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Ohlsson Nevo, E., Alkebro, I. & Ahlgren, J. (2019). Cancer patients' interest in participating in cancer rehabilitation. Acta Oncologica
Open this publication in new window or tab >>Cancer patients' interest in participating in cancer rehabilitation
2019 (English)In: Acta Oncologica, ISSN 0284-186X, E-ISSN 1651-226XArticle in journal (Refereed) Published
Abstract [en]

Introduction: Rehabilitation for cancer patients aims at preventing and reducing the physical, mental, social and existential consequences of a cancer disease and its treatment. The aim of this study is to describe the patients' self-perceived interest in participating in cancer rehabilitation (CR).

Material and methods: A total of 1179 cancer patients, diagnosed with 28 different cancer diagnoses, from November 2015 to October 2016, were identified via the national cancer quality registers. A questionnaire was developed for the purpose of this study, the Cancer Rehabilitation Interest. The questionnaire comprises 16 different rehabilitation activities. This study describes what activities the patients are interested to participate in.

Results: The response rate was 62% and the final sample comprised 728 patients. The rehabilitation activities wanted by the cancer patients were Psychoeducational support group together with others with the same cancer diagnosis, Open lectures on cancer, Individual weight training with a physiotherapist and Personal support from a social worker. Most interested in cancer rehabilitation were women, younger patients, university educated patients and those who had received their diagnosis >= 12 months prior. Patients with a mandatory educational level had the lowest interest in all suggested activities compared with those having medium or high education.

Conclusions: The interest of cancer rehabilitation of all approached patients in this study were 21%. Most interested were women, young patients, university educated and those who received their diagnosis >= 12 months earlier. About 30% of the participating cancer patients reported an interest of information and supportive groups, physical training and support from a hospital social worker. Patients with low level of education reported a low interest in CR. There are limitations in rehabilitation accessibility and that might affect a person's motivation to participate in this study.

Place, publisher, year, edition, pages
Taylor & Francis, 2019
National Category
Cancer and Oncology
Identifiers
urn:nbn:se:oru:diva-75736 (URN)10.1080/0284186X.2019.1633017 (DOI)000478125200001 ()31241428 (PubMedID)
Note

Funding Agency:

Research Committee of Orebro County Council  OLL-506801

Available from: 2019-08-13 Created: 2019-08-13 Last updated: 2019-08-13Bibliographically approved
Langegård, U., Ahlberg, K., Fransson, P., Johansson, B., Sjövall, K., Björk-Eriksson, T. & Ohlsson Nevo, E. (2019). Evaluation of quality of care in relation to health-related quality of life of patients diagnosed with brain tumor: a novel clinic for proton beam therapy. Supportive Care in Cancer, 27(7), 2679-2691
Open this publication in new window or tab >>Evaluation of quality of care in relation to health-related quality of life of patients diagnosed with brain tumor: a novel clinic for proton beam therapy
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2019 (English)In: Supportive Care in Cancer, ISSN 0941-4355, E-ISSN 1433-7339, Vol. 27, no 7, p. 2679-2691Article in journal (Refereed) Published
Abstract [en]

Purpose: Patients with brain tumors constitute a vulnerable group, and it is important that they receive the highest quality of care (QoC). The study aim was to describe the perceptions of QoC and its association with health-related quality of life in brain tumor patients undergoing proton beam therapy in a newly established clinic.

Method: Data were collected at the start of treatment and after 3 and 6weeks. Adult patients (18years old) with brain tumors (n=186) completed two self-administered questionnaires: a modified Quality from the Patients' Perspective, which measures perceived reality and subjective importance of care, and the EORTC QLQ-C30. Data were analyzed using parametric and non-parametric statistical tests.

Results: The perceived QoC was highest for treatment information and lowest for dietician and smoking information, whereas interaction with doctors and nurses was rated as the most important aspect of quality of care. Subjective importance ratings were significantly higher than perceived reality ratings for 60% of items. A better global health was moderately correlated with a higher perceived support for fatigue.

Conclusions: A need for quality improvement was identified for several aspects of patient care. Greater symptom distress during the treatment period led to greater perceived importance of symptom support. Ensuring QoC is complex and collaboration with other health care professionals is essential.

