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Scandurra, I. & Hägglund, M. (2015). Developing and implementing national eHealth services for patients: an interactive exploration of challenges and potential solutions. In: Driving Quality in Informatics: Fulfilling the Promise. Paper presented at An international conference addressing Information Technology and Communication in Health (ITCH) 2015, Victoria, BC, Canada, February 26-March 1, 2015.
Open this publication in new window or tab >>Developing and implementing national eHealth services for patients: an interactive exploration of challenges and potential solutions
2015 (English)In: Driving Quality in Informatics: Fulfilling the Promise, 2015Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Developing and Implementing National eHealth Services for Patients – An Interactive Exploration of Challenges and Potential Solutions Isabella Scandurra, Informatics, School of Business, Örebro University, Sweden; Maria Hägglund, Health Informatics Centre, Karolinska Institutet, Sweden As a means to address current challenges for and demands on health and social care, e.g. quality of care and patient empowerment, information and communication technologies (ICT) are being used to supply citizens with various health services. One example is to give patients web access to their own electronic health records (EHRs). In this workshop, we will provide examples and experiences from ongoing work in Sweden to develop and implement eHealth services for citizens; SUSTAINS [1] and My Care Pathways [2].The workshop participants will be engaged in interactive discussions regarding challenges and potential solutions based on their experiences from different contexts. The aim of the workshop is twofold: 1. To explore challenges for developing and implementing e-health systems for citizens to access their patient information and other e-health services online. 2. To suggest strategies and activities that could provide potential solutions to the identified challenge. Workshop structure The disposition of the workshop is as follows: a 90 minute session, a 15 minutes break and another 75 minute session. The two sessions will contain both presentations from the workshop organizers and interactive discussions and work in smaller groups to engage all participants and share experiences from different contexts. This disposition requires active participants to generate new ideas and knowledge through discussions and reflections where all participants contribute with their knowledge and understanding of the problem. The topic is expected to engage a lot of people, maybe not only those present at the workshop or at the conference. The workshop organizers will encourage live tweeting during the sessions and invite followers. 

National Category
Health Sciences
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-41908 (URN)
Conference
An international conference addressing Information Technology and Communication in Health (ITCH) 2015, Victoria, BC, Canada, February 26-March 1, 2015
Available from: 2015-01-15 Created: 2015-01-15 Last updated: 2017-10-18Bibliographically approved
Scandurra, I., Hägglund, M., Persson, A. & Åhlfeldt, R.-M. (2014). Disturbing or Facilitating? On the Usability of Swedish eHealth Systems 2013. In: Christian Lovis, Brigitte Séroussi, Arie Hasman; Louise Pape-Haugaard; Osman Saka; Stig Kjær Andersen (Ed.), E-Health – For Continuity of Care: Proceedings of MIE2014. Paper presented at 25th European Medical Informatics Conference (MIE2014), Istanbul, Turkey August/September 2014 (pp. 221-225). Amsterdam: IOS Press, 205
Open this publication in new window or tab >>Disturbing or Facilitating? On the Usability of Swedish eHealth Systems 2013
2014 (English)In: E-Health – For Continuity of Care: Proceedings of MIE2014 / [ed] Christian Lovis, Brigitte Séroussi, Arie Hasman; Louise Pape-Haugaard; Osman Saka; Stig Kjær Andersen, Amsterdam: IOS Press, 2014, Vol. 205, p. 221-225Conference paper, Published paper (Refereed)
Abstract [en]

As many evaluations show, healthcare organizations do not accomplish the intended effects of their eHealth systems due to inadequate usability. On behalf of the Swedish Ministry of Health and Social Affairs, the usability of current eHealth systems in Swedish healthcare have been analysed from the perspective of healthcare and social service professionals. The objective of the study was to report on current problems, potential solutions as well as to relate these to research in relevant areas. Using a participatory approach, seven workshops were held where researchers within health informatics collaborated with staff from different care providers, representatives of the national associations of health and social care professionals and the national eHealth system vendor organization. This paper presents a foundation for further development of eHealth systems, condensed into 10 issues that the Swedish health and social care professionals find imperative to improve. The study emphasizes that the development of eHealth systems is always a matter of organizational and process development and must be integrated into the care practice improvement process. Further, based on the findings, some identified challenges are discussed.

