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Forsberg, A., Widén-Holmqvist, L. & Ahlström, G. (2015). Balancing everyday life two years after falling ill with Guillain-Barre syndrome: a qualitative study. Clinical Rehabilitation, 29(6), 601-610
Open this publication in new window or tab >>Balancing everyday life two years after falling ill with Guillain-Barre syndrome: a qualitative study
2015 (English)In: Clinical Rehabilitation, ISSN 0269-2155, E-ISSN 1477-0873, Vol. 29, no 6, p. 601-610Article in journal (Refereed) Published
Abstract [en]

Purpose: The aim was to describe experiences of disability in everyday life and managing the recovery process two years after falling ill with Guillain-Barré syndrome.

Design: Qualitative interview study.

Methods: Interviews were conducted with 35 persons (22 male, mean age 50 years) two years after the onset of Guillain-Barré syndrome. The interviews were transcribed verbatim and analysed using content analysis.

Results: The analysis revealed four categories and an overall theme: ‘Striving for balance in everyday life’. The participants described persistent lived body restrictions that affected their arms, legs, and face. Bodily symptoms and loss of energy limited or restricted many everyday activities. In connection with healthcare, both satisfaction and feeling vulnerable in a critical situation were described. Experiences of the recovery process varied. The participants described acceptance and reappraisal of a new life situation despite their limitations, and having gained the knowledge that life can change suddenly. However, they also expressed disappointment following an overly positive prognosis in the early stages, and over a continuous wait for recovery. For some participants life had returned to as before.

Conclusion: The participants experienced limitations in everyday life and decreased functioning in several parts of the body. The recovery process may still be ongoing two years after onset. Rehabilitation intervention with an extended focus on supporting individualized coping processes could facilitate ways to live with persistent disability.

Place, publisher, year, edition, pages
London, United Kingdom: Sage Publications, 2015
Keywords
Guillain-Barré Syndrome, qualitative studies, recovery process, disability
National Category
Occupational Therapy Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-42583 (URN)10.1177/0269215514549564 (DOI)000356241800009 ()25200880 (PubMedID)2-s2.0-84930828783 (Scopus ID)
Note

Funding Agencies:

Swedish Association of Persons with Neurological Disabilities

Board of Research for Health and Caring Sciences, Karolinska Institutet, Sweden

Available from: 2015-02-11 Created: 2015-02-11 Last updated: 2018-06-26Bibliographically approved
Schröder, A., Ahlström, G., Wilde Larsson, B. & Lundqvist, L.-O. (2011). Psychometric properties of the Quality in Psychiatric Care: Out-Patient (QPC-OP) instrument. International Journal of Mental Health Nursing, 20(6), 445-453
Open this publication in new window or tab >>Psychometric properties of the Quality in Psychiatric Care: Out-Patient (QPC-OP) instrument
2011 (English)In: International Journal of Mental Health Nursing, ISSN 1445-8330, E-ISSN 1447-0349, Vol. 20, no 6, p. 445-453Article in journal (Refereed) Published
Abstract [en]

The purpose of the present study was to test the psychometric properties and dimensionality of the Quality in Psychiatric Care – Outpatient (QPC–OP) instrument, in order to determine whether the model of QPC that is applicable to the inpatient clinic is also applicable to the outpatient clinic, and to briefly describe the patients' perceptions of quality of psychiatric outpatient care. A sample of 1340 outpatients from 15 general adult psychiatric clinics in Sweden participated in the study. A confirmatory factor analysis revealed that the QPC–OP consists of eight dimensions, and has a factor structure largely corresponding to that of the QCP – Inpatient instrument. The internal consistency of the factors was generally acceptable, except in the case of two, where there were not enough items. Thus, the QPC–OP shows adequate psychometric properties. The patients' ratings of quality of care were generally high; the highest rating was for ‘encounter’ and the lowest for ‘discharge’. The quality of discharge was rated as the lowest among the eight dimensions in 14 of the participating outpatient clinics. Thus, this dimension would seem to indicate an important area for improvement. The QPC–OP includes important aspects of patients' assessments of quality of care, and offers a simple and inexpensive way to evaluate psychiatric outpatient care.

Place, publisher, year, edition, pages
John Wiley & Sons, 2011
Keywords
instrument, outpatient care, psychiatric care, psychometric properties, quality of care
National Category
Psychiatry
Research subject
Psychiatry
Identifiers
urn:nbn:se:oru:diva-40426 (URN)10.1111/j.1447-0349.2011.00741.x (DOI)000297026900009 ()21401846 (PubMedID)
Available from: 2015-01-08 Created: 2015-01-08 Last updated: 2018-05-06Bibliographically approved
Schröder, A., Wilde Larsson, B., Ahlström, G. & Lundqvist, L.-O. (2010). Psychometric properties of the instrument quality in psychiatric care and descriptions of quality of care among in-patients. International Journal of Health Care Quality Assurance, 23(6), 554-570
Open this publication in new window or tab >>Psychometric properties of the instrument quality in psychiatric care and descriptions of quality of care among in-patients
2010 (English)In: International Journal of Health Care Quality Assurance, ISSN 0952-6862, Vol. 23, no 6, p. 554-570Article in journal (Refereed) Published
Abstract [en]

Purpose – The purpose of this paper is to test the psychometric properties and dimensionality of a new instrument, quality in psychiatric care (QPC), and to describe and compare quality of care among in-patients as measured by this instrument.

Design/methodology/approach – The instrument quality in psychiatric care measures patients' experiences regarding quality of care. The instrument is based on a definition of quality of care from the patients' perspective. A sample of 265 in-patients at eight general psychiatric wards in Sweden was assessed.

Findings – Exploratory factor analysis revealed that the original five-dimensional 69-item QPC was better with six dimensions and reduced to 30 items, hereinafter denoted quality in psychiatric care-in-patients (QPC-IP) with retained internal consistency. The patients' ratings of quality of care were generally high; the highest rating was for quality of encounter and the lowest for participation.

Research limitations/implications – Analysis of the dropouts was not possible because of incomplete registrations at the wards.

Practical implications – QPC-IP is a simple, inexpensive and quick way to evaluate quality of care and thus contributes to health care improvement in the field of psychiatry.

Originality/value – The new 30 items instrument, QPC-IP includes important aspects of patients' perceptions of quality of care. The QPC-IP is psychometrically adequate and thus recommended for evaluating patients' experiences of the quality of psychiatric care.

National Category
Psychology
Research subject
Psychology
Identifiers
urn:nbn:se:oru:diva-13727 (URN)10.1108/09526861011060924 (DOI)
Available from: 2011-01-13 Created: 2011-01-13 Last updated: 2019-03-06Bibliographically approved
Schröder, A., Ahlström, G., Wilde Larsson, B. & Lundqvist, L.-O. (2010). Quality in psychiatric care: from theoretical concepts to a new measuring instrument based on patient's own experiences. In: : . Paper presented at 10th Annual Conference of the International Association of Forensic Mental Health Services.
Open this publication in new window or tab >>Quality in psychiatric care: from theoretical concepts to a new measuring instrument based on patient's own experiences
2010 (English)Conference paper, Oral presentation only (Refereed)
National Category
Psychology
Research subject
Psychology
Identifiers
urn:nbn:se:oru:diva-14265 (URN)
Conference
10th Annual Conference of the International Association of Forensic Mental Health Services
Available from: 2011-01-25 Created: 2011-01-25 Last updated: 2019-03-06Bibliographically approved
Liedström, E., Isaksson, A.-K. & Ahlström, G. (2010). Quality of life in spite of an unpredictable future: the next of kin of patients with multiple sclerosis. Journal of Neuroscience Nursing, 42(6), 331-341
Open this publication in new window or tab >>Quality of life in spite of an unpredictable future: the next of kin of patients with multiple sclerosis
2010 (English)In: Journal of Neuroscience Nursing, ISSN 0888-0395, E-ISSN 1945-2810, Vol. 42, no 6, p. 331-341Article in journal (Refereed) Published
Abstract [en]

The aim of the study was to describe the quality of life of the next of kin of patients diagnosed as having multiple sclerosis (MS). Forty-four next of kin were interviewed and thereafter answered the Subjective Quality of Life questionnaire. The next of kin's quality of life emerged as good in terms of both external conditions and interpersonal relationships in both the interviews and the Subjective Quality of Life. In the interviews, most of the next of kin indicated a trusting and secure relationship with the cohabiting partner, but others described a strained situation with an unsatisfactory married/cohabiting life. There was worry about a worsening of the relationship in the future. In addition, the next of kin spoke of a decrease in freedom, self-actualization, and security, also of a more negative general mood and negative emotional experiences. The results of the questionnaire showed that a sense of engagement in life, having energy, self-actualization, self-assuredness, self-acceptance, security, and general mood were significantly correlated with quality of life as a whole. The study confirms that MS is a disease affecting the whole family, and the next of kin were living in uncertainty, facing an unpredictable future. The nurses could start family support groups and help the next of kin to look after their own health, giving advice on health-promoting behavior to make it possible for the person with MS to live at home even if the illness becomes worse.

Place, publisher, year, edition, pages
Philadelphia, USA: Lippincott Williams & Wilkins, 2010
Keywords
Adult, Aged, Attitude to Health, Caregivers, Cost of Illness, Family, Female, Forecasting, Humans, Interpersonal Relations, Male, Middle Aged, Multiple Sclerosis, Nursing Methodology Research, Qualitative Research, Quality of Life, Questionnaires, Sweden, Trust, Uncertainty
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-12836 (URN)10.1097/JNN.0b013e3181f8a5b2 (DOI)000284109300006 ()21207771 (PubMedID)2-s2.0-78651483585 (Scopus ID)
Available from: 2011-01-11 Created: 2011-01-03 Last updated: 2018-04-23Bibliographically approved
Lidskog, M., Löfmark, A. & Ahlström, G. (2009). Learning through participating on an interprofessional training ward. Journal of Interprofessional Care, 23(5), 486-497
Open this publication in new window or tab >>Learning through participating on an interprofessional training ward
2009 (English)In: Journal of Interprofessional Care, ISSN 1356-1820, E-ISSN 1469-9567, Vol. 23, no 5, p. 486-497Article in journal (Refereed) Published
Abstract [en]

Learning in clinical education can be understood as a process of becoming a legitimate participant in the relevant context. Interprofessional training wards (IPTWs) are designed to give students from educational programmes in health and social care a realistic experience of collaboration for the purpose of developing teamwork skills. IPTWs have been found to be appreciated by the students and to influence students' understanding of each other's professions. The aim of this study was to describe and analyse the students' learning on an interprofessional training ward in care for older persons through focusing on the students' ways of participating in the communities of practice on the ward. A case study design was chosen. Multiple data sources were used. The findings show that the students engaged as active participants in the care. At the same time there was sometimes a discrepancy between on the one hand expectations and goals, on the other hand actual participation. There were difficulties in making the training relevant for all the student groups involved. The findings indicate that in the planning of interprofessional education the choice of setting and learning situations is crucial with regard to the learning that will occur.

Keywords
Interprofessional education, community of practice, training ward, elderly care
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-12291 (URN)10.1080/13561820902921878 (DOI)000270589600008 ()19657936 (PubMedID)2-s2.0-77958166746 (Scopus ID)
Available from: 2010-10-21 Created: 2010-10-21 Last updated: 2017-12-12Bibliographically approved
Widar, M., Ahlström, G. & Ek, A.-C. (2009). Pain conditions after a stroke. Paper presented at Pain in Europe VI, 6th Congress of the European Federation of IASP Chapters (EFIC) Lisbon, Portugal, Sept 2009.
Open this publication in new window or tab >>Pain conditions after a stroke
2009 (English)Conference paper, Oral presentation with published abstract (Refereed)
Keywords
chronic pain, stroke
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-9011 (URN)
Conference
Pain in Europe VI, 6th Congress of the European Federation of IASP Chapters (EFIC) Lisbon, Portugal, Sept 2009
Note