Relevance to clinical practice: The clinic could improve QoC regarding information about possible symptoms, adjust care according to patient perceptions of importance, and involve patients in care decisions.

Place, publisher, year, edition, pages
Springer, 2019
Keywords
Quality of care, Health-related quality of life, Proton beam therapy, Radiotherapy, Brain tumor
National Category
Cancer and Oncology
Identifiers
urn:nbn:se:oru:diva-74723 (URN)10.1007/s00520-018-4557-7 (DOI)000469516100039 ()30484013 (PubMedID)2-s2.0-85057307245 (Scopus ID)
Note

Funding Agency:

Cancer Research Foundation in Northern Sweden  CAN 2016/809  CAN2015/428

Available from: 2019-07-22 Created: 2019-07-22 Last updated: 2019-07-22Bibliographically approved
Ohlsson Nevo, E. & Karlsson, J. (2019). Impact of health-related stigma on psychosocial functioning in the general population: Construct validity and Swedish reference data for the Stigma-related Social Problems scale (SSP). Research in Nursing & Health, 42(1), 72-81
Open this publication in new window or tab >>Impact of health-related stigma on psychosocial functioning in the general population: Construct validity and Swedish reference data for the Stigma-related Social Problems scale (SSP)
2019 (English)In: Research in Nursing & Health, ISSN 0160-6891, E-ISSN 1098-240X, Vol. 42, no 1, p. 72-81Article in journal (Refereed) Published
Abstract [en]

Felt stigma is an internalized sense of shame about having an unwanted condition, along with fear of discrimination. The Stigma-related Social Problems (SSP) scale was constructed to measure the impact of health-related stigma on psychosocial functioning in people with different diseases and disorders. The performance of the SSP scale was tested in 3,422 subjects from the general population (Mid-Swed Health Survey) and in subgroups according to gender, age, occupation, and education. The homogeneity and construct validity of the Distress and Avoidance scales were confirmed by exploratory factor analysis and the two factors were accurately reproduced across gender and age subgroups. The internal consistency reliability was high for both the Distress and Avoidance scales. Reliability coefficients were above the 0.90 standard for the Distress scale in all subgroups and for the Avoidance scale in most subgroups. The SSP scale is an instrument with sound psychometric properties that can be used to identify psychosocial disturbances.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
Construct validity, instrument, psychosocial, stigma, survey
National Category
Psychiatry
Identifiers
urn:nbn:se:oru:diva-70405 (URN)10.1002/nur.21924 (DOI)000458334500008 ()30499114 (PubMedID)2-s2.0-85057775616 (Scopus ID)
Note

Funding Agency:

Research Committee of Orebro County Council  OLL-506801

Available from: 2018-12-03 Created: 2018-12-03 Last updated: 2019-06-19Bibliographically approved
Langegard, U., Johansson, B., Björk-Eriksson, T., Fransson, P., Ohlsson Nevo, E., Sjövall, K. & Ahlberg, K. (2019). Symptom Clusters in Patients With Brain Tumors Undergoing Proton Beam Therapy. Oncology Nursing Forum, 46(3), 349-363
Open this publication in new window or tab >>Symptom Clusters in Patients With Brain Tumors Undergoing Proton Beam Therapy
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2019 (English)In: Oncology Nursing Forum, ISSN 0190-535X, E-ISSN 1538-0688, Vol. 46, no 3, p. 349-363Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: To explore symptom clusters during proton beam therapy in patients with primary brain tumors and investigate associations among symptom clusters, demographic variables, and comorbidity in this patient population.

SAMPLE & SETTING: Data were collected from 187 adult patients with primary brain tumors during their treatment periods in the Skandion Clinic in Uppsala, Sweden. Symptoms were assessed with the Radiotherapy-Related Symptoms Assessment Scale, and comorbidity was evaluated with the Self-Administered Comorbidity Questionnaire.

METHODS & VARIABLES: The study used a quantitative and longitudinal design. Exploratory factor analysis was used to determine the underlying structure of symptom clusters.

