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Spang, L., Holmefur, M., Pettersson, C. & Lidström-Holmqvist, K. (2023). Experiences of Close Relatives of Older Adults in Need of a Nursing Home: It Is We Who Manage Their Fragile Daily Life. Health & Social Care in the Community, 2023, Article ID 9490086.
Open this publication in new window or tab >>Experiences of Close Relatives of Older Adults in Need of a Nursing Home: It Is We Who Manage Their Fragile Daily Life
2023 (English)In: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 2023, article id 9490086Article in journal (Refereed) Published
Abstract [en]

Home-based care is expanding, and we need to know more about what kind of support older adults need and how such support should be designed. One way to gain more knowledge is to study the experiences that underlie a nursing home application. However, older adults in need of nursing homes are often too weak to participate in research. Thus, this study aimed to describe the experiences of close relatives of the daily life of older adults in need of a nursing home. A qualitative approach was used, where fifteen relatives of nursing home applicants in central Sweden were interviewed using a study-specific interview guide. The interviews were analysed using thematic analysis. The findings are presented in one main theme "Being the person who manages a fragile life situation" with three underlying themes: Balancing and fulfilling expectations, striving to achieve a status quo, experiencing a breaking point, a change is inevitable, and waiting and moving into a nursing home, a period of tension. The main theme describes how the participants contributed to managing the older adults' life situation and acted as a representative in contacts with health and social care. They tried to offer support in their daily life but over time experienced a breaking point when ageing in place was no longer sustainable, resulting in a nursing home application. The rationale for a nursing home application was often a combination of the older adult's own wishes and the fact that their relatives felt there was a combined need for extensive care and physical proximity to staff, which cannot be provided in ordinary housing. Sometimes the decision to apply was also based on relatives no longer having the capacity to continue managing an older adult's fragile situation.

Place, publisher, year, edition, pages
John Wiley & Sons, 2023
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:oru:diva-105060 (URN)10.1155/2023/9490086 (DOI)000934532800002 ()2-s2.0-85177827274 (Scopus ID)
Available from: 2023-03-20 Created: 2023-03-20 Last updated: 2024-02-05Bibliographically approved
Pettersson, C. (2022). Betydelsen av en person­centrerad miljö för vård, omsorg och rehabilitering utomhus (1ed.). In: Åsa Engström, Päivi Juuso, Madeleine Liljegren, Lotta Lundmark Alfredsson (Ed.), Vård, omsorg och rehabilitering utomhus: teori, praktik och nya perspektiv (pp. 139-153). Studentlitteratur AB
Open this publication in new window or tab >>Betydelsen av en person­centrerad miljö för vård, omsorg och rehabilitering utomhus
2022 (Swedish)In: Vård, omsorg och rehabilitering utomhus: teori, praktik och nya perspektiv / [ed] Åsa Engström, Päivi Juuso, Madeleine Liljegren, Lotta Lundmark Alfredsson, Studentlitteratur AB, 2022, 1, p. 139-153Chapter in book (Refereed)
Place, publisher, year, edition, pages
Studentlitteratur AB, 2022 Edition: 1
National Category
Nursing Physiotherapy
Identifiers
urn:nbn:se:oru:diva-101906 (URN)9789144142364 (ISBN)
Available from: 2022-10-24 Created: 2022-10-24 Last updated: 2022-11-03Bibliographically approved
Pettersson, C., Zingmark, M. & Haak, M. (2022). Enabling social participation for older people: The content of reablement by age, gender, and level of functioning in occupational therapists' interventions. Scandinavian Journal of Occupational Therapy, 29(6), 522-529
Open this publication in new window or tab >>Enabling social participation for older people: The content of reablement by age, gender, and level of functioning in occupational therapists' interventions
2022 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 29, no 6, p. 522-529Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Social participation and the ability to build and maintain social relationships is emphasized as important for older people's health and well-being.

AIM: To explore if social participation is addressed and whether age, gender and level of functioning are associated with the composition of occupational therapy interventions within the context of reablement.

METHOD: In this cross-sectional study, invitations to participate were sent to 60 municipalities in Sweden. 318 occupational therapists participated and described the character of initiated interventions made during 3 weeks through web-based surveys.

RESULT: 1392 cases were reported in the age span of 19-103 years, 61.7% were women. A higher proportion of persons having no home care and minor functional dependency got interventions with a focus on social participation to a higher extent than persons with major functional dependency. Occupational therapists' interventions vary as related to functional limitation, age, and gender.

