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Thangavel, G., Memedi, M. & Hedström, K. (2024). Information and Communication Technology for Managing Social Isolation and Loneliness Among People Living With Parkinson Disease: Qualitative Study of Barriers and Facilitators. Journal of Medical Internet Research, 26, Article ID e48175.
Open this publication in new window or tab >>Information and Communication Technology for Managing Social Isolation and Loneliness Among People Living With Parkinson Disease: Qualitative Study of Barriers and Facilitators
2024 (English)In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 26, article id e48175Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Parkinson disease (PD) is a complex, noncurable, and progressive neurological disease affecting different areas of the human nervous system. PD is associated with both motor and nonmotor symptoms, which negatively affect patients' quality of life and may cause changes in socialization such as intentional social withdrawal. This may further lead to social isolation and loneliness. The use of information and communication technology (ICT) plays an important role in managing social isolation and loneliness. Currently, there is a lack of research focusing on designing and developing ICT solutions that specifically address social isolation and loneliness among people living with PD.

OBJECTIVE: This study addresses this gap by investigating barriers and social needs in the context of social isolation, loneliness, and technology use among people living with PD. The insights gained can inform the development of effective ICT solutions, which can address social isolation and loneliness and improve the quality of life for people living with PD.

METHODS: A qualitative study with 2 phases of data collection were conducted. During the first phase, 9 health care professionals and 16 people living with PD were interviewed to understand how PD affects social life and technology use. During the second phase, 2 focus groups were conducted with 4 people living with PD in each group to gather insights into their needs and identify ways to manage social isolation and loneliness. Thematic analysis was used to analyze both data sets and identify key themes.

RESULTS: The results showed that the barriers experienced by people living with PD due to PD such as "fatigue," "psychological conditions," "social stigma," and "medication side effects" affect their social life. People living with PD also experience difficulties using a keyboard and mouse, remembering passwords, and navigating complex applications due to their PD-related physical and cognitive limitations. To manage their social isolation and loneliness, people living with PD suggested having a simple and easy-to-use solution, allowing them to participate in a digital community based on their interests, communicate with others, and receive recommendations for social events.

CONCLUSIONS: The new ICT solutions focusing on social isolation and loneliness among people living with PD should consider the barriers restricting user's social activities and technology use. Given the wide range of needs and barriers experienced by people living with PD, it is more suitable to adopt user-centered design approaches that emphasize the active participation of end users in the design process. Importantly, any ICT solution designed for people living with PD should not encourage internet addiction, which will further contribute to the person's withdrawal from society.

Place, publisher, year, edition, pages
JMIR Publications, 2024
Keywords
ICT, Parkinson disease, information and communication technology, loneliness, social isolation
National Category
Human Aspects of ICT
Identifiers
urn:nbn:se:oru:diva-111017 (URN)10.2196/48175 (DOI)38231548 (PubMedID)2-s2.0-85182768739 (Scopus ID)
Funder
EU, Horizon 2020
Note

This project received funding from the European Union’s Horizon 2020 research and innovation program under the MarieSklodowska-Curie.

Available from: 2024-01-26 Created: 2024-01-26 Last updated: 2024-02-05Bibliographically approved
Wihlborg, E., Lindgren, I., Hedström, K. & Gidlund, K. (2023). Institutional Re-design for a Digital Era - Learning from Cases of Automation. In: Noella Edelmann; Lieselot Danneels; Anna-Sophie Novak; Panos Panagiotopoulos; Iryna Susha (Ed.), Electronic Participation: 15th IFIP WG 8.5 International Conference, ePart 2023, Budapest, Hungary, September 5–7, 2023, Proceedings. Paper presented at 15th IFIP WG 8.5 International Conference on Electronic Participation, Budapest, Hungary, September 5–7, 2023 (pp. 99-113). Cham: Springer
Open this publication in new window or tab >>Institutional Re-design for a Digital Era - Learning from Cases of Automation
2023 (English)In: Electronic Participation: 15th IFIP WG 8.5 International Conference, ePart 2023, Budapest, Hungary, September 5–7, 2023, Proceedings / [ed] Noella Edelmann; Lieselot Danneels; Anna-Sophie Novak; Panos Panagiotopoulos; Iryna Susha, Cham: Springer, 2023, p. 99-113Conference paper, Published paper (Refereed)
Abstract [en]

