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Publications (10 of 124) Show all publications
Hagström, J., Blease, C., Moll, J., Rexhepi, H., Scandurra, I. & Hägglund, M. (2024). Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online. Studies in Health Technology and Informatics, 310, 1422-1423
Open this publication in new window or tab >>Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online
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2024 (English)In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 310, p. 1422-1423Article in journal (Refereed) Published
Abstract [en]

Patients feeling offended by reading records online is a concern among healthcare professionals, however previously published work has focused on adult patients. Here, a survey was used to explore and compare experiences of offense among adolescents (15-19 years old) and young adults (20-24 years old). Findings indicated that while the ratio of those offended did not differ between adolescents and young adults, reasons for feeling offended did.

Place, publisher, year, edition, pages
IOS Press, 2024
Keywords
Adolescents, electronic health records, offense, open notes, patient accessible electronic health records, young adults
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:oru:diva-111040 (URN)10.3233/SHTI231225 (DOI)38269677 (PubMedID)
Funder
NordForsk, 100477
Available from: 2024-01-30 Created: 2024-01-30 Last updated: 2024-01-30Bibliographically approved
Kharko, A., Blease, C., Johansen, M., Moen, A., Scandurra, I., McMillan, B. & Hägglund, M. (2024). Mapping Patients' Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts. Studies in Health Technology and Informatics, 310, 114-118
Open this publication in new window or tab >>Mapping Patients' Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts
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2024 (English)In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 310, p. 114-118Article in journal (Refereed) Published
Abstract [en]

While research on the effects of patient access to health records is increasing, a basic understanding of the spread of patient-accessible electronic health records worldwide is lacking. In this survey of healthcare experts with professional and personal experience from 29 countries, we explored the state of patient online record access (ORA). We asked participants whether ORA exists in their country and which information is available through it. Experts in all polled countries reported having some national access to health records, with 6 (21%) countries providing exclusively paper-based records and 23 (79%) countries having ORA. Overview of test/lab results and prescription/medication lists were the most commonly available information. Free-text clinical notes were accessible in less than half of the surveyed countries (12, 41%). We will continue to map the state of patient ORA, focusing on traditionally underrepresented countries.

Place, publisher, year, edition, pages
IOS Press, 2024
Keywords
EHR, ORA, PAEHR, Patient accessible electronic health records, electronic health record, online record access, patient portal
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:oru:diva-111045 (URN)10.3233/SHTI230938 (DOI)38269776 (PubMedID)
Available from: 2024-01-31 Created: 2024-01-31 Last updated: 2024-01-31Bibliographically approved
Muli, I., Scandurra, I. & Hägglund, M. (2024). Primary Healthcare Professionals' Improvement Suggestions for the Patient Accessible Health Record. Studies in Health Technology and Informatics, 310, 489-493
Open this publication in new window or tab >>Primary Healthcare Professionals' Improvement Suggestions for the Patient Accessible Health Record
2024 (English)In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 310, p. 489-493Article in journal (Refereed) Published
Abstract [en]

Patients' online record access is a worldwide phenomenon, where Sweden is one of the pioneers in actual countrywide implementation. Healthcare professionals (HCPs) have previously raised usability issues with e-health systems and proposed several solutions, yet no studies have explored PAEHRs from this perspective. The aim of this study was to describe primary HCPs' suggestions on how the Swedish online record could be improved. They (n=14) were asked what they would like to improve with the system to increase usability and usefulness for patients or for themselves. Suggestions covered expanding what patients could view, simplification of the service for both the patients and themselves, adding feedback functions, and limiting access to only signed records.