CONCLUSION: The results indicate that the severity of functional limitation impacts the focus of the intervention whereas age and gender do not. There is a need for social participation to be more clearly addressed within the context of reablement.

SIGNIFICANCE: To develop a person-centred intervention, one needs to consider aspects of age, gender, and functions.

Place, publisher, year, edition, pages
Informa Healthcare, 2022
Keywords
Ageing, activity, community participation, every-day rehabilitation, restorative home care services, social care, social health
National Category
Nursing
Identifiers
urn:nbn:se:oru:diva-93984 (URN)10.1080/11038128.2021.1967442 (DOI)000691472400001 ()34463598 (PubMedID)2-s2.0-85113973108 (Scopus ID)
Available from: 2021-09-01 Created: 2021-09-01 Last updated: 2023-12-08Bibliographically approved
Tavemark, S., Wijk, H. & Pettersson, C. (2022). Tensions between infection control regulations and the home care working environment: An interview study with health care providers early during the COVID-19 pandemic. Journal of Public Health Research, 11(2)
Open this publication in new window or tab >>Tensions between infection control regulations and the home care working environment: An interview study with health care providers early during the COVID-19 pandemic
2022 (English)In: Journal of Public Health Research, ISSN 2279-9028, E-ISSN 2279-9036, Vol. 11, no 2Article in journal (Refereed) Published
Abstract [en]

Background: Therefore, the objective of this study was to elucidate caregivers’ experiences of ordinary homes as a working environment in home care and home health care during the COVID-19 pandemic. At the beginning of the pandemic, hospital care was in focus and the care of older adults was criticized around the world.

Design and methods: Semi-structured qualitative interviews were conducted in two municipalities in Sweden between March 2020 and May 2021. One large municipality (population 155,000) with experience of care recipients with COVID-19, and a smaller municipality (population 32,000) were included; both had a focus on preventing the spread of the infection. A total of 27 participants working in home care were interviewed; these were occupational therapists, physical therapists, nurses, and assistant nurses. The interview material was analyzed using content analysis.

Results: The interviews provided a comprehensive insight into the complex work environment in municipal home care during the pandemic. The staff had to deal with constantly changing information and new guidelines. They were also given new tasks and work routines that demanded more planning and were time-consuming. The staff experienced higher workload and pressure during the pandemic and did not have enough time to recover.

Conclusions: During a pandemic situation, the information must be comprehensive and gathered in one place, and the managers must ensure sufficient staffing levels, time for reflection, and support for prioritization. The managers must also ensure the mental health of staff and meet their needs for recovery, both at and outside work.

Place, publisher, year, edition, pages
Sage Publications, 2022
Keywords
COVID-19, home care, home health care, working environment
National Category
Nursing
Identifiers
urn:nbn:se:oru:diva-100393 (URN)10.1177/22799036221104154 (DOI)000842989000001 ()2-s2.0-85137431373 (Scopus ID)
Note

Funding agency:

AFA Insurance 200226

Available from: 2022-08-02 Created: 2022-08-02 Last updated: 2023-12-08Bibliographically approved
Pettersson, C., Baudin, K. & Hedvall, P.-O. (2022). The struggle for access: a qualitative document study of how people using wheeled mobility devices experience exclusion and discrimination. Disability and Rehabilitation: Assistive Technology, 1-9
Open this publication in new window or tab >>The struggle for access: a qualitative document study of how people using wheeled mobility devices experience exclusion and discrimination
2022 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, p. 1-9Article in journal (Refereed) Epub ahead of print
Abstract [en]

Purpose The overall aim of this study was to describe experiences of discrimination due to inaccessibility among people using mobility devices.

Material and methods We conducted a thematic qualitative analysis of 88 complaints about wheeled mobility device use, inaccessibility, and discrimination submitted to the Swedish Equality Ombudsman (DO) during 2015 and 2016.

Results The analysis resulted in three themes: instigating change by invoking laws and regulations and highlighting lack of compliance; demanding to be recognised, understood, and listened to; and struggling for equal access and social participation. Regulations and treaties were invoked as the basis for complaints by people using mobility devices regarding their lack of access to physical environments and impediments to their enjoyment of their full right to participate in and contribute to society. The complaints described feelings of discrimination, the disadvantages and exclusion due to physical inaccessibility, and experiences of being prevented from living one’s life as others do.