Digital government often addresses how, where, and by whom digital transformation is brought into the complex institutional framed practices of governments and governance of society. However, digital transformation also points at critical demands to address the basic underlying institutional design of governments. The ongoing digital transformation of public welfare institutions opens for a gradual redesign of public institutions. It is important to address core values, such as inclusion, diversity, and literacy, to ensure a reflected transformation and re-design of public institutions. The purpose of this paper is to show how new forms of digital public services may have to be matched with institutional re-design to sustain public values and legitimate governments. We build on Ostrom’s eight design principles for institutional governance of common-pool resources and propose four principles for analyzing potential needs for re-design of institutions. Through a re-analysis of two case studies on automation in Swedish public organizations, we illustrate and discuss the institutional design. Hereby, we identify critical points for further analysis of emerging demands for institutional re-design. The analysis indicates that we must see beyond the organizational changes of digital government reforms and programs. We need to stretch into the institutional and foundational models of the public sector and how to provide equal and resilient welfare in a digital and changing world. We conclude by suggesting an agenda for research on institutional re-design in the digital era.

Place, publisher, year, edition, pages
Cham: Springer, 2023
Series
Lecture Notes in Computer Science, ISSN 0302-9743, E-ISSN 1611-3349 ; 14153
Keywords
Digital government, Institutional design, Welfare state
National Category
Media and Communications Information Systems, Social aspects
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-108756 (URN)10.1007/978-3-031-41617-0_7 (DOI)2-s2.0-85171572904 (Scopus ID)9783031416163 (ISBN)9783031416170 (ISBN)
Conference
15th IFIP WG 8.5 International Conference on Electronic Participation, Budapest, Hungary, September 5–7, 2023
Available from: 2023-10-04 Created: 2023-10-04 Last updated: 2023-10-05Bibliographically approved
Thangavel, G., Memedi, M., Moll, J. & Hedström, K. (2023). Management of social isolation and loneliness in Parkinson’s disease: Design principles. In: ICIS 2023 Proceedings: . Paper presented at 2023 International Conference on Information Systems (ICIS 2023), Hyderabad, India, December 10-13, 2023. AIS eLibrary, Article ID 2169.
Open this publication in new window or tab >>Management of social isolation and loneliness in Parkinson’s disease: Design principles
2023 (English)In: ICIS 2023 Proceedings, AIS eLibrary , 2023, article id 2169Conference paper, Published paper (Refereed)
Abstract [en]

Persons with Parkinson’s disease (PwPs) may have difficulty participating in social activities due to motor and non-motor symptoms that may lead to social isolation and loneliness. This paper addresses how to manage social isolation and loneliness among PwPs using digital solutions. Information and Communication Technologies (ICT) have the potential to address social isolation and loneliness, but there are no current solutions that specifically target these issues among PwPs. In this paper, we present an ongoing project based on design science research (DSR) combined with a user-centered approach to identify challenges, requirements, and design objectives. The empirical work includes data from interviews and focus groups with PwPs and healthcare professionals. Based on the empirical material, we formulated design principles on identified challenges and requirements, which were instantiated into a high-fidelity prototype. This initial cycle serves as a foundation for ongoing improvements and evaluations in a continuous DSR process.

