific method at SIDR is based on an interdisciplinary approach.The aim of this study is to describe content of doctoral theses presented within SIDR, and to analyzethe occurrence of interdisciplinarywithin the theses published between 2000 and 2012. Forty-one theses were included in the study. First, the manifest data was categorized in a matrix, and second, the latent content was analyzedwithin a scheme. The scheme included seven criteria within interdisciplinary theory, namely: Is the phenomenon multi-dimensional? Does the aim reflect an interdisciplinary approach? Are the studies non-reductionist? Have multiple methods been used? Is the knowledge integrated? Are the results discussed as a whole?Do they explicitly show an interdisciplinaryknowledge?Findings show a variety of disability groups studied within SIDR, but the main disabilities are hearing impairment or deafness, and cognitive and communication difficulties. Different theoretical perspectives are used within the theses. To different extents, an interdisciplinary approach is used as an overall meta-theory.

Place, publisher, year, edition, pages
Madison, WI, USA: American Research Institute for Policy Development, 2017
Keywords
Disability studies, interdisciplinary, bio-psycho-social, critical realism
National Category
Medical and Health Sciences Other Health Sciences Occupational Therapy
Research subject
Disability Science
Identifiers
urn:nbn:se:oru:diva-62806 (URN)10.15640/ijhs.v5n2a1 (DOI)
Available from: 2017-11-24 Created: 2017-11-24 Last updated: 2019-03-26Bibliographically approved
Rönnåsen, B., Möller, K., Möller, C., Lyxell, B. & Anderzén Carlsson, A. (2016). Aspects of learning from the perspective of people with Alström syndrome. Disability and Rehabilitation: Assistive Technology, 38(7), 644-652
Open this publication in new window or tab >>Aspects of learning from the perspective of people with Alström syndrome
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2016 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 38, no 7, p. 644-652Article in journal (Refereed) Published
Abstract [en]

Purpose: The aim of the study was to explore aspects of learning, from a lifelong perspective, in individuals with Alstro ̈m syndrome (AS). AS is an autosomal recessive disorder causing early blindness, progressive sensorineural hearing loss, cardiomyopathy, endocrine disorders, metabolic dysfunction, and abbreviated lifespan.

Method: Eleven individuals with AS participated. The study had a qualitative explorative design, giving voice to the participants’ perspectives on their situation. Data were collected using semi-structured interviews, which were subjected to conventional (inductive) qualitative content analysis.

Results: The analysis revealed in the participants a quest for independence and an image of themselves as capable people willing to learn, but in constant need of support to continue learning throughout their lives to be as independent as possible.

Conclusion: Based on the levels of functioning, i.e. personal resources, revealed in the interviews, supervisors, caregivers, and teachers are encouraged to allow people with AS to be their own advocates, as they know best how, what, and with whom they learn, and what type of sensory material – tactile, auditory, visual, or a combination – is most helpful. Implications for RehabilitationIndividuals with AS strive for independence, and to be independent they need to continue to learn throughout their lives.Individuals with AS know best how they learn, and should be asked what modalities are the most effective for them.The tactile modality for learning will continue throughout life and should be emphasized early in the individual's education and rehabilitation.

Place, publisher, year, edition, pages
Taylor & Francis, 2016
Keywords
Alström syndrome (AS), deafblindness, dual sensory loss, learning, sensoneural progressive hearing loss, vision loss
National Category
Other Health Sciences Learning
Research subject
Disability Science
Identifiers
urn:nbn:se:oru:diva-47760 (URN)10.3109/09638288.2015.1055381 (DOI)000367902500005 ()26084572 (PubMedID)2-s2.0-84954546359 (Scopus ID)
Funder
Swedish Research Council
Note

Funding Agency:

Swedish Institute for Disability Research, Linnaeus Centre HEAD

Available from: 2016-01-25 Created: 2016-01-25 Last updated: 2017-11-30Bibliographically approved
Wahlqvist, M., Möller, C., Möller, K. & Danermark, B. (2016). Implications of Deafblindness: The Physical and Mental Health and Social Trust of Persons with Usher Syndrome Type 3. Journal of Visual Impairment & Blindness, 110(4), 245-256
Open this publication in new window or tab >>Implications of Deafblindness: The Physical and Mental Health and Social Trust of Persons with Usher Syndrome Type 3
2016 (English)In: Journal of Visual Impairment & Blindness, ISSN 0145-482X, E-ISSN 1559-1476, Vol. 110, no 4, p. 245-256Article in journal (Refereed) Published
Abstract [en]

Introduction: The aim of this study was to describe health and social trust in persons with Usher syndrome type 3 (USH3) in relation to hearing and visual impairment.