Place, publisher, year, edition, pages
IOS Press, 2024
Keywords
Patient accessible electronic health records, primary care, usability
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:oru:diva-111046 (URN)10.3233/SHTI231013 (DOI)38269857 (PubMedID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2016-00623AFA Insurance, 190210
Available from: 2024-01-31 Created: 2024-01-31 Last updated: 2024-01-31Bibliographically approved
Hagström, J., Åhlfeldt, R.-M., Blease, C., Cajander, Å., Rexhepi, H., Moll, J., . . . Hägglund, M. (2024). Security and Privacy of Online Record Access: A Survey of Adolescents' Views and Experiences in Sweden. Journal of Adolescent Health
Open this publication in new window or tab >>Security and Privacy of Online Record Access: A Survey of Adolescents' Views and Experiences in Sweden
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2024 (English)In: Journal of Adolescent Health, ISSN 1054-139X, E-ISSN 1879-1972Article in journal (Refereed) Epub ahead of print
Abstract [en]

PURPOSE: Ensuring security of online health records and patients' perceptions of security are concerns in adolescent healthcare. Little is known about adolescents' perceptions about healthcare's ability to protect online health records. This article explores adolescents' perspectives on security and privacy of their online health records, potential differences based on gender and health, attitudes to sharing information, and perceptions of what constitutes sensitive information.

METHODS: This study included a subset of items from a national online patient survey conducted in Sweden (January-February 2022), focusing on respondents aged 15-19 years. Gender and health status differences were calculated using the Kruskal-Wallis test.

RESULTS: Of 218 adolescent respondents (77.1% female), a minority had security and privacy concerns. A notable proportion (41.3%) wished to control who could see their records, and those who reported better perceived health were more likely to want to manage access to their electronic health record (H = 13.569, p = .009). Most had not experienced unauthorized access to their records (75.2%) and had never shared health information on other online applications (85.8%). More than half (56.0%) perceived some information as sensitive, where mental health was the most common (76.0%). Most felt that reading their notes improved their trust for their healthcare professional (65.6%) and supported better communication with healthcare professionals (66.5%).

DISCUSSION: In this national survey, adolescents generally reported few concerns about patient portals. Findings emphasize the need for security and privacy protection and to empower adolescents with greater control over access to their health information housed in electronic health record systems.

Place, publisher, year, edition, pages
Elsevier, 2024
Keywords
Adolescent health, Adolescents, Electronic health record (EHR), National survey, Patient portal, Security, Privacy, Patient accessible electronic health record (PAEHR), Usability, eHealth
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:oru:diva-111658 (URN)10.1016/j.jadohealth.2023.12.027 (DOI)38349307 (PubMedID)
Funder
NordForsk, #10047Forte, Swedish Research Council for Health, Working Life and Welfare, #2020-01229
Available from: 2024-02-21 Created: 2024-02-21 Last updated: 2024-02-21Bibliographically approved
Hagström, J., Blease, C., Kharko, A., Scandurra, I. & Hägglund, M. (2023). Adolescents Identifying Errors and Omissions in Their Electronic Health Records: A National Survey. Studies in Health Technology and Informatics, 302, 242-246
Open this publication in new window or tab >>Adolescents Identifying Errors and Omissions in Their Electronic Health Records: A National Survey
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2023 (English)In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 302, p. 242-246Article in journal (Refereed) Published
Abstract [en]

Patient accessible electronic health records (PAEHRs) have been proposed as a means to improve patient safety and documentation quality, as patients become an additional source to detect mistakes in the records. In pediatric care, healthcare professionals (HCP) have noted a benefit of parent proxy users correcting errors in their child's records. However, the potential of adolescents has so far been overlooked, despite reports of reading records to ensure accuracy. The present study examines errors and omissions identified by adolescents, and whether patients reported following up with HCPs. Survey data was collected during three weeks in January and February 2022 via the Swedish national PAEHR. Of 218 adolescent respondents, 60 reported having found an error (27.5%) and 44 (20.2%) had found missing information. Most adolescents did not take any action upon identifying an error or an omission (64.0%). Omissions were more often perceived as serious than errors. These findings call for development of policy and PAEHR design that facilitates reports of errors and omissions for adolescents, which could both improve trust and support the individual's transition into an involved and engaged adult patient.