Place, publisher, year, edition, pages
Amsterdam: IOS Press, 2014
Series
Studies in Health Technology and Informatics, ISSN 1879-8365 ; 205
National Category
Computer Systems
Research subject
Informatics; Caring sciences; Health and Medical Care Research; Human-Computer Interaction
Identifiers
urn:nbn:se:oru:diva-41832 (URN)10.3233/978-1-61499-432-9-221 (DOI)25160178 (PubMedID)2-s2.0-84929505138 (Scopus ID)978-1-61499-431-2 (ISBN)978-1-61499-432-9 (ISBN)
Conference
25th European Medical Informatics Conference (MIE2014), Istanbul, Turkey August/September 2014
Available from: 2015-01-15 Created: 2015-01-15 Last updated: 2018-06-15Bibliographically approved
Koch, S., Hägglund, M. & Scandurra, I. (2014). Informatics and socio-technical challenges when designing for integrated eCare. In: Ingo Meye, Sonja Muller, Lutz Kubitschke (Ed.), Achieving effective integrated e-care beyond the silos: (pp. 108-134). Hershey PA: IGI Global
Open this publication in new window or tab >>Informatics and socio-technical challenges when designing for integrated eCare
2014 (English)In: Achieving effective integrated e-care beyond the silos / [ed] Ingo Meye, Sonja Muller, Lutz Kubitschke, Hershey PA: IGI Global, 2014, p. 108-134Chapter in book (Refereed)
Abstract [en]

The central role of eHealth to enable the successful implementation of integrated care is commonly acknowledged today. This is easier said than done. To provide correct, understandable, and timely information at the point of need and to facilitate communication and decision support for a network of actors with different prerequisites and needs are some of the big challenges of integrated care. This book chapter focuses on the specific challenges related to informatics and socio-technical issues when designing solutions for integrated eCare. Methods for requirements elicitation, evaluation, and system development using user-centred design in collaborative environments involving a variety of stakeholders are presented. Case studies in homecare of older patients, in the care of stroke patients, and regarding citizen eHealth services in general illustrate the application of these methods. Possible solutions and pitfalls are discussed based on the experiences drawn from the case studies. To address the main infor-matics and socio-technical challenges in integrated eCare, namely informatics-supported collaborative work and to provide coordinated continuity for the patient, top-down activities such as health informatics standardization, and bottom-up activities resulting in the definition of concrete patient journey descrip-tions, interaction points, information needs (that can be transformed into standardized data sets), as well as visualization and interaction patterns need to go hand in hand.