Methods: Participants were recruited from the Swedish Usher database. Twenty-one persons with USH3 received two questionnaires, which covered a wide range of domains related to health and social trust. Fifteen individuals, 4 men and 11 women aged 19-71 years, responded. Each outcome measure within every domain reported by the individual was structured into a matrix, which included auditory and visual findings.

Results: Severe problems with health and social trust were apparent for persons with USH3. Differences in the number of reported problems were suggested. Three persons had cochlear implants, and they reported far fewer problems with physical health, mental health, and social trust than the others.

Discussion: Three major patterns emerged. The first was that the group was heterogeneous with regard to the problems reported in the biopsychosocial dimensions; that is, general health, physical health, and mental health, as well as social trust. The second was that none of the biopsychosocial dimensions could be disregarded when describing health among persons with USH3. The third major pattern was that a cochlear implant might benefit the health of persons with USH3.

Implications for practitioners: The results suggested poor physical and mental health and severe social trust problems for people with USH3. Interdisciplinary strategies are required to facilitate the rehabilitation of persons with USH3 throughout their lifespan.

Place, publisher, year, edition, pages
American Foundation for the Blind, 2016
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Research subject
Disability Science
Identifiers
urn:nbn:se:oru:diva-53386 (URN)000384897800004 ()
Available from: 2016-11-03 Created: 2016-11-03 Last updated: 2019-03-26Bibliographically approved
Wahlqvist, M., Möller, K., Möller, C. & Danermark, B. (2016). Physical and psychological health, social trust and financial situation for persons with Usher syndrome type 1. The British Journal of Visual Impairment, 34(1), 15-25
Open this publication in new window or tab >>Physical and psychological health, social trust and financial situation for persons with Usher syndrome type 1
2016 (English)In: The British Journal of Visual Impairment, ISSN 0264-6196, E-ISSN 1744-5809, Vol. 34, no 1, p. 15-25Article in journal (Refereed) Published
Abstract [en]

The article describes physical health, psychological health, social trust, and financial situation in persons with deafblindness due to Usher syndrome type 1 (USH1) in comparison with a crosssection of the Swedish population. Persons with USH1 were recruited through the Swedish Usher database. Totally, 87 adults received the Health on Equal Terms (HET) questionnaire. The HET was adjusted, thus the questions were translated into Swedish sign language, and a large font size, better contrast, and a structure compatible with the Braille script reader were also provided. The questionnaire comprises a wide range of domains related to health and wellbeing. In all, 60 persons responded (60% women, mean age: 49 years, range: 21–79 years). The persons with USH1 were compared to a cross section of the Swedish population that included 5738 individuals (56% women, mean age: 49 years, range: 16–84 years). Significant differences in physical health, psychological health, social trust, and financial situation as well as the odds ratio adjusted for sex and age, and its 95% confidence interval are reported. The psychological health, social trust, and financial situation of persons with USH1 were significantly poorer compared to the reference group although this was not the case for physical health. Persons with USH1 only expressed significantly more problems with headache compared to the cross section of the Swedish population. The respondents revealed major problems with fatigue, loss of confidence, and suicide thoughts and attempts. Major social trust and financial problems were reported in terms of refraining going out alone, not receiving help, having no one with whom to share thoughts, and confide in and being unable to obtain 15.000 SEK (approximately US$1.724 or €1.544) in the case of an unforeseen situation. To identify factors associated with physical health, psychological health, social trust, and financial situation is important in the design of future rehabilitation strategies for persons with USH1. The high level of psychological distress and lack of social trust reported could be related to ontological insecurity, as well as lack of recognition from others. Special attention must be devoted to suicide behavior.

Place, publisher, year, edition, pages
London, United Kingdom: Sage Publications, 2016
Keywords
Deafblindness, health, physical health, psychological health, social trust, Usher syndrome 1
National Category
Medical and Health Sciences Ophthalmology
Identifiers
urn:nbn:se:oru:diva-47253 (URN)10.1177/0264619615610158 (DOI)000433687500003 ()
Available from: 2015-12-28 Created: 2015-12-28 Last updated: 2019-03-26Bibliographically approved
Ehn, M., Möller, K., Danermark, B. & Möller, C. (2016). The relationship between work and health in persons with Usher syndrome type 2. Journal of Visual Impairment & Blindness, 110(4), 233-244
Open this publication in new window or tab >>The relationship between work and health in persons with Usher syndrome type 2
2016 (English)In: Journal of Visual Impairment & Blindness, ISSN 0145-482X, E-ISSN 1559-1476, Vol. 110, no 4, p. 233-244Article in journal (Refereed) Published
Abstract [en]

Introduction: Persons with deafblindness may have additional physical and psychological health problems. In this study we have focused on health from a work-life perspective in persons with Usher syndrome type 2 (USH2), a disorder with sensorineural hearing loss and retinitis pigmentosa. The aim of this study was to investigate the relationship between work and disability pension and physical and psychological health in persons with USH2.

Methods: Participants were recruited from the Swedish Usher database. Eighty-four persons (aged 18 to 65 years) received a health-related questionnaire and 67 (36 women and 31 men) agreed to participate. The participants formed two groups (working group, n = 34; disability pension group, n = 33). A Swedish Health on Equal Terms questionnaire comprising questions on psychological and physical health, living conditions, work activity, and social relationships was used. A chi-square test of significance was used with a significance level of p < 0.05.

Results: The two groups did not differ in terms of age, gender, degree of hearing loss, visual acuity, or visual field loss. The working group had statistically significant better health compared to the disability pension group in areas such as being overweight, handling problems, concentration, feeling unhappy, depressive symptoms, and feelings of worthlessness. Suicidal thoughts and attempts were significantly more common in the disability pension group.

Discussion: Persons with USH2 generally reported very poor physical and psychological health, with significant differences between persons who were working and those who were not. This study highlights the need for early rehabilitation, vocational training, and opportunities to access the labor market. Implications for practitioners: It is important that persons with USH2 receive vocational support from an early age and that professionals in the field of rehabilitation always include work activity as a key element of interventions.

Place, publisher, year, edition, pages
New York, USA: American Foundation for the Blind, 2016
National Category
Occupational Therapy Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-51754 (URN)000384897800003 ()
Funder
Swedish Research Council
Note

Funding Agency:

Örebro University

Available from: 2016-08-23 Created: 2016-08-23 Last updated: 2020-03-11Bibliographically approved
Wahlqvist, M., Möller, K., Möller, C. & Danermark, B. (2015). Physical and Psychological Health, Social Trust and Financial Situation for persons with Usher syndrome type 1. The British Journal of Visual Impairment
Open this publication in new window or tab >>Physical and Psychological Health, Social Trust and Financial Situation for persons with Usher syndrome type 1
2015 (English)In: The British Journal of Visual Impairment, ISSN 0264-6196, E-ISSN 1744-5809Article in journal (Refereed) Accepted
Place, publisher, year, edition, pages
London, United Kingdom: Sage Publications, 2015
National Category
Otorhinolaryngology Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:oru:diva-46189 (URN)
Available from: 2015-10-20 Created: 2015-10-19 Last updated: 2019-06-14Bibliographically approved
Adolfsson, M., Westerberg, C. & Möller, K. (2014). Everyday life situations of school-aged children with severe disabilities: what are the goals for the future? an exploratory study. Journal of Intellectual Disability - Diagnosis and Treatment (2), 21-32
Open this publication in new window or tab >>Everyday life situations of school-aged children with severe disabilities: what are the goals for the future? an exploratory study
2014 (English)In: Journal of Intellectual Disability - Diagnosis and Treatment, E-ISSN 2292-2598, no 2, p. 21-32Article in journal (Refereed) Published
Abstract [en]

This study investigated present and future everyday life situations (ELS) in home, school, work, and leisureenvironments for a group of school-aged children with severe disabilities, including complex disorders and a combinationof disabilities.

The purpose was to explore universal ELS; clarify how the children can be supported in their developmentof autonomy; and to gather information on potential overall goals for interventions. To make data comparable, allreported ELS were linked to the International Classification of Functioning, Disability and Health, Child and Youth version(ICF-CY) and listed along with information on the setting. Both today, and in the future, recreational activities andparticipation in school or work were of highest importance, but few reported ELS involved directly interacting with otherchildren. More ELS were predicted to occur outside the home and with a higher degree of autonomy. Therefore,interventions would be focused on the overall goal that children with severe disabilities take initiatives to becomeindependent and to form relationships with others.

Keywords
Children, classification, disability, everyday life situation, ICF-CY, involvement, participation, special education.
National Category
Medical and Health Sciences
Research subject
Disability Science
Identifiers
urn:nbn:se:oru:diva-34378 (URN)
Available from: 2014-03-19 Created: 2014-03-19 Last updated: 2019-03-18Bibliographically approved
Möller, K., Möller, C. & Danermark, B. (2014). ICF Brief Core Set for Adults with Hearing Loss in Audiological Rehabilitation Part I. In: : . Paper presented at Nordic Audiological Society konferens, Åbo Finland, 1-3 September, 2014..
Open this publication in new window or tab >>ICF Brief Core Set for Adults with Hearing Loss in Audiological Rehabilitation Part I
2014 (English)Conference paper, Oral presentation with published abstract (Refereed)
Keywords
ICF. Audiologi Rehabilitering
National Category
Medical and Health Sciences Otorhinolaryngology
Research subject
Disability Science
Identifiers
urn:nbn:se:oru:diva-40301 (URN)
Conference
Nordic Audiological Society konferens, Åbo Finland, 1-3 September, 2014.
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2015-01-08 Created: 2015-01-08 Last updated: 2018-06-15Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-4455-7826

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