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Winberg, C., Kylberg, M., Pettersson, C., Harnett, T., Hedvall, P.-O., Mattsson, T. & Månsson Lexell, E. (2019). Feeling controlled or being in control? Apps for self-management among older people with neurological disability. Disability and Rehabilitation: Assistive Technology, 1-6
Open this publication in new window or tab >>Feeling controlled or being in control? Apps for self-management among older people with neurological disability
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2019 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, p. 1-6Article in journal (Refereed) Epub ahead of print
Abstract [en]

Purpose: The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson’s disease and stroke reason regarding using apps to facilitate self-management in everyday life.

Material and methods: A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51–80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson’s disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns.

Results: The results formed two themes. The first theme “using apps to have control of my health” comprises two subthemes; “monitor and take responsibility for a healthy lifestyle” and “compensate to facilitate everyday life”. The second theme “using the app as a tool and means for communication” also comprised two subthemes; “dare to trust the app” and “feeling safe when sharing information with health care professionals”.

Conclusions: The use of apps put increased responsibility on the person and had the possibility to make them more involved in their own care. The use of an app can facilitate a healthy lifestyle and help to monitor disease-specific symptoms. In order to be able to use apps for communication with the health care sector legislation and safety issues need to be considered.

Place, publisher, year, edition, pages
Taylor & Francis, 2019
Keywords
Activity, everyday life, health, healthcare, multiple sclerosis, Parkinson’s disease, stroke
National Category
Gastroenterology and Hepatology Nursing
Identifiers
urn:nbn:se:oru:diva-77971 (URN)10.1080/17483107.2019.1685017 (DOI)000495889000001 ()
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2019-11-18 Created: 2019-11-18 Last updated: 2019-11-27Bibliographically approved
Pettersson, C., Malmqvist, I., Gromark, S. & Wijk, H. (2019). Study Protocol: The Physical Environment and Home Healthcare Services: The development and Content of a Study Protocol to Explore Enablers and Barriers for the delivery of Home Healthcare Services. Nordic Journal of Architectural Research, 31(2), 105-122
Open this publication in new window or tab >>Study Protocol: The Physical Environment and Home Healthcare Services: The development and Content of a Study Protocol to Explore Enablers and Barriers for the delivery of Home Healthcare Services
2019 (English)In: Nordic Journal of Architectural Research, ISSN 1236-6064, E-ISSN 1893-5281, Vol. 31, no 2, p. 105-122Article in journal (Refereed) Published
Abstract [en]

Whilst home healthcare services for an aging population currently livingin ordinary housing are increasingly needed, physical environmentsdo not adequately meet current levels of demand for such services. Thepresent study protocol, which combines qualitative and quantitativemethods, was developed in order to explore the impact of architecturaldesign on enablers and barriers in the delivery of home healthcareservices. An interdisciplinary research team, drawn from the fields ofarchitecture, healthcare, and occupational sciences, will execute theforthcoming study. This study protocol describes the design of thatstudy, which will explore the relation between residential design and theconditions for care in ordinary housing.

Place, publisher, year, edition, pages
SINTEF Academic Press, 2019
Keywords
home services, home healthcare, caregivers, architectural design, ordinary housing, older people, occupational therapy
National Category
Nursing
Identifiers
urn:nbn:se:oru:diva-77930 (URN)
Funder
Swedish Research Council Formas
Available from: 2019-11-15 Created: 2019-11-15 Last updated: 2019-11-18Bibliographically approved
Desmond, D., Layton, N., Bentley, J., Boot, F. H., Borg, J., Dhungana, B. M., . . . Scherer, M. J. (2018). Assistive technology and people: a position paper from the first global research, innovation and education on assistive technology (GREAT) summit. Disability and Rehabilitation: Assistive Technology, 13(5), 437-444
Open this publication in new window or tab >>Assistive technology and people: a position paper from the first global research, innovation and education on assistive technology (GREAT) summit
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2018 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 13, no 5, p. 437-444Article in journal (Refereed) Published
Abstract [en]