Place, publisher, year, edition, pages
Hershey PA: IGI Global, 2014
National Category
Health Sciences
Identifiers
urn:nbn:se:oru:diva-41903 (URN)10.4018/978-1-4666-6138-7.ch006 (DOI)2-s2.0-84949561962 (Scopus ID)9781466661394 (ISBN)9781466661387 (ISBN)
Available from: 2015-01-15 Created: 2015-01-15 Last updated: 2018-06-15Bibliographically approved
Scandurra, I., Hägglund, M., Åhlfeldt, R.-M. & Persson, A. (2013). Building usability into National eHealth strategies: An Action Research Approach. In: Action Research, Interventions, and Participatory Design: . Paper presented at 4th international workshop on Infrastructures for Healthcare (IHC): Action Research, Interventions, and Participatory Design,13-14 June, Tromsø, Norway, 2013.
Open this publication in new window or tab >>Building usability into National eHealth strategies: An Action Research Approach
2013 (English)In: Action Research, Interventions, and Participatory Design, 2013Conference paper, Published paper (Refereed)
National Category
Health Sciences
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-41936 (URN)
Conference
4th international workshop on Infrastructures for Healthcare (IHC): Action Research, Interventions, and Participatory Design,13-14 June, Tromsø, Norway, 2013
Available from: 2015-01-16 Created: 2015-01-16 Last updated: 2019-04-11Bibliographically approved
Scandurra, I., Åhlfeldt, R.-M., Persson, A. & Hägglund, M. (2013). Challenges in applying a Participatory Approach in a Nation-wide project: The case of ‘Usability of Swedish eHealth Systems 2013. In: Proceedings of Past History and Future Challenges of Human Work Interaction Design (HWID): . Paper presented at INTERACT workshop 2013 – 14th IFIP TC13.
Open this publication in new window or tab >>Challenges in applying a Participatory Approach in a Nation-wide project: The case of ‘Usability of Swedish eHealth Systems 2013
2013 (English)In: Proceedings of Past History and Future Challenges of Human Work Interaction Design (HWID), 2013Conference paper, Published paper (Refereed)
Series
LNCS Vol 8117 2013 Human-Computer Interaction
National Category
Health Sciences Information Systems
Identifiers
urn:nbn:se:oru:diva-41930 (URN)
Conference
INTERACT workshop 2013 – 14th IFIP TC13
Available from: 2015-01-15 Created: 2015-01-15 Last updated: 2018-05-26Bibliographically approved
Scandurra, I., Hägglund, M. & Åhlfeldt, R.-M. (2013). Experiences of Novel e-Health Services for Patients: Pros, Cons and Future Challenges. Paper presented at 14th World Congress on Medical and Health Informatics (MedInfo 2013), Copenhagen, Denmark, August 20-23, 2013. Studies in Health Technology and Informatics, 192, 1254-1254
Open this publication in new window or tab >>Experiences of Novel e-Health Services for Patients: Pros, Cons and Future Challenges
2013 (English)In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 192, p. 1254-1254Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

It is crucial to involve the patient in the development of patient accessible eHealth systems. But who, how and when? Patientinvolvement in development of e-health services for citizens has gained little attention to date. It is important to highlight theexperiences, pros and cons, and explore new issues and future challenges that arise for all different stakeholders involved in e-healthdevelopment. One source of inspiration for this workshop is the European funded SUSTAINS project which aims to deploy e-healthservices with the patient as an important actor. Another is the Swedish research project My Care Pathways where focus is ondevelopment of new e-health services that enable the patient to follow and interact with their care processes. This workshop aims todiscuss the experiences made in ongoing European deployment projects of online e-health services as well as methods to improvepatient participation in such development based on current evaluations and future needs. The objective is to collect and disseminatevarious experiences from novel e-health service deployment in Europe; during the workshop active participation is desired via twitterand other eLearning tools, and afterwards the results of the workshop are published on easily accessible web sites.

Place, publisher, year, edition, pages
Amsterdam, Netherlands: IOS Press, 2013
National Category
Health Sciences Health Care Service and Management, Health Policy and Services and Health Economy
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-41931 (URN)000341021700536 ()978-1-61499-288-2 (ISBN)978-1-61499-289-9 (ISBN)
Conference
14th World Congress on Medical and Health Informatics (MedInfo 2013), Copenhagen, Denmark, August 20-23, 2013
Available from: 2015-01-15 Created: 2015-01-15 Last updated: 2018-05-26Bibliographically approved
Hägglund, M., Scandurra, I. & Koch, S. (2012). Supporting Citizen-centred Care for Seniors: Experiences from Two Swedish Research Projects. In: Paolo Soda; Francesco Tortorella; Sameer Antani; Mykola Pechenizkiy; Mario Cannataro; Alexey Tsymbal (Ed.), 25th International Symposium on Computer-Based Medical Systems (CBMS), 2012: . Paper presented at 25th International Symposium on Computer-Based Medical Systems (CBMS), Rome, Italy, June 20-22, 2012. Rome, Italy: IEEE conference proceedings, Article ID 6266377.
Open this publication in new window or tab >>Supporting Citizen-centred Care for Seniors: Experiences from Two Swedish Research Projects
2012 (English)In: 25th International Symposium on Computer-Based Medical Systems (CBMS), 2012 / [ed] Paolo Soda; Francesco Tortorella; Sameer Antani; Mykola Pechenizkiy; Mario Cannataro; Alexey Tsymbal, Rome, Italy: IEEE conference proceedings, 2012, article id 6266377Conference paper, Published paper (Refereed)
Abstract [en]

The development of information and communication technology (ICT) for citizen-centered care requires insight into concrete problems in care processes as well as an understanding of the goals and values that should guide these. In this retrospective study we return to results from two research projects focusing on the needs of senior citizens and stroke patients. We describe the intersections between health care services, social care services and private services, and analyze these with focus on the needs of independence, continuity and participation. The current state of ICT in relation to the identified needs is also addressed. In conclusion, an increasing number of solutions are available to support senior citizens in different parts of their lives, yet they remain isolated and have limited impact. In order to harness value for senior citizens, it is imperative to continue with multidisciplinary research focusing on socio-technical aspects; addressing technological, organizational, legal and business-related aspects.

Place, publisher, year, edition, pages
Rome, Italy: IEEE conference proceedings, 2012
Series
Annual IEEE Symposium on Computer-Based Medical Systems, ISSN 1063-7125
National Category
Health Sciences Information Systems
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-41938 (URN)10.1109/CBMS.2012.6266377 (DOI)000312384400087 ()2-s2.0-84867288206 (Scopus ID)978-1-4673-2051-1 (ISBN)
Conference
25th International Symposium on Computer-Based Medical Systems (CBMS), Rome, Italy, June 20-22, 2012
Funder
VINNOVA
Note

Swedish Agency for Innovation Systems ;Trygghetsfonden

Available from: 2015-01-16 Created: 2015-01-16 Last updated: 2018-01-11Bibliographically approved
Hägglund, M., Scandurra, I. & Koch, S. (2010). Scenarios to Capture Work Processes in Shared Home Care – from analysis to application. International Journal of Medical Informatics, 79(6), 126-134
Open this publication in new window or tab >>Scenarios to Capture Work Processes in Shared Home Care – from analysis to application
2010 (English)In: International Journal of Medical Informatics, ISSN 1386-5056, E-ISSN 1872-8243, Vol. 79, no 6, p. 126-134Article in journal (Refereed) Published
Abstract [en]

Background

Shared homecare is increasingly common, and in order to develop ICT that support such complex cooperative and interdisciplinary work it is crucial to obtain an understanding of work processes at the clinical level before the development is initiated. It is also crucial, but difficult, to correctly transfer this insight to the development team.

Method

User-centered scenario building in interdisciplinary working groups is applied for capturing cooperative work routines, information demands, and other central preconditions in shared homecare.

Results

Use of scenarios for analysis of cooperative work and as information carrier is described via a case from the multi-disciplinary OLD@HOME project. Both current and future work scenarios were elicited. To illustrate the process of transforming scenarios into more technical descriptions (use cases), and finally into an application, examples showing the transparency in resulting use cases and in the implemented system are provided.

Conclusion

In this case study, scenarios proved to be useful not only in initial system development phases but throughout the entire development process, improving accessibility and assessment of end user needs. For the development team, scenarios assisted in solving usability issues, and served as a basis for describing use cases and for further system development. More importantly, the shared care scenarios ensured the provision of different perspectives on common work processes, which are often neglected in conventional requirements specifications. This also improved understanding between different clinical groups and between clinicians and developers.