Conclusions Complaints filed by people using mobility devices showed that they were denied access to a wide range of contexts, including offices, theatres, restaurants, schools, and public transportation, though they desired to live an active and social life outside their homes. Filing a complaint was a way to take action, highlight present inaccessibility, and express a hope for change.

IMPLICATIONS FOR REHABILITATION

• Difficulties experienced by people using wheeled mobility devices can reveal knowledge important for revising existing design and renovation standards for housing and public buildings.

• Documenting facilitators and barriers in different environments is important for giving voice to the needs of wheeled mobility device users and revealing standards that need to be strongly enforced or revised.

• People using wheeled mobility devices should be supported in finding solutions in inaccessible environments, both to fulfil their wishes and to enable their participation in society.

Place, publisher, year, edition, pages
Informa Healthcare, 2022
Keywords
Occupation, physical accessibility, treaty, law, discrimination, mobility device
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Research subject
Health and Medical Care Research
Identifiers
urn:nbn:se:oru:diva-100515 (URN)10.1080/17483107.2022.2107094 (DOI)000836574600001 ()35930498 (PubMedID)2-s2.0-85135493856 (Scopus ID)
Funder
Norrbacka-Eugenia Foundation, 854/16
Available from: 2022-08-08 Created: 2022-08-08 Last updated: 2023-12-08Bibliographically approved
Spang, L., Holmefur, M., Pettersson, C. & Lidström-Holmqvist, K. (2022). To be a relative to an older adult who have applied to a nursing home. In: : . Paper presented at 18th World Federation of Occupational Therapists (WFOT) Congress, Occupational R-evolution, Paris, France, August 28-31, 2022.
Open this publication in new window or tab >>To be a relative to an older adult who have applied to a nursing home
2022 (English)Conference paper, Oral presentation only (Refereed)
Abstract [en]

Introduction: Ageing in place, is in most European societies a social norm and is made possible by home-based care services and by support from relatives. Yet some older adults describe ageing in place as an unsatisfying life situation and instead apply for a nursing home. Thus, relatives supporting these older adults´ daily lives are part of that experience but the knowledge of how that unsatisfying experience is shared by the relatives is limited. Hence, the study aimed to describe experiences of being a relative to a nursing home applicant.

Method: Semi-structured interviews were conducted by phone with 15 relatives (spouse n=2, children n=13) to nursing home applicants. The data was collected in year 2020 during the covid-19 pandemic. Interviews were analyzed using a thematic analysis approach according to Braun and Clark. 

Results: Preliminary results show that the relatives have many expectations to handle, both from themselves, the nursing home applicant and healthcare. In addition, the covid-19 pandemic made it difficult to fulfill the expectations and the relatives consider both their own and the nursing home applicant’s situation as fragile. Final themes will be presented at the conference.

Conclusion: Increased understanding of what experiences that influence everyday activities when ageing in place, could facilitate occupational therapists’ work with older adults living at home. For example, relatives should be included at an early stage of the occupational therapy process in order to provide insight into which areas of daily life occupational therapists should prioritize and support. 

National Category
Occupational Therapy
Identifiers
urn:nbn:se:oru:diva-101284 (URN)
Conference
18th World Federation of Occupational Therapists (WFOT) Congress, Occupational R-evolution, Paris, France, August 28-31, 2022
Available from: 2022-09-16 Created: 2022-09-16 Last updated: 2023-12-28Bibliographically approved
Winberg, C., Kylberg, M., Pettersson, C., Harnett, T., Hedvall, P.-O., Mattsson, T. & Månsson Lexell, E. (2021). Feeling controlled or being in control?: Apps for self-management among older people with neurological disability. Disability and Rehabilitation: Assistive Technology, 16(6), 603-608
Open this publication in new window or tab >>Feeling controlled or being in control?: Apps for self-management among older people with neurological disability
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2021 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 16, no 6, p. 603-608Article in journal (Refereed) Published
Abstract [en]

Purpose: The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson’s disease and stroke reason regarding using apps to facilitate self-management in everyday life.

Material and methods: A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51–80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson’s disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns.

Results: The results formed two themes. The first theme “using apps to have control of my health” comprises two subthemes; “monitor and take responsibility for a healthy lifestyle” and “compensate to facilitate everyday life”. The second theme “using the app as a tool and means for communication” also comprised two subthemes; “dare to trust the app” and “feeling safe when sharing information with health care professionals”.

