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Karni, Liran
Publications (4 of 4) Show all publications
Karni, L., Memedi, M. & Klein, G. O. (2019). Targeting Patient Empowerment via ICT interventions: An ICT-specific Analytical Framework. In: AMCIS 2019 Proceedings: . Paper presented at 25th Americas Conference on Information Systems (AMCIS 2019), Cancun, Mexico, August 15-17, 2019. Cancun, Mexico: Association for Information Systems
Open this publication in new window or tab >>Targeting Patient Empowerment via ICT interventions: An ICT-specific Analytical Framework
2019 (English)In: AMCIS 2019 Proceedings, Cancun, Mexico: Association for Information Systems, 2019Conference paper, Published paper (Refereed)
Abstract [en]

Empowerment of patients is today often an explicit goal of various ICT interventions where the patients themselves use ICT tools, often via the internet. This study is proposing a framework model for ICT interventions aiming to empower patients. Our new model includes different aspects of the Empowerment concept, general possible strategies to achieve Empowerment using different ICT services. Finally, the ICT services and the underlying strategic model can be used to define evaluations of such interventions where the aim is to demonstrate Empowerment. Our model is based on a review of various general models of Empowerment and the Behavioral Intervention Technology Model (BIT). The implications of our model are discussed using two case studies projects, the C3-Cloud EU project about empowering patients with 4 chronic diseases and the EMPARK project about Internet-of-Things sensors based real time feedback to Parkinson patients.

Place, publisher, year, edition, pages
Cancun, Mexico: Association for Information Systems, 2019
Keywords
Empowerment, ICT-Intervention, Framework mode
National Category
Information Systems
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-75987 (URN)2-s2.0-85084021446 (Scopus ID)
Conference
25th Americas Conference on Information Systems (AMCIS 2019), Cancun, Mexico, August 15-17, 2019
Projects
EMPARK
Funder
Knowledge Foundation
Available from: 2019-08-30 Created: 2019-08-30 Last updated: 2020-05-12Bibliographically approved
Traore, L., Assélé Kama, A., Lim Choi Keung, S., Karni, L., Klein, G. O., Lilja, M., . . . Jaulent, M.-C. (2019). User-Centered Design of the C3-Cloud Platform for Elderly with Multiple Diseases - Functional Requirements and Application Testing. Paper presented at 17th World Congress of Medical and Health Informatics (MEDINFO 2019), Lyon, France, August 25-30, 2019.. Studies in Health Technology and Informatics, 264, 843-847
Open this publication in new window or tab >>User-Centered Design of the C3-Cloud Platform for Elderly with Multiple Diseases - Functional Requirements and Application Testing
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2019 (English)In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 264, p. 843-847Article in journal (Refereed) Published
Abstract [en]

The number of patients with multimorbidity has been steadily increasing in the modern aging societies. The European C3-Cloud project provides a multidisciplinary and patient-centered “Collaborative Care and Cure-system” in the management of elderly with multimorbidity, enabling continous coordination of care activities between multidisciplinary care teams (MDTs), patients and informal care givers (ICG). In this paper, we report how various components of the infrastructure were tested to fulfill the functional requirements and how the entire system was subjected to an early application testing involving different groups of end-users. MDTs from participating European regions were involved in requirement elicitation and test formulation, resulting in 57 questions, distributed via an internet platform, to 48 test participants (22 MDTs, 26 patients) from three pilot sites. The results indicate an overall high level of satisfaction for all Information and Communication Technologie (ICT) components among the users. The early testing also provided user feedback important to consider for technical improvement of the entire system. 