Assistive technology (AT) is a powerful enabler of participation. The World Health Organization's Global Collaboration on Assistive Technology (GATE) programme is actively working towards access to assistive technology for all. Developed through collaborative work as a part of the Global Research, Innovation and Education on Assistive Technology (GREAT) Summit, this position paper provides a "state of the science" view of AT users, conceptualized as "People" within the set of GATE strategic "P"s. People are at the core of policy, products, personnel and provision. AT is an interface between the person and the life they would like to lead. People's preferences, perspectives and goals are fundamental to defining and determining the success of AT. Maximizing the impact of AT in enabling participation requires an individualized and holistic understanding of the value and meaning of AT for the individual, taking a universal model perspective, focusing on the person, in context, and then considering the condition and/or the technology. This paper aims to situate and emphasize people at the centre of AT systems: we highlight personal meanings and perspectives on AT use and consider the role of advocacy, empowerment and co-design in developing and driving AT processes.

Place, publisher, year, edition, pages
Informa Healthcare, 2018
Keywords
People, assistive technology, co-design, human rights, outcomes
National Category
Occupational Therapy
Identifiers
urn:nbn:se:oru:diva-72143 (URN)10.1080/17483107.2018.1471169 (DOI)000439032400003 ()29772940 (PubMedID)2-s2.0-85047403131 (Scopus ID)
Available from: 2019-02-06 Created: 2019-02-06 Last updated: 2019-02-18Bibliographically approved
MacLachlan, M., Banes, D., Bell, D., Borg, J., Donnelly, B., Fembek, M., . . . Hooks, H. (2018). Assistive technology policy: a position paper from the first global research, innovation, and education on assistive technology (GREAT) summit. Disability and Rehabilitation: Assistive Technology, 13(5), 454-466
Open this publication in new window or tab >>Assistive technology policy: a position paper from the first global research, innovation, and education on assistive technology (GREAT) summit
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2018 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 13, no 5, p. 454-466Article in journal (Refereed) Published
Abstract [en]

Increased awareness, interest and use of assistive technology (AT) presents substantial opportunities for many citizens to become, or continue being, meaningful participants in society. However, there is a significant shortfall between the need for and provision of AT, and this is patterned by a range of social, demographic and structural factors. To seize the opportunity that assistive technology offers, regional, national and sub-national assistive technology policies are urgently required. This paper was developed for and through discussion at the Global Research, Innovation and Education on Assistive Technology (GREAT) Summit; organized under the auspices of the World Health Organization's Global Collaboration on Assistive Technology (GATE) program. It outlines some of the key principles that AT polices should address and recognizes that AT policy should be tailored to the realities of the contexts and resources available. AT policy should be developed as a part of the evolution of related policy across a number of different sectors and should have clear and direct links to AT as mediators and moderators for achieving the Sustainable Development Goals. The consultation process, development and implementation of policy should be fully inclusive of AT users, and their representative organizations, be across the lifespan, and imbued with a strong systems-thinking ethos. Six barriers are identified which funnel and diminish access to AT and are addressed systematically within this paper. We illustrate an example of good practice through a case study of AT services in Norway, and we note the challenges experienced in less well-resourced settings. A number of economic factors relating to AT and economic arguments for promoting AT use are also discussed. To address policy-development the importance of active citizenship and advocacy, the need to find mechanisms to scale up good community practices to a higher level, and the importance of political engagement for the policy process, are highlighted. Policy should be evidence-informed and allowed for evidence-making; however, it is important to account for other factors within the given context in order for policy to be practical, authentic and actionable. Implications for Rehabilitation The development of policy in the area of asssitive technology is important to provide an overarching vision and outline resourcing priorities. This paper identifies some of the key themes that should be addressed when developing or revising assistive technology policy. Each country should establish a National Assistive Technology policy and develop a theory of change for its implementation.

Place, publisher, year, edition, pages
Informa Healthcare, 2018
Keywords
Disability, accessibility, ageing, assistive technology, economics, impairment, policy
National Category
Health Care Service and Management, Health Policy and Services and Health Economy Occupational Therapy
Identifiers
urn:nbn:se:oru:diva-71908 (URN)10.1080/17483107.2018.1468496 (DOI)000439032400005 ()29790393 (PubMedID)2-s2.0-85047242183 (Scopus ID)
Available from: 2019-02-06 Created: 2019-02-06 Last updated: 2019-02-18Bibliographically approved
Smith, R. O., Scherer, M. J., Cooper, R., Bell, D., Hobbs, D. A., Pettersson, C., . . . Bauer, S. (2018). Assistive technology products: a position paper from the first global research, innovation, and education on assistive technology (GREAT) summit. Disability and Rehabilitation: Assistive Technology, 13(5), 473-485
Open this publication in new window or tab >>Assistive technology products: a position paper from the first global research, innovation, and education on assistive technology (GREAT) summit
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2018 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 13, no 5, p. 473-485Article in journal (Refereed) Published
Abstract [en]

This paper is based on work from the Global Research, Innovation, and Education on Assistive Technology (GREAT) Summit that was coordinated by WHO's Global Cooperation on Assistive Technology (GATE). The purpose of this paper is to describe the needs and opportunities embedded in the assistive product lifecycle as well as issues relating to the various stages of assistive product mobilization worldwide. The paper discusses assistive technology product terminology and the dangers of focusing on products outside the context and rolling out products without a plan. Additionally, the paper reviews concepts and issues around technology transfer, particularly in relation to meeting global needs and among countries with limited resources. Several opportunities are highlighted including technology advancement and the world nearing a state of readiness through a developing capacity of nations across the world to successfully adopt and support the assistive technology products and applications. The paper is optimistic about the future of assistive technology products reaching the people that can use it the most and the excitement across large and small nations in increasing their own capacities for implementing assistive technology. This is expressed as hope in future students as they innovate and in modern engineering that will enable assistive technology to pervade all corners of current and potential marketplaces. Importantly, the paper poses numerous topics where discussions are just superficially opened. The hope is that a set of sequels will follow to continue this critical dialog.

Implications for Rehabilitation

  • Successful assistive technology product interventions are complex and include much more than the simple selection of the right product.
  • Assistive technology product use is highly context sensitive in terms of an individual user's environment.
  • The development of assistive technology products is tricky as it must be contextually sensitive to the development environment and market as well.
  • As a field we have much to study and develop around assistive technology product interventions from a global perspective.
Place, publisher, year, edition, pages
Informa Healthcare, 2018
Keywords
Assistive technology, global, products, technology transfer, worldwide
National Category
Production Engineering, Human Work Science and Ergonomics Occupational Therapy
Identifiers
urn:nbn:se:oru:diva-71907 (URN)10.1080/17483107.2018.1473895 (DOI)000439032400007 ()29873268 (PubMedID)2-s2.0-85048059898 (Scopus ID)
Available from: 2019-02-06 Created: 2019-02-06 Last updated: 2019-02-18Bibliographically approved
Smith, E. M., Gowran, R. J., Mannan, H., Donnelly, B., Alvarez, L., Bell, D., . . . Wu, S. (2018). Enabling appropriate personnel skill-mix for progressive realization of equitable access to assistive technology. Disability and Rehabilitation: Assistive Technology, 13(5), 445-453
Open this publication in new window or tab >>Enabling appropriate personnel skill-mix for progressive realization of equitable access to assistive technology
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2018 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 13, no 5, p. 445-453Article in journal (Refereed) Published
Abstract [en]

BACKGROUND AND METHODS: This paper reviews the current capacity of personnel in enabling access to assistive technology (AT) as well as the systems and processes within which they work, and was reviewed, discussed, and refined during and following the Global Research, Innovation, and Education in Assistive Technology (GREAT) Summit.

FINDINGS: Key concepts addressed include a person-centred team approach; sustainability indicators to monitor, measure, and respond to needs for service design and delivery; education, research, and training for competent practice, using the six rehab-workforce challenges framework; and credentialing frameworks. We propose development of a competence framework and associated education and training programs, and development and implementation of a certification framework for AT personnel.

CONCLUSIONS: There is a resolve to address the challenges faced by People globally to access assistive technology. Context specific needs assessment is required to understand the AT Personnel landscape, to shape and strengthen credentialing frameworks through competencies and certification, acknowledging both general and specific skill mix requirements.

