oru.sePublikasjoner
Endre søk
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Ändlös omsorg och utmätt hälsa: Föräldraskapets paradoxer när ett vuxet barn har långvarig psykisk sjukdom
Örebro universitet, Institutionen för hälsovetenskap och medicin.
2014 (svensk)Doktoravhandling, med artikler (Annet vitenskapelig)
Abstract [en]

The overall aim of this thesis was to deepen knowledge of what it means to be a parent of an adult child who suffers from long-term mental illness. Data collection in studies I-III consisted of qualitative interviews with 26 parents. In study I, 16 mothers and, in study II, 10 fathers were interviewed about the way in which their everyday life was affected when an adult child suffers from long-term mental illness. Data were analysed using qualitative content analysis. In study III, the same 26 parents participated as in studies I-II. The aim of the study was to investigate parents’ conceptions of the mental health care. Data were analysed by means of the phenomenographic method. Study IV is based on questionnaires completed by 151 parents. The aim was to investigate mothers’ and fathers’ health related quality of life (HRQOL) focusing on self-rated symptoms of anxiety, depression and burden as well as their experiences of encounters with the mental health services. Data were analysed for the most part by means of non-parametric method.

The mothers’ everyday life was characterized by constant preparedness to adapt their life situation to the needs of their child (I). The fathers’ inherent ongoing struggle to ensure the child’s well-being required both strength and courage. Fathers attempted to maintain a good balance in life; this balancing act depended on collaboration between those involved in the child’s life, the family, the healthcare services and other authorities (II). The parents described feeling excluded from professional care and questioned its quality and accessibility (III). Mothers’ self-rated HRQOL was lower and they were also affected by burden and mental ill health to a greater extent than the fathers (IV).

The results highlight shortcomings in the interaction between parents and mental health professionals. This highlights the importance of interventions that support and strengthen cooperation between parents and mental health professionals in the care of children who suffer from mental illness.

sted, utgiver, år, opplag, sider
Örebro: Örebro university , 2014. , 79 s.
Serie
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 53
Emneord [en]
parent, mother, father, adult child, mental illness, mental healthcare, health-related quality of life
HSV kategori
Forskningsprogram
Vårdvetenskap
Identifikatorer
URN: urn:nbn:se:oru:diva-34609ISBN: 978-91-7529-016-4 (tryckt)OAI: oai:DiVA.org:oru-34609DiVA: diva2:710765
Disputas
2014-05-16, Prismahuset, Hörsal 2, Örebro universitet, Fakultetsgatan 1, Örebro, 13:00 (svensk)
Opponent
Tilgjengelig fra: 2014-04-08 Laget: 2014-04-08 Sist oppdatert: 2017-10-17bibliografisk kontrollert
Delarbeid
1. Mothers' Everyday Experiences of Having an Adult Child Who Suffers from Long-Term Mental Illness
Åpne denne publikasjonen i ny fane eller vindu >>Mothers' Everyday Experiences of Having an Adult Child Who Suffers from Long-Term Mental Illness
2010 (engelsk)Inngår i: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 31, nr 11, 692-699 s.Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

This paper aims to describe everyday life experiences of mothers who have an adult child with a long-term mental illness. Sixteen mothers were interviewed. A content analysis resulted in one main theme: My adult child who is struggling with mental illness is always on my mind, and three subthemes: (1) living a life under constant strain, (2) living with an emotional burden, and (3) seeing light in the darkness despite difficulties. Knowledge of mothers’ everyday life experiences is of great importance in order to support them and thereby increase the possibility of these mothers being a source of strength for their child.

HSV kategori
Forskningsprogram
Omvårdnadsvetenskap
Identifikatorer
urn:nbn:se:oru:diva-27597 (URN)10.3109/01612840.2010.515768 (DOI)20936890 (PubMedID)2-s2.0-77958097228 (Scopus ID)
Tilgjengelig fra: 2013-03-22 Laget: 2013-02-16 Sist oppdatert: 2017-12-06bibliografisk kontrollert
2. Fathers’ everyday experiences of having an adult child who suffers from long-term mental illness
Åpne denne publikasjonen i ny fane eller vindu >>Fathers’ everyday experiences of having an adult child who suffers from long-term mental illness
2012 (engelsk)Inngår i: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 3, nr 2, 109-117 s.Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

The purpose of this study is to describe the everyday life experiences of fathers of adult children who have various forms of long-term mental illness. Ten fathers were interviewed. Content analysis revealed one main theme: Maintaining a strong façade while balancing on a thin line, and two sub-themes: (1) A constant struggle and (2) A feeling of powerlessness. The fathers demonstrated great engagement and good will to participate in their child's life. A sense of powerlessness and frustration at not having or being allowed freedom of action emerged. Cooperation between children, parents, the care service providers, and the authorities could increase the parents’ abilities to provide adequate support to the child as well as helping them to understand and make the incomprehensible manageable.