Abstract, muntlig presentation

Available from: 2010-01-04 Created: 2010-01-04 Last updated: 2017-10-18Bibliographically approved
Edvardsson, T. I. & Ahlström, G. I. (2009). Subjective quality of life in persons with low-grade glioma and their next of kin. International Journal of Rehabilitation Research, 32(1), 64-70
Open this publication in new window or tab >>Subjective quality of life in persons with low-grade glioma and their next of kin
2009 (English)In: International Journal of Rehabilitation Research, ISSN 0342-5282, E-ISSN 1473-5660, Vol. 32, no 1, p. 64-70Article in journal (Refereed) Published
Abstract [en]

Patients with low-grade glioma have a longer survival than patients with highly malignant glioma, and for this reason questions of quality of life (QoL) are of particular importance to such patients as well as to their next of kin. No studies have been found in which both adult patients with low-grade glioma and their next of kin have estimated their own QoL. This study was therefore designed to investigate the subjective QoL of these two groups. Thirty-nine patients with low-grade glioma selected from a well-defined county population and 27 next of kin participated in the study. The questionnaire used in the study was the subjective estimation of QoL. The main results and conclusions are as follows: the variable absence of work/meaningful occupation showed statistically significant lower ratings among patients than among next of kin. The results show significant influence mainly on the patients' and their next of kin's internal psychological condition; related to background variables but the pattern in the results was inconsistent. There is a need for recurrent rehabilitation during this long-term disease, and a need to give vocational rehabilitation to support the patient's desire to have a meaningful occupation. It is also of importance to include the patient's next of kin when offering rehabilitation.

Place, publisher, year, edition, pages
Baltimore, Md.: Lippincott Williams & Wilkins, 2009
National Category
Social Sciences Interdisciplinary Nursing Social Work
Research subject
Nursing Science; Disability Science
Identifiers
urn:nbn:se:oru:diva-2887 (URN)10.1097/MRR.0b013e32830bfa8c (DOI)000264360000008 ()19648803 (PubMedID)2-s2.0-67650870170 (Scopus ID)
Available from: 2008-02-08 Created: 2008-02-08 Last updated: 2018-01-13Bibliographically approved
Hägglund, D. & Ahlström, G. (2009). The meaning of women's experience of living with long-term urinary incontinence is powerless. Paper presented at Distriktssköterskeföreningens 50-års jubileumskonferens.
Open this publication in new window or tab >>The meaning of women's experience of living with long-term urinary incontinence is powerless
2009 (English)Conference paper, Oral presentation only (Refereed)
National Category
Social Sciences Interdisciplinary Nursing
Research subject
Caring Sciences w. Medical Focus
Identifiers
urn:nbn:se:oru:diva-8775 (URN)
Conference
Distriktssköterskeföreningens 50-års jubileumskonferens
Available from: 2009-12-15 Created: 2009-12-15 Last updated: 2018-01-12Bibliographically approved
Edvardsson, T. & Ahlström, G. (2008). Being the next of kin of a person with a low-grade glioma. Psycho-Oncology, 17(6), 584-591
Open this publication in new window or tab >>Being the next of kin of a person with a low-grade glioma
2008 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 17, no 6, p. 584-591Article in journal (Refereed) Published
Abstract [en]

There is a paucity of knowledge for health-care professionals who come into contact with next of kin of persons diagnosed with low-grade gliomas. Therefore, the aim of this study was to explore the experience of being the next of kin of an adult person diagnosed with a low-grade glioma. Twenty-eight next of kin of persons with a low-grade glioma were interviewed. The data were subjected to qualitative content analysis. A quantitative data analysis was added to explore how the themes from the qualitative analysis occurred among different next of kin. Four main themes emerged: Extremely stressful emotions, Being invisible and neglected, Changed relations and roles, and Enabling strength in everyday life. The first of these occurred mainly in the early period of illness. This theme was especially predominant in the case of the patient's parents. The theme of Changed relations and roles occurred more often among next of kin some years after the person's diagnosis. The most statements occurred in all four themes were by female next of kin. Many next of kin requested emotional support for themselves and indicated that it is important that health-care staff should not forget them.

National Category
Medical and Health Sciences Cancer and Oncology Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-2886 (URN)10.1002/pon.1276 (DOI)000257874100009 ()
Note

Part of thesis: http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-1742

Available from: 2008-02-08 Created: 2008-02-08 Last updated: 2017-12-14Bibliographically approved
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Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-6230-7583

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