Implications for Rehabilitation

  • Personnel in assistive technology (AT) provision should be trained using a person-centred team approach, which emphasizes appropriate skill-mix to address multiple needs within the community.
  • Sustainability indicators should be used which allow personnel to monitor, measure and respond to needs for service design and delivery.
  • A competence framework with associated education and training program, coupled with the development and implementation of a certification framework for AT personnel needs, will promote quality in AT personnel training globally.
Place, publisher, year, edition, pages
Informa Healthcare, 2018
Keywords
Personnel, assistive products, assistive technology, human resources, self-help devices, skill mix
National Category
Production Engineering, Human Work Science and Ergonomics Occupational Therapy
Identifiers
urn:nbn:se:oru:diva-72144 (URN)10.1080/17483107.2018.1470683 (DOI)000439032400004 ()29772939 (PubMedID)2-s2.0-85047115124 (Scopus ID)
Available from: 2019-02-06 Created: 2019-02-06 Last updated: 2019-02-18Bibliographically approved
Pettersson, C., Slaug, B., Granbom, M., Kylberg, M. & Iwarsson, S. (2018). Housing accessibility for senior citizens in Sweden: Estimation of the effects of targeted elimination of environmental barriers.. Scandinavian Journal of Occupational Therapy, 25(6), 407-418
Open this publication in new window or tab >>Housing accessibility for senior citizens in Sweden: Estimation of the effects of targeted elimination of environmental barriers.
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2018 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 25, no 6, p. 407-418Article in journal (Refereed) Published
Abstract [en]

AIM: To estimate the effects of targeted elimination of environmental barriers (EB) in the ordinary housing stock in Sweden, and to explore the estimated effects on accessibility at a population level in relation to (a) residents with different functional profiles, (b) different housing types and (c) building periods.

METHOD: Data on dwellings from existing Swedish research databases were utilized. EB and accessibility were assessed by means of the Housing Enabler instrument. In simulations of EB removal, five items that correspond to the most common housing adaptations were selected. The simulations were applied to four functional profiles of different complexity.

RESULT: EB known to be commonly removed by housing adaptations exist in large proportions of the existing ordinary housing stock. Estimated targeted elimination of selected barriers would have the largest accessibility effects for the more complex functional profiles. The effects would be consistently larger for one-family houses, and for all types of dwellings built before 1960.

CONCLUSIONS: The elimination of the EB most commonly addressed by housing adaptations could result in a reduction of the housing accessibility problems that community-living older people are facing. For society to solve the housing situation for the ageing population well-informed and efficient upgrading of ordinary housing is imperative.

Place, publisher, year, edition, pages
Informa Healthcare, 2018
Keywords
Public health, functional limitation, home modification, housing adaptation, occupational therapy
National Category
Architectural Engineering Occupational Therapy
Identifiers
urn:nbn:se:oru:diva-72145 (URN)10.1080/11038128.2017.1280078 (DOI)000458235400001 ()28114837 (PubMedID)2-s2.0-85010635551 (Scopus ID)
Funder
Swedish Research CouncilForte, Swedish Research Council for Health, Working Life and Welfare
Note

Funding agencies:

European Commission's Fifth Framework Programme (FP5)

Ribbingska Foundation in Lund

Strategic Research Area MultiPark at Lund University

Lund University Medical Faculty Foundation

Swedish Government Office, Stockholm, Sweden

Available from: 2019-02-06 Created: 2019-02-06 Last updated: 2019-04-24Bibliographically approved
Pettersson, C. & Iwarsson, S. (2017). Evidence-based interventions involving occupational therapists are needed in re-ablement for older community-living people: A systematic review. British Journal of Occupational Therapy, 80(5), 273-285
Open this publication in new window or tab >>Evidence-based interventions involving occupational therapists are needed in re-ablement for older community-living people: A systematic review
2017 (English)In: British Journal of Occupational Therapy, ISSN 0308-0226, E-ISSN 1477-6006, Vol. 80, no 5, p. 273-285Article in journal (Refereed) Published
Abstract [en]

Introduction: Re-ablement services are in a period of strong development, but the terms and definitions used remain unclear, and the scientific evidence is still weak. The aim of this systematic review was to obtain an overview of the scientific literature in this evolving research area, and investigate whether there is scientific evidence for positive effects of re-ablement services for older community-living people.

Method: The systematic literature search was conducted in the databases CINAHL, PubMed and Svemed + (Swemed) and covered the years 2000-2014. Owing to the heterogeneity in the included studies, a narrative synthesis was performed.

Results: Eight original publications were found eligible and included in the systematic review. When addressed, terms and definitions varied among the papers. Effects such as less use of home care, higher likelihood to live at home, improved activities of daily living (ADL) skills, quality of life and physical health, increased physical activity and lower costs compared to conventional home care were reported.