Conclusions: The use of apps put increased responsibility on the person and had the possibility to make them more involved in their own care. The use of an app can facilitate a healthy lifestyle and help to monitor disease-specific symptoms. In order to be able to use apps for communication with the health care sector legislation and safety issues need to be considered.

Place, publisher, year, edition, pages
Taylor & Francis, 2021
Keywords
Activity, everyday life, health, healthcare, multiple sclerosis, Parkinson’s disease, stroke
National Category
Gastroenterology and Hepatology Nursing
Identifiers
urn:nbn:se:oru:diva-77971 (URN)10.1080/17483107.2019.1685017 (DOI)000495889000001 ()31711351 (PubMedID)2-s2.0-85074986675 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2019-11-18 Created: 2019-11-18 Last updated: 2022-01-05Bibliographically approved
Pettersson, C., Nilsson, M., Andersson, M. & Wijk, H. (2021). The impact of the physical environment for caregiving in ordinary housing: Experiences of staff in home- and health-care services. Applied Ergonomics, 92, Article ID 103352.
Open this publication in new window or tab >>The impact of the physical environment for caregiving in ordinary housing: Experiences of staff in home- and health-care services
2021 (English)In: Applied Ergonomics, ISSN 0003-6870, E-ISSN 1872-9126, Vol. 92, article id 103352Article in journal (Refereed) Published
Abstract [en]

The strong driving forces for ageing in place demand sustainable solutions for the housing and care of older people and the health and safety of home- and health-care staff. The aim of the study was to elucidate staff experiences of providing home- and health-care to older people living in ordinary housing. This study was part of a larger project investigating the relation between home design and conditions for care in ordinary housing. The data were gathered through focus group interviews with staff in home- and health-care. Three main themes were found according to staff experiences of particular rooms’ sizes and proportions, spatial configurations, and aspects to consider when designing new housing. This study contributes important knowledge about essential features of the physical environment for staff providing home- and health-care for older people in their own homes and to aid the development of functionally sustainable housing to minimise injuries to staff.

Place, publisher, year, edition, pages
Elsevier, 2021
Keywords
Older people, Ordinary housing, Working environment
National Category
Nursing
Identifiers
urn:nbn:se:oru:diva-88280 (URN)10.1016/j.apergo.2020.103352 (DOI)000614757100009 ()33395590 (PubMedID)2-s2.0-85098588009 (Scopus ID)
Funder
Swedish Research Council Formas, 2015-3493-29465-112
Note

Funding Agencies:

Integrative Ways of Residing: Health and Quality of Residence Architectural Inventions for Dwelling, Ageing and Healthcaring at Chalmers University of Technology  

Örebro University 

Available from: 2021-01-06 Created: 2021-01-06 Last updated: 2021-03-19Bibliographically approved
(2021). Örebro University’s Nobel Day Festivities: Book of abstracts, 2021. Örebro: Örebro universitet
Open this publication in new window or tab >>Örebro University’s Nobel Day Festivities: Book of abstracts, 2021
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2021 (English)Book (Other academic)
Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2021. p. 23
National Category
Other Medical Sciences not elsewhere specified
Research subject
Biomedicine; Medicine; Surgery; Caring sciences; Occupational therapy; Public health; Disability Science; Sports Science
Identifiers
urn:nbn:se:oru:diva-99377 (URN)978-91-87789-57-1 (ISBN)
Available from: 2022-06-03 Created: 2022-06-03 Last updated: 2023-03-07Bibliographically approved
Pettersson, C. (2020). Bostaden som hem och arbetsplats. Arbetsterapeuten (5), 30-31
Open this publication in new window or tab >>Bostaden som hem och arbetsplats
2020 (Swedish)In: Arbetsterapeuten, ISSN 0345-0988, no 5, p. 30-31Article in journal (Other academic) Published
Place, publisher, year, edition, pages
Nacka: , 2020
Keywords
Hemtjänst, hemsjukvård, ordinärt boende, äldre
National Category
Medical and Health Sciences Occupational Therapy
Research subject
Health and Medical Care Research; Occupational therapy
Identifiers
urn:nbn:se:oru:diva-89631 (URN)
Available from: 2021-02-16 Created: 2021-02-16 Last updated: 2023-05-17Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-4863-5844

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