Place, publisher, year, edition, pages
AIS eLibrary, 2023
Keywords
Social isolation, loneliness, Information and Communication Technologies, design science research, user-centered design, design principles
National Category
Gerontology, specialising in Medical and Health Sciences Interaction Technologies
Research subject
Informatics; Human-Computer Interaction
Identifiers
urn:nbn:se:oru:diva-111049 (URN)9781958200070 (ISBN)
Conference
2023 International Conference on Information Systems (ICIS 2023), Hyderabad, India, December 10-13, 2023
Funder
EU, Horizon 2020, 754285
Available from: 2024-01-25 Created: 2024-01-25 Last updated: 2024-01-31Bibliographically approved
Ngwenyama, O., Akhlaghpour, S., Rowe, F., Hedström, K. & Schlagwein, D. (2023). Societal digitalization, value dilemma and the ’digital first’ paradigm: The broader questions of contract tracing apps in the post pandemic period. In: International Conference of Information Systems (ICIS) 2023: . Paper presented at International Conference of Information Systems (ICIS 2023), Hyderabadh, India, December 10-13, 2023.
Open this publication in new window or tab >>Societal digitalization, value dilemma and the ’digital first’ paradigm: The broader questions of contract tracing apps in the post pandemic period
Show others...
2023 (English)In: International Conference of Information Systems (ICIS) 2023, 2023Conference paper, Published paper (Refereed)
National Category
Information Systems
Identifiers
urn:nbn:se:oru:diva-111815 (URN)
Conference
International Conference of Information Systems (ICIS 2023), Hyderabadh, India, December 10-13, 2023
Available from: 2024-02-26 Created: 2024-02-26 Last updated: 2024-02-26Bibliographically approved
Havstorm, T. E., Karlsson, F. & Hedström, K. (2023). Uncovering Situations of Cargo Cult Behavior in Agile Software Development Method Use. In: Tung X. Bui (Ed.), Proceedings of the 56th Hawaii International Conference on System Sciences: . Paper presented at 56th Hawaii International Conference on System Sciences (HICSS), Maui, Hawaii, USA, January 3-6, 2023 (pp. 6486-6495). University of Hawai'i at Manoa, 56
Open this publication in new window or tab >>Uncovering Situations of Cargo Cult Behavior in Agile Software Development Method Use
2023 (English)In: Proceedings of the 56th Hawaii International Conference on System Sciences / [ed] Tung X. Bui, University of Hawai'i at Manoa , 2023, Vol. 56, p. 6486-6495Conference paper, Published paper (Refereed)
Abstract [en]

Misinterpretations and faulty use of Software Development Method (SDM) practices and principles are identified pitfalls in Software Development (SD). Previous research indicates cases with method adoption and use failures; one reason could be the SDM Cargo Cult (CC) behavior, where SD organizations claim to be agile but not doing agile. Previous research has suggested the SDM CC framework as an analytical tool. The aim of this paper is to refine the SDM CC framework and empirically test this version of the framework. We use data from an ethnographical study on three SD teams’ Daily Scrum Meetings (DSM). The empirical material was collected through observations, interviews, and the organization’s business documents. We uncovered twelve CC situations in the SD teams’ use of the DSM practice, structured into seven categories of SDM deviations: bringing irrelevant information, canceling meetings, disturbing the team, receiving unclear information, bringing new requirements, problemsolving, and task distribution.

Place, publisher, year, edition, pages
University of Hawai'i at Manoa, 2023
Series
Proceedings of the Annual Hawaii International Conference on System Sciences (HICSS), ISSN 1530-1605, E-ISSN 2572-6862
Keywords
Agile, Cargo cult, Self-determination theory, Social-action theory, Software Development Methods
National Category
Information Systems, Social aspects
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-104323 (URN)9780998133164 (ISBN)
Conference
56th Hawaii International Conference on System Sciences (HICSS), Maui, Hawaii, USA, January 3-6, 2023
Projects
Cargo cult behaviour in agile systems development
Available from: 2023-02-19 Created: 2023-02-19 Last updated: 2023-08-24Bibliographically approved
Karlsson, F., Hedström, K. & Kolkowska, E. (2023). Using the Delphi Method to Elicit Requirements for an International Master’s Program in Information Security Management. In: Leslie F. Sikos; Paul Haskell-Dowland (Ed.), Cybersecruity Teaching in Higher Education: (pp. 37-57). Cham: Springer
Open this publication in new window or tab >>Using the Delphi Method to Elicit Requirements for an International Master’s Program in Information Security Management
2023 (English)In: Cybersecruity Teaching in Higher Education / [ed] Leslie F. Sikos; Paul Haskell-Dowland, Cham: Springer , 2023, p. 37-57Chapter in book (Refereed)
Abstract [en]

In today's complex environments, safeguarding organizations’ information assets is difficult and requires more than solely technical skills. In order to meet the need for future information security specialists, in 2018 the Informatics department at Örebro University launched an International Master’s Program in Information Security Management. The program content was developed in collaboration with industry and governmental partners. One of the challenges with this co-design effort was to elicit the requirements of the courses in the program from a diverse set of actors. Also, an educational program has a finite number of teaching hours, which means that a limited number of requirements, or topics on information security, can be covered. Consequently, there was a need to prioritize between the elicited requirements and make the partners prioritize. To both these ends, we employed the Delphi method. In this chapter, we give an account of the process of eliciting and prioritizing course requirements using an adapted Delphi method. The adopted process included three iterations, for which workshops and surveys were used to collect the necessary data. The implementation has been far from instrumental, and in this chapter we discuss the details related to design choices made and the rationale behind these choices.

Place, publisher, year, edition, pages
Cham: Springer, 2023
National Category
Information Systems, Social aspects
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-109018 (URN)10.1007/978-3-031-24216-8_2 (DOI)9783031242151 (ISBN)9783031242168 (ISBN)
Funder
Knowledge Foundation
Available from: 2023-10-17 Created: 2023-10-17 Last updated: 2023-10-17Bibliographically approved
Hedström, K., Andersson, A. & Wihlborg, E. (2022). Accountability in re-arranged relations when Robotic Process Automation (RPA) becomes a co-worker. In: OASIS 2022 on Criticality and Values in Digital Transformation Research: . Paper presented at OASIS 2022 on Criticality and Values in Digital Transformation Research (IFIP WG 8.2), Copenhagen, Denmark, December 10, 2022.
Open this publication in new window or tab >>Accountability in re-arranged relations when Robotic Process Automation (RPA) becomes a co-worker
2022 (English)In: OASIS 2022 on Criticality and Values in Digital Transformation Research, 2022Conference paper, Oral presentation only (Refereed)
Abstract [en]

This study reports the findings from a research project about automated decision making in public sector focusing the changing role of the case worker in digitalized public administrations. The Swedish Transport Agency has fully automatized certain government public services and decisions, such as decisions about driver license learner’s permit. This made the STA and the driver license department a relevant case study for a project on how automatic decision-making changed procedures and practices among the case worker, and its implications on relationship with the clients. We have shown how accountability is constructed and enacted in public sector work in the intersection of technology – human – organization. Automated decision making re-arranges the organizations where the constructions of accountability are floating, which makes it difficult to safeguard responsibility.

National Category
Information Systems, Social aspects
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-108758 (URN)
Conference
OASIS 2022 on Criticality and Values in Digital Transformation Research (IFIP WG 8.2), Copenhagen, Denmark, December 10, 2022
Available from: 2023-10-04 Created: 2023-10-04 Last updated: 2023-10-05Bibliographically approved
Denk, T., Hedström, K. & Karlsson, F. (2022). Citizens' attitudes towards automated decision-making. Information Polity, 27(3), 391-408
Open this publication in new window or tab >>Citizens' attitudes towards automated decision-making
2022 (English)In: Information Polity, ISSN 1570-1255, E-ISSN 1875-8754, Vol. 27, no 3, p. 391-408Article in journal (Refereed) Published
Abstract [en]

Public organisations are starting to show an interest in automated decision-making (ADM). So far, existing research focuses on the governmental perspective on this phenomenon. Less attention is paid to citizens' views on ADM. The aim of this study is to provide empirical insights into citizen awareness of and beliefs about ADM in public-sector services. To this end, we participated in an annual national survey in Sweden carried out by the SOM Institute at Gothenburg University concluding that a minority of the citizens know about the use of ADM in public-sector services. Furthermore, when computers instead of civil servants make decisions in the public-sector, citizens expect decisions by computers to become less legally secure but more impartial. They also expect ADM to take personal circumstances into account to a lesser degree and become less transparent. Finally, we found that citizens with that awareness expect decisions by computers to become more reliable and impartial. Based on our empirical findings in relation to previous research, we suggest four hypotheses on citizen's awareness and beliefs about public-sector ADM.