Keywords
Interdisciplinary communication, Integrated health care systems, Software design, Nursing records, Medical records, Home care services
National Category
Computer Sciences
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-41880 (URN)10.1016/j.ijmedinf.2008.07.007 (DOI)000278192800014 ()18762445 (PubMedID)2-s2.0-77955855686 (Scopus ID)
Available from: 2015-01-15 Created: 2015-01-15 Last updated: 2018-01-11Bibliographically approved
Scandurra, I. & Hägglund, M. (2009). A collaborative design method to support integrated care.: An ICT development method containing continuous user validation improves the entire care process and the individual work situation. Paper presented at 9th International Conference on IntegratedCare, Vienna, November 2009 (INIC09). International Journal of Integrated Care, 9(Suppl.)
Open this publication in new window or tab >>A collaborative design method to support integrated care.: An ICT development method containing continuous user validation improves the entire care process and the individual work situation
2009 (English)In: International Journal of Integrated Care, ISSN 1568-4156, E-ISSN 1568-4156, Vol. 9, no Suppl.Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Introduction

Integrated care involves different professionals, belonging to different care provider organizations and requires immediate and ubiquitous access to patient-oriented information, supporting an integrated view on the care process [1].

Purpose

To present a method for development of usable and work process-oriented information and communication technology (ICT) systems for integrated care.

Theory and method

Based on Human-computer Interaction Science and in particular Participatory Design [2], we present a new collaborative design method in the context of health information systems (HIS) development [3]. This method implies a thorough analysis of the entire interdisciplinary cooperative work and a transformation of the results into technical specifications, via user validated scenarios, prototypes and use cases, ultimately leading to the development of appropriate ICT for the variety of occurring work situations for different user groups, or professions, in integrated care.

Results and conclusions

Application of the method in homecare of the elderly resulted in an HIS that was well adapted to the intended user groups. Conducted in multi-disciplinary seminars, the method captured and validated user needs and system requirements for different professionals, work situations, and environments not only for current work; it also aimed to improve collaboration in future (ICT supported) work processes. A holistic view of the entire care process was obtained and supported through different views of the HIS for different user groups, resulting in improved work in the entire care process as well as for each collaborating profession.

Place, publisher, year, edition, pages
Utrecht: Igitur, 2009
Keywords
ICT development method, participatory design, interdisciplinary cooperative work, user validation
National Category
Computer Sciences
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-41892 (URN)
Conference
9th International Conference on IntegratedCare, Vienna, November 2009 (INIC09)
Available from: 2015-01-15 Created: 2015-01-15 Last updated: 2018-01-11Bibliographically approved
Scandurra, I. & Hägglund, M. (2009). An ICT development method containing Continuous User Validation improves the entire care process AND the individual work situation. In: : . Paper presented at International Network of Integrated Care.
Open this publication in new window or tab >>An ICT development method containing Continuous User Validation improves the entire care process AND the individual work situation
2009 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Introduction: Integrated care involves different professionals, belonging to different care provider organizations and requires immediate and ubiquitous access to patient-oriented information, supporting an integrated view on the care process.

Purpose: To present a method for development of usable and work process-oriented information and communication technology (ICT) systems for integrated care.

Theory and method: Based on Human-computer Interaction Science and in particular Participatory Design, we present a new collaborative design method in the context of health information systems (HIS) development. This method implies a thorough analysis of the entire interdisciplinary cooperative work and a transformation of the results into technical specifications, via user validated scenarios, prototypes and use cases, ultimately leading to the development of appropriate ICT for the variety of occurring work situations for different user groups, or professions, in integrated care.

Results and conclusions: Application of the method in homecare of the elderly resulted in an HIS that was well adapted to the intended user groups. Conducted in multi-disciplinary seminars, the method captured and validated user needs and system requirements for different professionals, work situations, and environments not only for current work; it also aimed to improve collaboration in future (ICT supported) work processes. A holistic view of the entire care process was obtained and supported through different views of the HIS for different user groups, resulting in improved work in the entire care process as well as for each collaborating profession.

Series
international journal of integrated care, ISSN 1568-4156 ; suppl. vol. 9 (2009)
Keywords
ICT development method, participatory design, interdisciplinary cooperative work, user validation
National Category
Health Sciences
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-41944 (URN)
Conference
International Network of Integrated Care
Available from: 2015-01-16 Created: 2015-01-16 Last updated: 2017-10-17Bibliographically approved
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-6839-3651

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