Place, publisher, year, edition, pages
IOS Press, 2019
Keywords
Evaluation Studies, Multimorbidity, User-computer Interface
National Category
Health Sciences Information Systems, Social aspects
Identifiers
urn:nbn:se:oru:diva-76079 (URN)10.3233/SHTI190342 (DOI)31438043 (PubMedID)2-s2.0-85071462253 (Scopus ID)978-1-64368-002-6 (ISBN)978-1-64368-003-3 (ISBN)
Conference
17th World Congress of Medical and Health Informatics (MEDINFO 2019), Lyon, France, August 25-30, 2019.
Funder
EU, Horizon 2020, 689181
Note

This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 689181. Project website: http://c3-cloud.eu/ 

Available from: 2019-09-04 Created: 2019-09-04 Last updated: 2020-01-31Bibliographically approved
Karni, L., Memedi, M., Kolkowska, E. & Klein, G. O. (2018). EMPARK: Internet of Things for Empowerment and Improved Treatment of Patients with Parkinson's Disease. In: : . Paper presented at International Congress of Parkinson´s Disease and Movement Disorders, Hong Kong, People's Republic of China, 5-9 October, 2018. John Wiley & Sons
Open this publication in new window or tab >>EMPARK: Internet of Things for Empowerment and Improved Treatment of Patients with Parkinson's Disease
2018 (English)Conference paper, Poster (with or without abstract) (Other (popular science, discussion, etc.))
Abstract [en]

Objective: This study aims to assess the effects of patient-directed feedback from remote symptom, medication, and disease activity monitoring on patient empowerment and treatment in Parkinson’s disease (PD).

Background: There is a need to empower patients with PD to be able to understand better and control their disease using prescribed medication and following recommendations on lifestyle. The research project EMPARK will develop an Internet of Things system of sensors, mobile devices to deliver real-time, 24/7 patient symptom information with the primary goal to support PD patients empowerment and better understanding of their disease. The system will be deployed in patient homes to continuously measure movements, time-in-bed and drug delivery from a micro-dose levodopa system. Subjective symptom scoring, time of meals and physical activities will be reported by the patients via a smartphone application. Interfaces for patients and clinicians are being developed based on the user center design methodology to ensure maximal user acceptance. 

Methods: This is a randomized controlled trial where 30 PD patients from 2 university clinics in Sweden will be randomized to receive (intervention group) or not (control group) continuous feedback from the results of the EMPARK home monitoring for 2 weeks. Disease-specific (UPDRS, PDQ-39), Quality of Life (QoL) (modified EuroQoL EQ-5D) and empowerment questionnaires will be collected prior and after the intervention. The correlation of technology-based objective and patient-reported subjective parameters will be assessed in both groups. Interviews will be conducted with the clinicians and observations will be made about the patient-clinician interaction to assess the potential treatment benefits of the intervention.

Results: Preliminary results from workshops with patients and clinicians show potential to improve patient empowerment and disease control among patients. Completion of the trial will show the degree of patient empowerment, individualized treatment, and patientclinician interactions.

Conclusions: Raising patients’ awareness about disease activity and home medication is possible among PD patients by providing them with feedback from the results of a home monitoring system. This randomized, controlled trial aims to provide evidence that this approach leads to improved patient empowerment and treatment results.

Place, publisher, year, edition, pages
John Wiley & Sons, 2018
National Category
Computer and Information Sciences
Research subject
Informatics
Identifiers
urn:nbn:se:oru:diva-69955 (URN)
Conference
International Congress of Parkinson´s Disease and Movement Disorders, Hong Kong, People's Republic of China, 5-9 October, 2018
Funder
Knowledge Foundation
Available from: 2018-10-30 Created: 2018-10-30 Last updated: 2018-11-14Bibliographically approved
Alexopoulou, S., Fart, F., Jonsson, A.-S., Karni, L., Kenalemang, L. M., Krishna, S., . . . Widell, B. (2018). Successful ageing in an interdisciplinary context: popular science presentations. Örebro: Örebro University
Open this publication in new window or tab >>Successful ageing in an interdisciplinary context: popular science presentations
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2018 (English)Book (Other (popular science, discussion, etc.))
Place, publisher, year, edition, pages
Örebro: Örebro University, 2018. p. 127
National Category
Gerontology, specialising in Medical and Health Sciences Other Social Sciences not elsewhere specified
Identifiers
urn:nbn:se:oru:diva-66306 (URN)978-91-87789-18-2 (ISBN)
Available from: 2018-04-03 Created: 2018-04-03 Last updated: 2019-03-26Bibliographically approved
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