Place, publisher, year, edition, pages
IOS Press, 2023
Keywords
Adolescents, Electronic health records, Errors, National survey, Patient-accessible electronic health records
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:oru:diva-105984 (URN)10.3233/SHTI230111 (DOI)001071432900288 ()37203655 (PubMedID)2-s2.0-85159765091 (Scopus ID)
Funder
NordForsk, 100477
Available from: 2023-05-22 Created: 2023-05-22 Last updated: 2023-10-31Bibliographically approved
Bärkås, A., Kharko, A., Blease, C., Cajander, Å., Johansen Fagerlund, A., Huvila, I., . . . Hägglund, M. (2023). Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden. Journal of Medical Internet Research, 25, Article ID e47841.
Open this publication in new window or tab >>Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden
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2023 (English)In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 25, article id e47841Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Previous research reports that patients with mental health conditions experience benefits, for example, increased empowerment and validation, from reading their patient-accessible electronic health records (PAEHRs). In mental health care (MHC), PAEHRs remain controversial, as health care professionals are concerned that patients may feel worried or offended by the content of the notes. Moreover, existing research has focused on specific mental health diagnoses, excluding the larger PAEHR userbase with experience in MHC.

OBJECTIVE: The objective of this study is to establish if and how the experiences of patients with and those without MHC differ in using their PAEHRs by (1) comparing patient characteristics and differences in using the national patient portal between the 2 groups and (2) establishing group differences in the prevalence of negative experiences, for example, rates of errors, omissions, and offenses between the 2 groups.

METHODS: Our analysis was performed on data from an online patient survey distributed through the Swedish national patient portal as part of our international research project, NORDeHEALTH. The respondents were patient users of the national patient portal 1177, aged 15 years or older, and categorized either as those with MHC experience or with any other health care experience (nonmental health care [non-MHC]). Patient characteristics such as gender, age, education, employment, and health status were gathered. Portal use characteristics included frequency of access, encouragement to read the record, and instances of positive and negative experiences. Negative experiences were further explored through rates of error, omission, and offense. The data were summarized through descriptive statistics. Group differences were analyzed through Pearson chi-square.

RESULTS: Of the total sample (N=12,334), MHC respondents (n=3131) experienced errors (1586/3131, 50.65%, and non-MHC 3311/9203, 35.98%), omissions (1089/3131, 34.78%, and non-MHC 2427/9203, 26.37%) and offenses (1183/3131, 37.78%, and non-MHC 1616/9203, 17.56%) in the electronic health record at a higher rate than non-MHC respondents (n=9203). Respondents reported that the identified error (MHC 795/3131, 50.13%, and non-MHC 1366/9203, 41.26%) and omission (MHC 622/3131, 57.12%, and non-MHC 1329/9203, 54.76%) were "very important," but most did nothing to correct them (MHC 792/3131, 41.29%, and non-MHC 1838/9203, 42.17%). Most of the respondents identified as women in both groups.

CONCLUSIONS: About 1 in 2 MHC patients identified an error in the record, and about 1 in 3 identified an omission, both at a much higher rate than in the non-MHC group. Patients with MHC also felt offended by the content of the notes more commonly (1 in 3 vs 1 in 6). These findings validate some of the worries expressed by health care professionals about providing patients with MHC with PAEHRs and highlight challenges with the documentation quality in the records.

Place, publisher, year, edition, pages
JMIR Publications, 2023
Keywords
EHR, ORA, PAEHR, electronic health records, mental health, mental health care, national survey, online records access, open notes, patient-accessible electronic health record, patients, user experiences
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:oru:diva-109583 (URN)10.2196/47841 (DOI)001104378500001 ()37921861 (PubMedID)2-s2.0-85176200077 (Scopus ID)
Funder
NordForsk, 100477Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-01229
Available from: 2023-11-06 Created: 2023-11-06 Last updated: 2024-02-20Bibliographically approved
Andersson, S., Scandurra, I., Nyström, U., Varemo, M. & Hellstrand Tang, U. (2023). Experiences of a Novel Structured Foot Examination Form for Patients With Diabetes From the Perspective of Health Care Professionals: Qualitative Study. JMIR nursing, 6, Article ID e45501.
Open this publication in new window or tab >>Experiences of a Novel Structured Foot Examination Form for Patients With Diabetes From the Perspective of Health Care Professionals: Qualitative Study
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2023 (English)In: JMIR nursing, E-ISSN 2562-7600, Vol. 6, article id e45501Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Diabetes is a growing threat to public health, and secondary diseases like foot complications are common. Foot ulcers affect the individual's quality of life and are a great cost to society. Regular foot examinations prevent foot ulcers and are a recommended approach both in Sweden and worldwide. Despite existing guidelines, there are differences in the execution of the foot examination, which results in care inequality. A structured foot examination form based on current guidelines was developed in this study as the first step toward digitalized support in the daily routine, and was validated by diabetes health care professionals.