RESULTS: Three clusters were identified: mood, reduced appetite, and reduced energy. The mood cluster had the highest factor loadings (0.71-0.86). In addition, demographic and comorbidity characteristics were associated with symptom clusters in this group of patients.

IMPLICATIONS FOR NURSING: Building knowledge about how these symptoms interact and are clustered will support healthcare professionals to more efficiently relieve symptom clusters during proton beam therapy.

Place, publisher, year, edition, pages
Oncology Nursing Society, 2019
Keywords
brain tumor, radiation therapy, proton beam therapy, symptom clusters
National Category
Cancer and Oncology Nursing
Identifiers
urn:nbn:se:oru:diva-74143 (URN)10.1188/19.ONF.349-363 (DOI)000465373100011 ()31007260 (PubMedID)
Funder
Swedish Cancer Society, CAN2015/428 CAN2016/809
Available from: 2019-05-09 Created: 2019-05-09 Last updated: 2019-05-09Bibliographically approved
Höglund, E., Schröder, A., Möller, M., Andersson-Hagiwara, M. & Ohlsson Nevo, E. (2019). The ambulance nurse experiences of non-conveying patients. Journal of Clinical Nursing, 28(1-2), 235-244
Open this publication in new window or tab >>The ambulance nurse experiences of non-conveying patients
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2019 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 28, no 1-2, p. 235-244Article in journal (Refereed) Published
Abstract [en]

AIMS AND OBJECTIVES: To explore ambulance nurses' (ANs) experiences of non-conveying patients to alternate levels of care.

BACKGROUND: Increases in ambulance utilisation and in the number of patients seeking ambulance care who do not require medical supervision or treatment during transport have led to increased nonconveyance (NC) and referral to other levels of care.

DESIGN: A qualitative interview study was conducted using an inductive research approach.

METHODS: The study was conducted in a region in the middle of Sweden during 2016-2017. Twenty nurses were recruited from the ambulance departments in the region. A conventional content analysis was used to analyse the interviews. The study followed the COREQ checklist.

RESULTS: The ANs experienced NC as a complex and difficult task that carried a large amount of responsibility. They wanted to be professional, spend time with the patient and find the best solution for him or her. These needs conflicted with the ANs' desire to be available for assignments with a higher priority. The ANs could feel frustrated when they perceived that ambulance resources were being misused and when it was difficult to follow the NC guidelines.

CONCLUSION: If ANs are expected to nonconvey patients seeking ambulance care, they need a formal mandate, knowledge and access to primary health care.

RELEVANCE TO CLINICAL PRACTICE: This study provides new knowledge regarding the work situation of ANs in relation to NC. These findings can guide future research and can be used by policymakers and ambulance organisations to highlight areas that need to evolve to improve patient care.

Place, publisher, year, edition, pages
Blackwell Science Ltd., 2019
Keywords
ambulance nursing, care pathways, clinical decision-making, content analysis, experiences, health services research, nurse, qualitative study, refusal of care, self-care
National Category
Nursing
Identifiers
urn:nbn:se:oru:diva-71216 (URN)10.1111/jocn.14626 (DOI)000453228000022 ()30016570 (PubMedID)2-s2.0-85052619602 (Scopus ID)
Note

Funding Agency:

Research Committee in the county council of Örebro OLL-590171  OLL-670821  OLL-767261