Conclusion: More high-quality research is needed to strengthen the evidence-base regarding re-ablement services. The specific roles of various professional and staff groups are often insufficiently described, as are the interventions as such, and there is a lack of attention to person-centered aspects such as the meaningfulness of the specific activities.

Place, publisher, year, edition, pages
Sage Publications, 2017
Keywords
Activity, everyday rehabilitation, restorative care, home care, occupational therapy
National Category
Occupational Therapy
Identifiers
urn:nbn:se:oru:diva-72215 (URN)10.1177/0308022617691537 (DOI)000400505100002 ()2-s2.0-85018999775 (Scopus ID)
Available from: 2019-02-07 Created: 2019-02-07 Last updated: 2019-02-14Bibliographically approved
Wijk, H., Malmqvist, I. & Pettersson, C. (2017). Space for housing and care: a study protocol. In: Proceedings of the International Conference on Advances on Sustainable Cities and Buildings Development: . Paper presented at International Conference on Advances on Sustainable Cities and Buildings Development (SB-LAB), Porto, Portugal, November 15-17, 2017. Green Lines Institute
Open this publication in new window or tab >>Space for housing and care: a study protocol
2017 (English)In: Proceedings of the International Conference on Advances on Sustainable Cities and Buildings Development, Green Lines Institute, 2017Conference paper, Published paper (Refereed)
Place, publisher, year, edition, pages
Green Lines Institute, 2017
National Category
Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-72346 (URN)
Conference
International Conference on Advances on Sustainable Cities and Buildings Development (SB-LAB), Porto, Portugal, November 15-17, 2017
Available from: 2019-02-08 Created: 2019-02-08 Last updated: 2019-04-11Bibliographically approved
Winberg, C., Kylberg, M., Pettersson, C., Harnett, T., Hedvall, P.-O., Mattsson, T. & Månsson Lexell, E. (2017). The Use of Apps for Health in Persons with Multiple Sclerosis, Parkinson's Disease and Stroke: Barriers and Facilitators. In: Cudd, P DeWitte, L (Ed.), Harnessing the Power of Technology to Improve Lives: . Paper presented at 14th Association-for-the-Advancement-of-Assistive-Technology-in-Europe (AAATE) Conference - Harnessing the Power of Technology to Improve Lives, Sheffield, England, september 12-15, 2017 (pp. 638-641). IOS Press
Open this publication in new window or tab >>The Use of Apps for Health in Persons with Multiple Sclerosis, Parkinson's Disease and Stroke: Barriers and Facilitators
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2017 (English)In: Harnessing the Power of Technology to Improve Lives / [ed] Cudd, P DeWitte, L, IOS Press, 2017, p. 638-641Conference paper, Published paper (Refereed)
Abstract [en]

Introduction: The importance of mobile health has increased during recent years but few studies have described the use of apps among persons with neurological disabilities.

Aim: The aim of this paper was to describe how persons ageing with a neurological disability experience barriers and facilitators in relation to using apps in everyday life.

Method: A qualitative approach was used. 16 persons with neurological disorders participated in two group discussions. Data were analyzed by content analysis.

Results: The analysis formed four categories; Impairments make apps harder to use, Use of apps is increased by learnability and sharing, Valuating the information in an app, and Apps act supportive and motivating.

Conclusion: The participants used apps in the same way as persons without disabilities. Impairments and trustworthiness were perceived as barriers, which need to be acknowledged when developing apps for this population. Use of apps was facilitated by the possibility to share data and to connect with others. Apps may have the potential to improve self-management for persons ageing with disabilities but further research is needed.

Place, publisher, year, edition, pages
IOS Press, 2017
Series
Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365 ; 242
National Category
Occupational Therapy Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:oru:diva-72340 (URN)10.3233/978-1-61499-798-6-638 (DOI)000439629000098 ()28873864 (PubMedID)2-s2.0-85028825058 (Scopus ID)
Conference
14th Association-for-the-Advancement-of-Assistive-Technology-in-Europe (AAATE) Conference - Harnessing the Power of Technology to Improve Lives, Sheffield, England, september 12-15, 2017
Available from: 2019-02-08 Created: 2019-02-08 Last updated: 2019-02-15Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-4863-5844

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