sted, utgiver, år, opplag, sider
Philadelphia, USA: Taylor & Francis, 2012
HSV kategori
Forskningsprogram
Medicin
Identifikatorer
urn:nbn:se:oru:diva-27598 (URN)10.3109/01612840.2011.627106 (DOI)22273345 (PubMedID)2-s2.0-84856368647 (Scopus ID)
Tilgjengelig fra: 2013-03-22 Laget: 2013-02-16 Sist oppdatert: 2017-12-06bibliografisk kontrollert
3. Conceptions of mental health care: from the perspective of parents’ of adult children suffering from mental illness
Åpne denne publikasjonen i ny fane eller vindu >>Conceptions of mental health care: from the perspective of parents’ of adult children suffering from mental illness
2014 (engelsk)Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, nr 3, 496-504 s.Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

The aim of this study was to describe parents' conceptions of the mental health care provided to adult children suffering from mental illness. Data were collected using qualitative research interviews with a purposive sample of sixteen mothers and ten fathers. Phenomenographic analysis was used to identify conceptions and formulate descriptive categories. The first category, questioning the availability of care, describes mental health care as being unequal in terms of accessibility and lacking in continuity. The second category, disapproval of parental exclusion, illustrates conceptions that mental healthcare professionals disregard parents and do not provide them with adequate information. The third category, questioning the quality of care, encompasses conceptions of lack of trust in the professionals' competence, an unsatisfactory environment as well as inadequate cooperation with other healthcare providers and authorities. Positive aspects, such as being seen and confirmed, were mentioned as valuable by the parents.

sted, utgiver, år, opplag, sider
Wiley-Blackwell, 2014
Emneord
mother, father, parent, adult child, mental illness, mental health care, phenomenography.
HSV kategori
Forskningsprogram
Hälso- och sjukvårdsforskning; Vårdvetenskap
Identifikatorer
urn:nbn:se:oru:diva-34617 (URN)10.1111/scs.12074 (DOI)000340288100009 ()23980612 (PubMedID)2-s2.0-84904999092 (Scopus ID)
Merknad

Accepterad juli 2013.

In thesis named "Parents’ conceptions of adult mental health care: aphenomenographic study"

Tilgjengelig fra: 2014-04-08 Laget: 2014-04-08 Sist oppdatert: 2017-12-05bibliografisk kontrollert
4. Health-Related Quality of Life – from the perspective of mothers and fathers of adult children suffering from longterm mental disorders
Åpne denne publikasjonen i ny fane eller vindu >>Health-Related Quality of Life – from the perspective of mothers and fathers of adult children suffering from longterm mental disorders
Vise andre…
(engelsk)Artikkel i tidsskrift (Fagfellevurdert) Submitted
HSV kategori
Identifikatorer
urn:nbn:se:oru:diva-34618 (URN)
Tilgjengelig fra: 2014-04-08 Laget: 2014-04-08 Sist oppdatert: 2017-10-17bibliografisk kontrollert

Open Access i DiVA

Inledningskapitel(781 kB)566 nedlastinger
Filinformasjon
Fil FULLTEXT02.pdfFilstørrelse 781 kBChecksum SHA-512
1bf2e38ea5f7d5e6e299e5baf6c8a8a998467a088ec89a97b98e85bf10d28751ac4b0bf1265df9998e0295cf4bd92ce0686318957785d65dc19f510893dcd5d1
Type fulltextMimetype application/pdf
Omslag(107 kB)67 nedlastinger
Filinformasjon
Fil COVER01.pdfFilstørrelse 107 kBChecksum SHA-512
5f7a826b519d0c687124af6228d3353377774d454619e43b59e95758a1fc603438d5465b51c7de521af9280065369a65e3fdbe1e843646d7a02ad5bd44b75dc9
Type coverMimetype application/pdf
Spikblad(51 kB)27 nedlastinger
Filinformasjon
Fil SPIKBLAD01.pdfFilstørrelse 51 kBChecksum SHA-512
2ea1ebddcd7608bc5b6e0e75caf79ccd0831056a29692d5e1daba975a12da32e7433eb52e3b3e0853985f8886a18db4b1ff6b2f0560bf8e55312c6b069e2531f
Type spikbladMimetype application/pdf

Personposter BETA

Anita, Johansson

Søk i DiVA

Av forfatter/redaktør
Anita, Johansson
Av organisasjonen

Søk utenfor DiVA

GoogleGoogle Scholar
Totalt: 566 nedlastinger
Antall nedlastinger er summen av alle nedlastinger av alle fulltekster. Det kan for eksempel være tidligere versjoner som er ikke lenger tilgjengelige

isbn
urn-nbn

Altmetric

isbn
urn-nbn
Totalt: 2261 treff
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf