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Luhr, K., Eldh, A. C., Theander, K. & Holmefur, M. (2019). Effects of a self-management programme on patient participation in patients with chronic heart failure or chronic obstructive pulmonary disease: A randomized controlled trial. European Journal of Cardiovascular Nursing, 18(3), 185-193
Open this publication in new window or tab >>Effects of a self-management programme on patient participation in patients with chronic heart failure or chronic obstructive pulmonary disease: A randomized controlled trial
2019 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 18, no 3, p. 185-193Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Self-management strategies are crucial to patients with long-term conditions and can presumably promote patient participation, given that to patients, patient participation connotes opportunities for self-care (along with being engaged in an exchange of knowledge, a phrasing of joint goals and planning of care). So far, limited attention has been given to what components support self-management and what outcomes can be achieved. An exclusive self-management programme in primary healthcare entailed assessing its influence on patient participation.

AIM: To describe the effects of a self-management programme on preferences for, and experiences of, patient participation in patients with chronic obstructive pulmonary disease or chronic heart failure.

METHODS: A randomized controlled trial with a six session intervention programme, including phrasing of individual action plans and group discussions on the patients' issues. The intervention group ( n=59) received standard care and the self-management programme, and the control group ( n=59) received standard care only. Data was collected at baseline and at three months and 12 months after the intervention started, using the Patient Preferences for Patient Participation (the 4Ps) measure.

RESULTS: No significant differences were found within the groups, or between the groups, in preferences and experiences of patient participation, either in summary score or at an item level.

CONCLUSION: A self-management group programme led by trained primary healthcare staff in primary care did not serve as means to influence patients' experience of patient participation in the care of their long-term condition. Further studies are needed in regard to what facilitates patient participation in this setting and beyond.

Place, publisher, year, edition, pages
Sage Publications, 2019
Keywords
Chronic obstructive pulmonary disease, chronic heart failure, long-term conditions, patient participation, primary healthcare, self-management programme
National Category
Nursing Health Care Service and Management, Health Policy and Services and Health Economy Cardiac and Cardiovascular Systems
Identifiers
urn:nbn:se:oru:diva-69211 (URN)10.1177/1474515118804126 (DOI)000459871100003 ()30277807 (PubMedID)2-s2.0-85059539432 (Scopus ID)
Available from: 2018-10-04 Created: 2018-10-04 Last updated: 2019-06-19Bibliographically approved
Lidström-Holmqvist, K., Tollén, A. & Holmefur, M. (2019). Erfarenheter av att delta i gruppinterventionen Ha Koll! för personer med nedsatt tidshanteringsförmåga. In: : . Paper presented at Arbetsterapiform, Nationell forskningskonferens, Stockholm, Sweden, 2-3 April, 2019.
Open this publication in new window or tab >>Erfarenheter av att delta i gruppinterventionen Ha Koll! för personer med nedsatt tidshanteringsförmåga
2019 (Swedish)Conference paper, Oral presentation with published abstract (Refereed)
National Category
Other Health Sciences
Research subject
Occupational therapy
Identifiers
urn:nbn:se:oru:diva-73822 (URN)
Conference
Arbetsterapiform, Nationell forskningskonferens, Stockholm, Sweden, 2-3 April, 2019
Available from: 2019-04-16 Created: 2019-04-16 Last updated: 2019-04-16Bibliographically approved
Spang, L., Holmefur, M., Hermansson, L. & Lidström-Holmqvist, K. (2019). Factors in daily life leading to the need for moving to a nursing home: Experiences from nursing home applicants. In: : . Paper presented at International Association of Gerontology and Geriatrics European Region Congress (IAGG-ER), Gothenburg, Sweden, May 23-25, 2019.
Open this publication in new window or tab >>Factors in daily life leading to the need for moving to a nursing home: Experiences from nursing home applicants
2019 (English)Conference paper, Poster (with or without abstract) (Other academic)
Abstract [en]

Background/Aim In Sweden, most people age in ordinary housing, called aging in place. To support aging in place, older people can apply for home-based care such as Meals on Wheels or response alarm .Despite this support, the municipalities receive applications to nursing homes on a daily basis, which indicates that aging in place does not fill everyone’s needs. The aim of this study was to describe what experiences in daily life that make older people aging in place apply for a nursing home.

Method This study has a descriptive design. Face to face interviews were conducted with older people with declining physical health who had a granted application for a place in a nursing home and were waiting for a placement. Some waited in their homes with or without home-based care and some waited in a short-term facility run by the municipality. Interviews were analyzed by qualitative content analysis according to Elo and Kyngäs.

Preliminary findings One main category emerged - “To move to a nursing home- a way to regain control over my life”. It was characterized by a feeling of decreasing level of independence which led to experiences of lack of social context or being in a state of dependence where someone else controlled decisions of their lives.  The participants had reached a point where they strongly felt that something has to be done to change their situation. This was usually associated with a critical event such as a hospitalization or after been informed of a cancer diagnosis. These experiences are described by three generic categories with seven subcategories.  The generic categories are “The opportunity to belong to a context”, “A state of dependence” and “Reaching a turning point”.

Conclusions The findings show that a feeling of lost control due to perceived dependence, falling health or critical everyday life events may lead to a nursing home application. Therefore, in order to enhance aging in place it is important to enable older people to be socially involved, get support to stay as independent as possible in their daily activities and to handle critical events such as hospitalization.

National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:oru:diva-73633 (URN)
Conference
International Association of Gerontology and Geriatrics European Region Congress (IAGG-ER), Gothenburg, Sweden, May 23-25, 2019
Available from: 2019-04-10 Created: 2019-04-10 Last updated: 2019-06-07Bibliographically approved
Holmefur, M., Lidström-Holmqvist, K., Roshanay, A., Arvidsson, P., White, S. & Janeslätt, G. (2019). Ha koll!: pilotstudie av en arbetsterapeutisk gruppintervention som syftar till förbättrad tidshantering. In: : . Paper presented at Arbetsterapiforum, Nationell forskningskonferens, Stockholm, Sweden, 2-3 April, 2019.
Open this publication in new window or tab >>Ha koll!: pilotstudie av en arbetsterapeutisk gruppintervention som syftar till förbättrad tidshantering
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2019 (Swedish)Conference paper, Oral presentation with published abstract (Refereed)
National Category
Other Health Sciences
Research subject
Occupational therapy
Identifiers
urn:nbn:se:oru:diva-73824 (URN)
Conference
Arbetsterapiforum, Nationell forskningskonferens, Stockholm, Sweden, 2-3 April, 2019
Available from: 2019-04-16 Created: 2019-04-16 Last updated: 2019-04-16Bibliographically approved
Holmefur, M. (2019). Infant hand development in unilateral cerebral palsy: filling the knowledge gap. Developmental Medicine & Child Neurology, 61(5), 507-507
Open this publication in new window or tab >>Infant hand development in unilateral cerebral palsy: filling the knowledge gap
2019 (English)In: Developmental Medicine & Child Neurology, ISSN 0012-1622, E-ISSN 1469-8749, Vol. 61, no 5, p. 507-507Article in journal, Editorial material (Other academic) Published
Place, publisher, year, edition, pages
Mac Keith Press, 2019
National Category
Neurology Pediatrics
Research subject
Disability Science
Identifiers
urn:nbn:se:oru:diva-71581 (URN)10.1111/dmcn.14164 (DOI)000467990900007 ()30644546 (PubMedID)2-s2.0-85060162361 (Scopus ID)
Available from: 2019-01-17 Created: 2019-01-17 Last updated: 2019-06-18Bibliographically approved
Holmefur, M., Lidström-Holmqvist, K., Roshanay, A. H., Arvidsson, P., White, S. & Janeslätt, G. (2019). Pilot Study of Let's Get Organized: A Group Intervention for Improving Time Management. American Journal of Occupational Therapy, 73(5), Article ID 7305205020.
Open this publication in new window or tab >>Pilot Study of Let's Get Organized: A Group Intervention for Improving Time Management
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2019 (English)In: American Journal of Occupational Therapy, ISSN 0272-9490, E-ISSN 1943-7676, Vol. 73, no 5, article id 7305205020Article in journal (Refereed) Published
Abstract [en]

IMPORTANCE: There is a need for evidence-based occupational therapy interventions to enhance time management in people with time management difficulties.

OBJECTIVE: To pilot test the first part of the Let's Get Organized (LGO) occupational therapy intervention in a Swedish context by exploring enhancements of time management skills, aspects of executive functioning, and satisfaction with daily occupations in people with time management difficulties because of neurodevelopmental or mental disorders.

DESIGN: One-group pretest-posttest design with 3-mo follow-up.

SETTING: Outpatient psychiatric and habilitation settings.

PARTICIPANTS: Fifty-five people with confirmed or suspected mental or neurodevelopmental disorder and self-reported difficulties with time management in daily life.

INTERVENTION: Swedish version of Let's Get Organized (LGO-S) Part 1, with structured training in the use of cognitive assistive techniques and strategies using trial-and-error learning strategies in 10 weekly group sessions of 1.5 hr.

OUTCOMES AND MEASURES: Time management, organization and planning, and emotional regulation were measured with the Swedish version of the Assessment of Time Management Skills (ATMS-S). Executive functioning was measured with the Swedish version of the Weekly Calendar Planning Activity, and satisfaction with daily occupations was assessed with the Satisfaction With Daily Occupations measure.

RESULTS: Participants displayed significantly improved time management, organization and planning skills, and emotional regulation, as well as satisfaction with daily occupations. Aspects of executive functioning were partly improved. ATMS-S results were sustained at 3-mo follow-up.

CONCLUSION AND RELEVANCE: LGO-S Part 1 is a promising intervention for improving time management skills and satisfaction with daily occupations and should be investigated further.

WHAT THIS ARTICLE ADDS: This study shows that LGO-S Part 1 is feasible for use in psychiatric and habilitation outpatient services. The results are promising for improved time management skills, organization and planning skills, and satisfaction with daily occupations and need to be confirmed in further studies.

Place, publisher, year, edition, pages
American Occupational Therapy Association, Inc., 2019
National Category
Occupational Therapy
Identifiers
urn:nbn:se:oru:diva-76098 (URN)10.5014/ajot.2019.032631 (DOI)000489158800009 ()31484026 (PubMedID)2-s2.0-85071244533 (Scopus ID)
Note

Funding Agencies:

Centre for Clinical Research Dalarna, Falun, Sweden  

Örebro University, Örebro, Sweden  

Swedish Association of Occupational Therapists 

Available from: 2019-09-09 Created: 2019-09-09 Last updated: 2019-11-15Bibliographically approved
Lidström-Holmqvist, K., Holmefur, M. & Arvidsson, P. (2019). Test-retest reliability of the Swedish version of the Weekly Calendar Planning Activity: a performance-based test of executive functioning. Disability and Rehabilitation, 1-6
Open this publication in new window or tab >>Test-retest reliability of the Swedish version of the Weekly Calendar Planning Activity: a performance-based test of executive functioning
2019 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, p. 1-6Article in journal (Refereed) Epub ahead of print
Abstract [en]

PURPOSE: The Weekly Calendar Planning Activity is a performance test aiming to examine how subtle problems with executive functioning influence the performance of multi-step activities in daily life. The purpose of this study was to explore the Swedish version of the Weekly Calendar Planning Activity, regarding test-retest reliability and possible learning effects.

MATERIAL AND METHODS: Twenty-four adults with psychiatric, neurodevelopmental or mild intellectual disorders and with difficulties in executive functioning performed the test on three separate occasions, with two weeks apart. Test-retest reliability was determined using intraclass correlation coefficients. Possible learning effects were evaluated. The smallest detectable change was calculated to determine the precision of individual scores.

RESULTS AND CONCLUSION: The intraclass correlation coefficients between the first two test occasions were weak (0.42-0.66), but were acceptable to excellent (0.65-0.91) between test occasions 2 and 3. There was a considerable amount of random variation in the results, but little systematic variation, indicating no or possibly a small learning effect in the total number of accurately recorded appointments. This variation indicates a need to use two consecutive baseline measurements when the Swedish version of the Weelky Calendar Planning Acitivity is used as an outcome measure. Together, our results suggest that the Swedish version of the Weelky Calendar Planning Acitivity is a useful performance-based measure of how subtle problems in executive functioning affects activity performance. Implications for rehabilitation Executive functioning is crucial for managing daily life, and ecologically valid tests are needed to measure such functioning. The Weekly Calendar Planning Activity is a new performance-based test using a task that is relevant to daily life. The outcomes obtained in the Weekly Calendar Planning Activity are highly useful in clinical practice. The day-to-day variation in the Weekly Calendar Planning Activity results warrants the need for two consecutive baseline measurements when it is used to measure change.

Place, publisher, year, edition, pages
Informa Healthcare, 2019
Keywords
Assessment, activities of daily living, cognition, mental processes, psychometrics, task performance and analyses
National Category
Physiotherapy
Identifiers
urn:nbn:se:oru:diva-72785 (URN)10.1080/09638288.2019.1568590 (DOI)30782039 (PubMedID)
Available from: 2019-02-26 Created: 2019-02-26 Last updated: 2019-02-26Bibliographically approved
Lidström-Holmqvist, K. & Holmefur, M. (2019). The ADL taxonomy for persons with mental disorders: adaptation and evaluation. Scandinavian Journal of Occupational Therapy, 26(7), 524-534
Open this publication in new window or tab >>The ADL taxonomy for persons with mental disorders: adaptation and evaluation
2019 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 26, no 7, p. 524-534Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: There is a lack of occupation-focused instruments to assess Activities of Daily Living (ADL) that are intended for persons with mental disorders. The ADL Taxonomy is an instrument that is widely-used within clinical practice for persons with physical impairment. The aim of this study was to adapt the ADL Taxonomy for persons with mental disorders and evaluate its validity.

METHODS: An expert group of Occupational Therapists (OTs) from psychiatric care adapted the ADL Taxonomy to fit the client group, including creating three new items. OTs in psychiatric care collected client data and evaluated the instrument for usability. Rasch analysis was used to evaluate the contruct validity of 16 activities separately.

RESULTS: The OTs collected 123 assessments from clients with various mental disorders. Ten activities had excellent, and four had acceptable, psychometric properties with regard to item and person fit and unidimensionality. The activity managing the day/time gave complex results and would benefit from further development. The OTs found the test version intelligible, relevant and easy to use.

CONCLUSIONS: The ADL Taxonomy for persons with mental disorders has 16 activities with three to six actions each, and is now ready for clinical use.

Place, publisher, year, edition, pages
Taylor & Francis, 2019
Keywords
Activities of daily living, assessment, occupational therapy, psychometric properties, rasch analysis
National Category
Occupational Therapy Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-67023 (URN)10.1080/11038128.2018.1469667 (DOI)000466812000006 ()29720019 (PubMedID)2-s2.0-85046401319 (Scopus ID)
Note

Funding Agencies:

Örebro University  

Swedish Association of Occupational Therapists 

Available from: 2018-05-18 Created: 2018-05-18 Last updated: 2019-06-19Bibliographically approved
Janeslätt, G. K., Lidström-Holmqvist, K., White, S. & Holmefur, M. (2018). Assessment of time management skills: psychometric properties of the Swedish version. Scandinavian Journal of Occupational Therapy, 25(3), 153-161
Open this publication in new window or tab >>Assessment of time management skills: psychometric properties of the Swedish version
2018 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 25, no 3, p. 153-161Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Persons with impaired time management skills are often in need of occupational therapy. Valid and reliable instruments to assess time management and organizational skills are needed for the evaluation of intervention. The purpose of this study was to evaluate the psychometric properties of a Swedish version of the Assessment of Time Management Skills (ATMS-S) for persons with and without impaired time management skills.

METHOD: A total of 238 persons participated in the study, of whom 94 had self-reported impaired time management skills due to mental disorders such as schizophrenic spectrum or neurodevelopmental disorders such as attention deficit/hyperactivity disorder (ADHD), autism spectrum disorder (ASD) and mild intellectual disabilities, and 144 persons had no reported impaired time management skills. Rasch analysis was used to analyze data.

RESULTS: Three subscales were detected: the time management subscale with 11 items, the organization & planning subscale with 11 items, and the subscale of regulation of emotions with 5 items, with excellent to acceptable psychometric properties. The conclusions were that: ATMS-S is a valid instrument for self-rating of time management, organization & planning and for the regulation of emotions. ATMS-S can be useful for persons with mental disorders including mild neurodevelopmental disorders.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2018
Keywords
Psychometrics; executive function; rehabilitation; reproducibility of results; mental disorders
National Category
Occupational Therapy Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-62489 (URN)10.1080/11038128.2017.1375009 (DOI)000429357900001 ()28882081 (PubMedID)2-s2.0-85029432949 (Scopus ID)
Note

Funding Agencies:

Centre for Clinical research in Dalarna  CKFUU-312401  CKFUU-37254 

Örebro university  1.3.2-2134/2014 

Faculty Board of Medicine and Health at Örebro university  1.3.1-01838/2015 

Available from: 2017-11-27 Created: 2017-11-27 Last updated: 2018-08-11Bibliographically approved
Holmefur, M., Lidström-Holmqvist, K., Arvidsson, P., Roshanai, A., White, S. & Janeslätt, G. (2018). Let’s Get Organized: pilot study of an occupational therapy group intervention aimed to improve time management skills. In: : . Paper presented at WFOT-congress (World federation of occupational therapists, Cape Town, South Africa, 21-25 May, 2018.
Open this publication in new window or tab >>Let’s Get Organized: pilot study of an occupational therapy group intervention aimed to improve time management skills
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2018 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Introduction: Managing daily life activities requires time management and organizing skills. Individuals with cognitive disabilities commonly have poor ability to manage time, which often results in decreased ability to properly manage daily life activities. An intervention aimed to increase time management skills is "Let’s get organized" (LGO).

Objective: The current pilot study was designed to explore the outcome of the LGO with regards to time management skills, executive functions and satisfaction with daily occupations among individuals with cognitive disabilities.

Method: Persons with mental and neurodevelopmental disorder with decreased ability to manage time in daily life according to self-rated measures, were recruited by their local Occupational Therapist. All participants took part in LGO, which is a 10-week manual based group intervention with weekly meetings. Each session has a separate theme, with a common structure and goal to improve time management skills and to implement the use of a calendar in daily life. Measured outcomes were time management skills (Assessment of Time Management Skills), executive functioning (Weekly Calendar Planning Activity) and overall satisfaction with daily activities (Satisfaction with Daily Occupations).

Results: In all 55 persons participated in the study. Preliminary results from a subgroup indicate significant improvements in time management skills, in aspects of executive functioning and in overall satisfaction with daily occupations.

Conclusion: The LGO seems to be a promising intervention to improve time management skills and satisfaction with daily occupations in the short term. The used instruments appear to be sensitive to capture change from LGO.

National Category
Other Health Sciences Occupational Therapy
Identifiers
urn:nbn:se:oru:diva-69295 (URN)
Conference
WFOT-congress (World federation of occupational therapists, Cape Town, South Africa, 21-25 May, 2018
Available from: 2018-10-05 Created: 2018-10-05 Last updated: 2018-10-05Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-5418-3154

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