Available from: 2019-01-08 Created: 2019-01-08 Last updated: 2019-01-08Bibliographically approved
Ohlsson Nevo, E., Alkebro, I. & Ahlgren, J. (2018). Cancer Patients Interest in Participating in Cancer Rehabilitation: A Postal Survey. In: : . Paper presented at MASCC/ISOO: Annual Meeting on Supportive Care in Cancer, Vienna, Austria, 28-30 June, 2018.
Open this publication in new window or tab >>Cancer Patients Interest in Participating in Cancer Rehabilitation: A Postal Survey
2018 (English)Conference paper, Oral presentation with published abstract (Refereed)
National Category
Cancer and Oncology
Identifiers
urn:nbn:se:oru:diva-68637 (URN)
Conference
MASCC/ISOO: Annual Meeting on Supportive Care in Cancer, Vienna, Austria, 28-30 June, 2018
Available from: 2018-08-30 Created: 2018-08-30 Last updated: 2018-09-07Bibliographically approved
Ohlsson Nevo, E. & Karlsson, J. (2018). Impact of health-related stigma on psychosocial functioning in the general population: construct validity of the Stigma-related Social Problems scale. In: : . Paper presented at Nordic Conference in Nursing Research: Methods and Networks for the future, Oslo, Norway, 13-15 June, 2018.
Open this publication in new window or tab >>Impact of health-related stigma on psychosocial functioning in the general population: construct validity of the Stigma-related Social Problems scale
2018 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Background: Felt stigma is an internalized sense of shame about having an unwanted condition along with fear of discrimination due to imputed inferiority or unacceptability. Various illnesses and symptoms of disease are associated with health-related stigma and individuals may experience stigma that strongly affects their quality of life. The Stigmarelated Social Problems scale (SSP) was developed for measuring the impact of health-related stigma on social functioning in people with different diseases and disorders.

Objective: The aim of the study was to evaluate the validity of SSP in the general Swedish population.

Method: In 2015, SSP was sent to a random population sample (n=8140). Tests of the internal consistency reliability of scale scores (Cronbach’s alpha), the unidimensionality and homogeneity of scales (factor analysis), item-scale convergent validity, ceiling and floor effects, and known group analysis were conducted.

Results: The response rate was 42%. Reliability coefficients were high (< 0.93) for both scales. Factor analyses confirmed the unidimensionality. Item-scale correlations for both scales indicated satisfactory item-scale convergent validity (r ≥ 0.40). The proportion of subjects scoring at the lowest possible score level (floor effect) was 25% for the Distress scale and 28% for the Avoidance scale, while ceiling effects were marginal (<1%). The proportion of missing items was generally low, ranging from 0.8-1.5%.

National Category
Psychiatry
Identifiers
urn:nbn:se:oru:diva-68639 (URN)
Conference
Nordic Conference in Nursing Research: Methods and Networks for the future, Oslo, Norway, 13-15 June, 2018
Available from: 2018-08-30 Created: 2018-08-30 Last updated: 2018-08-30Bibliographically approved
Ohlsson Nevo, E., Andersson, G. & Nilsing Strid, E. (2018). Nurses’ perceptions of hospitalized patients’ need for progressed physical activity: a focus group study. In: : . Paper presented at Nordic Conference in Nursing Research: Methods and Networks for the future, Oslo, Norway, 13-15 June, 2018.
Open this publication in new window or tab >>Nurses’ perceptions of hospitalized patients’ need for progressed physical activity: a focus group study
2018 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Background: Patients enrolled in wards at hospitals spend time in bed even if rest is not medically indicated. The inactivity in the hospital reduces muscle strength and can create a need for assistants that did not exist before or justified by the treated condition. Early and progressive mobilization is a key factor to maintain physical functioning during the care period in hospital. Despite the knowledge of the importance of physical activity, patients are not sufficiently mobilized. Reasons why patients are not mobilized are related to organizational factors as well as patient and nurse personal characteristics. With an understanding of nurses’ experiences, interventions to enhance patients’ physical activity can be develop aiming at reducing the risk of physical deterioration due to inactivity.

Objective: The aim of the study was to describe how nurses perceive hospitalized patients’ needs for progressed physical activity during their stay at the wards.

Method: A total of seven focus group discussions were conducted in seven wards at three different hospitals in Sweden. A total of 16 nurses and 14 nurse assistants participated. The analysis was conducted in two steps; First an interaction analysis of the communication and respond pattern in the focus groups and thereafter a content analysis of the transcribed text.

Results: The analysis is in progress and the results will be presented at the conference.