Place, publisher, year, edition, pages
IOS Press, 2022
Keywords
Automated decision-making, public organisations, public administration, attitudes, values, electronic government
National Category
Political Science
Identifiers
urn:nbn:se:oru:diva-101515 (URN)10.3233/IP-211516 (DOI)000852884600007 ()
Available from: 2022-09-29 Created: 2022-09-29 Last updated: 2022-10-05Bibliographically approved
Thangavel, G., Memedi, M. & Hedström, K. (2022). Customized Information and Communication Technology for Reducing Social Isolation and Loneliness Among Older Adults: Scoping Review. JMIR Mental Health, 9(3), Article ID e34221.
Open this publication in new window or tab >>Customized Information and Communication Technology for Reducing Social Isolation and Loneliness Among Older Adults: Scoping Review
2022 (English)In: JMIR Mental Health, E-ISSN 2368-7959, Vol. 9, no 3, article id e34221Article, review/survey (Refereed) Published
Abstract [en]

BACKGROUND: Advancements in science and various technologies have resulted in people having access to better health care, a good quality of life, and better economic situations, enabling humans to live longer than ever before. Research shows that the problems of loneliness and social isolation are common among older adults, affecting psychological and physical health. Information and communication technology (ICT) plays an important role in alleviating social isolation and loneliness.

OBJECTIVE: The aim of this review is to explore ICT solutions for reducing social isolation or loneliness among older adults, the purpose of ICT solutions, and the evaluation focus of these solutions. This study particularly focuses on customized ICT solutions that either are designed from scratch or are modifications of existing off-the-shelf products that cater to the needs of older adults.

METHODS: A scoping literature review was conducted. A search across 7 databases, including ScienceDirect, Association for Computing Machinery, PubMed, IEEE Xplore, PsycINFO, Scopus, and Web of Science, was performed, targeting ICT solutions for reducing and managing social isolation and loneliness among older adults. Articles published in English from 2010 to 2020 were extracted and analyzed.

RESULTS: From the review of 39 articles, we identified 5 different purposes of customized ICT solutions focusing on reducing social isolation and loneliness. These were social communication, social participation, a sense of belonging, companionship, and feelings of being seen. The mapping of purposes of ICT solutions with problems found among older adults indicates that increasing social communication and social participation can help reduce social isolation problems, whereas fulfilling emotional relationships and feeling valued can reduce feelings of loneliness. In terms of customized ICT solution types, we found the following seven different categories: social network, messaging services, video chat, virtual spaces or classrooms with messaging capabilities, robotics, games, and content creation and management. Most of the included studies (30/39, 77%) evaluated the usability and acceptance aspects, and few studies (11/39, 28%) focused on loneliness or social isolation outcomes.

CONCLUSIONS: This review highlights the importance of discussing and managing social isolation and loneliness as different but related concepts and emphasizes the need for future research to use suitable outcome measures for evaluating ICT solutions based on the problem. Even though a wide range of customized ICT solutions have been developed, future studies need to explore the recent emerging technologies, such as the Internet of Things and augmented or virtual reality, to tackle social isolation and loneliness among older adults. Furthermore, future studies should consider evaluating social isolation or loneliness while developing customized ICT solutions to provide more robust data on the effectiveness of the solutions.

Place, publisher, year, edition, pages
JMIR Publications, 2022
Keywords
ICT, customization, loneliness, mobile phone, older adults, review, social isolation
National Category
Human Aspects of ICT
Identifiers
urn:nbn:se:oru:diva-97847 (URN)10.2196/34221 (DOI)000787096500013 ()35254273 (PubMedID)2-s2.0-85126100204 (Scopus ID)
Funder
European Commission, 754285
Available from: 2022-03-08 Created: 2022-03-08 Last updated: 2024-01-11Bibliographically approved
Siegert, S., Sommar, C.-J., Hedström, K. & Maria, M.-H. (2022). Sociala medier i skolan: Styrningslöshet i en värld av styrning. Organisation & Samhälle (1), 60-65
Open this publication in new window or tab >>Sociala medier i skolan: Styrningslöshet i en värld av styrning
2022 (Swedish)In: Organisation & Samhälle, ISSN 2001-9114, E-ISSN 2002-0287, no 1, p. 60-65Article in journal (Other (popular science, discussion, etc.)) Published
Place, publisher, year, edition, pages
Föreningen Företagsekonomi i Sverige (FEKIS), 2022
National Category
Information Systems, Social aspects
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-109441 (URN)
Projects
Ledarskap för en hållbar digital arbetsmiljö – Teknik-strategier och arbetslivets gränser
Funder
AFA Insurance
Available from: 2023-10-27 Created: 2023-10-27 Last updated: 2023-10-30Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-2304-7170

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