OBJECTIVE: The study aimed to validate a structured foot examination form by assessing health care professionals' experiences of working with it "foot side" when examining patients with diabetes.

METHODS: Semistructured interviews were held in a focus group and individually with 8 informants from different diabetes professions, who were interviewed regarding their experiences of working with the form in clinical practice. The users' data were analyzed inductively using qualitative content analysis. The study is part of a larger project entitled "Optimised care of persons with diabetes and foot complications," with Västra Götaland Region as the responsible health care authority, where the results will be further developed.

RESULTS: Experiences of working with the form were that it simplified the foot examination by giving it an overview and a clear structure. Using the form made differences in work routines between individuals apparent. It was believed that implementing the form routinely would contribute to a more uniform execution. When patients had foot ulcers, the risk categories (established in guidelines) were perceived as contradictory. For example, there was uncertainty about the definition of chronic ulcers and callosities. The expectations were that the future digital format would simplify documentation and elucidate the foot examination, as well as contribute to the accessibility of updated and relevant data for all individuals concerned.

CONCLUSIONS: The foot examination form works well as a support tool during preventive foot examination, creates a basis for decision-making, and could contribute to a uniform and safer foot examination with more care equality in agreement with current guidelines.

TRIAL REGISTRATION: ClinicalTrials.gov NCT05692778; https://clinicaltrials.gov/ct2/show/NCT05692778.

Place, publisher, year, edition, pages
JMIR Publications, 2023
Keywords
Diabetes, foot ulcer, participatory design, prevention, primary health care, qualitative research, structured foot examination, user experiences, validation
National Category
Endocrinology and Diabetes
Identifiers
urn:nbn:se:oru:diva-107499 (URN)10.2196/45501 (DOI)37463012 (PubMedID)2-s2.0-85171345278 (Scopus ID)
Available from: 2023-08-10 Created: 2023-08-10 Last updated: 2023-12-08Bibliographically approved
Hellstrand Tang, U., Scandurra, I., Sundberg, L., Annersten Gershater, M. & Zügner, R. (2023). Patients' Expectations of Evidence-Based Service at the Pharmacy Regarding Information on Self-Care of the Feet for Persons with Diabetes at Risk of Developing Foot Ulcers - A Cross-Sectional Observational Study in Sweden. Patient Preference and Adherence, 17, 3557-3576
Open this publication in new window or tab >>Patients' Expectations of Evidence-Based Service at the Pharmacy Regarding Information on Self-Care of the Feet for Persons with Diabetes at Risk of Developing Foot Ulcers - A Cross-Sectional Observational Study in Sweden
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2023 (English)In: Patient Preference and Adherence, E-ISSN 1177-889X, Vol. 17, p. 3557-3576Article in journal (Refereed) Published
Abstract [en]

PURPOSE: Self-care of the feet is one of the cornerstones in the prevention of diabetic foot ulcers (DFU). Often, individuals with diabetes seek help at the pharmacy, but it is still unclear whether the service meets their expectations and needs. The aims were to explore patients' expectations of support from the pharmacy regarding self-care of their feet and explore how patients with diabetes felt that they managed the self-care of their feet.

PATIENTS AND METHODS: The included participants (n = 17), aged 70 ± 9 years, answered surveys regarding their expectations of support from the pharmacy related to self-care of the feet and how they felt that they managed the self-care of their feet. By using software, MyFoot Diabetes, they assessed their risk of developing DFU (ranging from 1 = no risk to 4 = DFU). In addition, a healthcare professional assessed the risk grade.