National Category
Nursing
Identifiers
urn:nbn:se:oru:diva-68638 (URN)
Conference
Nordic Conference in Nursing Research: Methods and Networks for the future, Oslo, Norway, 13-15 June, 2018
Available from: 2018-08-30 Created: 2018-08-30 Last updated: 2018-08-30Bibliographically approved
Ohlsson Nevo, E., Andershed, B. & Nilsson, U. (2017). Psycho-educational intervention on mood in patients suffering from colorectal and anal cancer: A randomized controlled trial. Nordic journal of nursing research, 37(3), 135-142
Open this publication in new window or tab >>Psycho-educational intervention on mood in patients suffering from colorectal and anal cancer: A randomized controlled trial
2017 (English)In: Nordic journal of nursing research, ISSN 2057-1585, E-ISSN 2057-1593, Vol. 37, no 3, p. 135-142Article in journal (Refereed) Published
Abstract [en]

Psycho-educational interventions can moderate the negative impact of cancer on patients’ mental wellbeing, although studies of the effect on colorectal cancer (CRC) patients are scarce. Hence, the primary aim of this study was to test whether a nurse-led psycho-educational programme (PEP) could affect the emotional wellbeing of persons being treated for CRC and anal cancer. A secondary aim was to test whether there were any differences in emotional wellbeing in the patients before undergoing a PEP compared to a subset of the Swedish population. A randomized controlled trial was used. In total, 86 patients were randomized either to a PEP comprising seven lectures followed by discussions and reflections with peers or to standard treatment. Mental wellbeing was measured with the Mood Adjective Check List. The PEP significantly (p<0.04) increased the patients’ overall mood one month after the end of the intervention. The PEP seemed to have a short-term effect on patients’ overall mood. Other outcomes such as self-efficacy could be useful measures when evaluating PEP.

Place, publisher, year, edition, pages
London, United Kingdom: Sage Publications, 2017
National Category
Nursing
Research subject
Caring Sciences w. Medical Focus
Identifiers
urn:nbn:se:oru:diva-53875 (URN)10.1177/2057158516679790 (DOI)
Available from: 2016-12-12 Created: 2016-12-12 Last updated: 2018-01-09Bibliographically approved
Ohlsson Nevö, E., Karlsson, J. & Nilsson, U. (2016). Effects of a psycho-educational programme on health-related quality of life in patients treated for colorectal and anal cancer: a feasibility trial. European Journal of Oncology Nursing, 21, 181-188
Open this publication in new window or tab >>Effects of a psycho-educational programme on health-related quality of life in patients treated for colorectal and anal cancer: a feasibility trial
2016 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 21, p. 181-188Article in journal (Refereed) Published
Abstract [en]

Purpose: Colorectal cancer (CRC) may have a negative impact on a person's quality of life. Psycho-educational interventions for patients with CRC are rarely studied. The purpose of this feasibility trial was to evaluate the effect of a psycho-educational programme (PEP) on the health-related quality of life (HRQL) of patients treated for CRC and anal cancer.

Methods: Patients with CRC and anal cancer were randomly assigned to a PEP (n = 47) or standard treatment (n = 39). The PEP included informative lectures, discussion, and reflection. HRQL was evaluated using the SF-36 at baseline and 1, 6, and 12 months after the end of the PEP.

Results: Patients in the PEP group had significantly better Mental Health scores after 1 month and significantly better Bodily Pain scores after 6 months compared with patients who received standard care.

Conclusion: The results of this study indicate that a PEP can have a short-term effect on the mental health and bodily pain of patients treated for CRC and anal cancer when comparing with a control group. The article discusses the methodological difficulties of evaluating an intervention such as this PEP in a clinical setting.

Place, publisher, year, edition, pages
Elsevier, 2016
Keywords
Psychoeducational, colorectal cancer, patients, psychosocial, health-related quality of life, SF-36, randomized controlled study, pain, mental health, physical health, cancer rehabilitation
National Category
Nursing Cancer and Oncology
Research subject
Caring sciences; Oncology
Identifiers
urn:nbn:se:oru:diva-47028 (URN)10.1016/j.ejon.2015.10.002 (DOI)000373412200025 ()26643400 (PubMedID)2-s2.0-84959491436 (Scopus ID)
Note

Funding Agency:

Research Committee of Orebro County Council

Available from: 2015-12-09 Created: 2015-12-09 Last updated: 2018-07-09Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-4475-0650

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