RESULTS: Sixteen patients had not received any information from the pharmacy regarding how to take care of their feet. Several suggestions for ways the pharmacy could help patients with diabetes to take care of their feet were registered. They included having the necessary skills and competence, giving advice regarding self-care, giving information regarding the products they market and have for sale and giving advice on ointments/creams. The participants gave several examples of how they self-managed their feet: by wearing shoes indoors and outdoors, wearing socks and compression stockings as often as possible, being physically active, inspecting their feet, being aware of the fact that their feet have no problems, washing, moisturising their feet, cutting their nails and finally seeking help to prevent DFU.

CONCLUSION: The participants thought that they should receive competent information from the personnel at the pharmacy to improve the self-care of their feet, eg, being given information about which ointments/creams to use.

CLINICAL TRIAL: NCT05692778.

Place, publisher, year, edition, pages
Dove Medical Press, 2023
Keywords
Diabetes type 1, diabetes type 2, diabetic foot, prevention, self-care, self-management, self-monitoring
National Category
Endocrinology and Diabetes
Identifiers
urn:nbn:se:oru:diva-110614 (URN)10.2147/PPA.S435632 (DOI)001134286800001 ()38169667 (PubMedID)2-s2.0-85180854361 (Scopus ID)
Note

The study was supported by the Innovation Platform in Västra Götaland Region and the Diabetes Organisation in Gothenburg.

Available from: 2024-01-09 Created: 2024-01-09 Last updated: 2024-01-23Bibliographically approved
Simola, S., Hörhammer, I., Xu, Y., Bärkås, A., Fagerlund, A. J., Hagström, J., . . . Kujala, S. (2023). Patients' Experiences of a National Patient Portal and Its Usability: Cross-Sectional Survey Study. Journal of Medical Internet Research, 25, Article ID e45974.
Open this publication in new window or tab >>Patients' Experiences of a National Patient Portal and Its Usability: Cross-Sectional Survey Study
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2023 (English)In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 25, article id e45974Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Patient portals not only provide patients with access to electronic health records (EHRs) and other digital health services, such as prescription renewals, but they can also improve patients' self-management, engagement with health care professionals (HCPs), and care processes. However, these benefits depend on patients' willingness to use patient portals and, ultimately, their experiences with the usefulness and ease of use of the portals.

OBJECTIVE: This study aimed to investigate the perceived usability of a national patient portal and the relationship of patients' very positive and very negative experiences with perceived usability. The study was aimed to be the first step in developing an approach for benchmarking the usability of patient portals in different countries.

METHODS: Data were collected through a web-based survey of the My Kanta patient portal's logged-in patient users in Finland from January 24, 2022, to February 14, 2022. Respondents were asked to rate the usability of the patient portal, and the ratings were used to calculate approximations of the System Usability Scale (SUS) score. Open-ended questions asked the patients about their positive and negative experiences with the patient portal. The statistical analysis included multivariate regression, and the experience narratives were analyzed using inductive content analysis.

RESULTS: Of the 1,262,708 logged-in patient users, 4719 responded to the survey, giving a response rate of 0.37%. The patient portal's usability was rated as good, with a mean SUS score of 74.3 (SD 14.0). Reporting a very positive experience with the portal was positively associated with perceived usability (β=.51; P<.001), whereas reporting a very negative experience was negatively associated with perceived usability (β=-1.28; P<.001). These variables explained 23% of the variation in perceived usability. The information provided and a lack of information were the most common positive and negative experiences. Furthermore, specific functionalities, such as prescription renewal and the ease of using the patient portal, were often mentioned as very positive experiences. The patients also mentioned negative emotions, such as anger and frustration, as part of their very negative experiences.

CONCLUSIONS: The study offers empirical evidence about the significant role of individual experiences when patients are evaluating the usability of patient portals. The results suggest that positive and negative experiences provide relevant information that can be used for improving the patient portal's usability. Usability should be improved so that patients receive information efficiently, easily, and quickly. Respondents would also appreciate interactive features in the patient portal.

Place, publisher, year, edition, pages
JMIR Publications, 2023
Keywords
System Usability Scale, electronic health record, national survey, patient experiences, patient portal, patient-accessible electronic health records, perceived usability
National Category
Nursing
Identifiers
urn:nbn:se:oru:diva-106759 (URN)10.2196/45974 (DOI)001026704100001 ()37389909 (PubMedID)2-s2.0-85164233640 (Scopus ID)
Funder
Academy of Finland, 352501 352503NordForsk, 100477
Available from: 2023-07-03 Created: 2023-07-03 Last updated: 2024-01-17Bibliographically approved
Hägglund, M., Kharko, A., Hagström, J., Bärkås, A., Blease, C., Cajander, Å., . . . Johansen, M. A. (2023). The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia. Journal of Medical Internet Research, 25, Article ID e47573.
Open this publication in new window or tab >>The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia
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2023 (English)In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 25, article id e47573Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Although many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients' views and preferences. To address this gap, an international survey of patient users was conducted in the Nordic eHealth project, NORDeHEALTH.

OBJECTIVE: We aimed to investigate the sociodemographic characteristics and experiences of patients who accessed their electronic health records (EHRs) through national patient portals in Norway, Sweden, Finland, and Estonia.

METHODS: A cross-sectional web-based survey was distributed using the national online health portals. The target participants were patients who accessed the national patient portals at the start of 2022 and who were aged ≥15 years. The survey included a mixture of close-ended and free-text questions about participant sociodemographics, usability experience, experiences with health care and the EHR, reasons for reading health records online, experience with errors, omissions and offense, opinions about security and privacy, and the usefulness of portal functions. In this paper, we summarized the data on participant demographics, past experience with health care, and the patient portal through descriptive statistics. RESULTS: In total, 29,334 users completed the survey, of which 9503 (32.40%) were from Norway, 13,008 (44.35%) from Sweden, 4713 (16.07%) from Finland, and 2104 (7.17%) from Estonia. National samples were comparable according to reported gender, with about two-thirds identifying as women (19,904/29,302, 67.93%). Age distributions were similar across the countries, but Finland had older users while Estonia had younger users. The highest attained education and presence of health care education varied among the national samples. In all 4 countries, patients most commonly rated their health as "fair" (11,279/29,302, 38.48%). In Estonia, participants were more often inclined to rate their health positively, whereas Norway and Sweden had the highest proportion of negative health ratings. Across the whole sample, most patients received some care in the last 2 years (25,318/29,254, 86.55%). Mental health care was more common (6214/29,254, 21.24%) than oncological care (3664/29,254, 12.52%). Overall, most patients had accessed their health record "2 to 9 times" (11,546/29,306, 39.4%), with the most frequent users residing in Sweden, where about one-third of patients accessed it "more than 20 times" (4571/13,008, 35.14%).

CONCLUSIONS: This is the first large-scale international survey to compare patient users' sociodemographics and experiences with accessing their EHRs. Although the countries are in close geographic proximity and demonstrate similar advancements in giving their residents online records access, patient users in this survey differed. We will continue to investigate patients' experiences and opinions about national patient-accessible EHRs through focused analyses of the national and combined data sets from the NORDeHEALTH 2022 Patient Survey.

Place, publisher, year, edition, pages
JMIR Publications, 2023
Keywords
electronic health record, health data, national survey, online medical record, online records access, patient access, patient portal, patient-accessible electronic health record
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:oru:diva-109757 (URN)10.2196/47573 (DOI)001106906500004 ()37955963 (PubMedID)2-s2.0-85176787931 (Scopus ID)
Funder
NordForsk, 100477Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-01229
Note

This work was supported by NordForsk through funding to Nordic eHealth for Patients: Benchmarking and Developing for the Future, NORDeHEALTH (project #100477), the Swedish Research Council for Health, Working Life and Welfare (Forskningsrådet for hälsa, arbetsliv och välfärd [FORTE]) through the funding to äBeyond Implementation of eHealth (project #2020-01229), the Strategic Research Council at the Academy of Finland (project #352501 and #352503), and the Norwegian Centre for E-health Research. CB was supported by a Keane Scholar Award. 

Available from: 2023-11-20 Created: 2023-11-20 Last updated: 2024-01-17Bibliographically approved
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