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Effects of a self-management program on patient participation in patients with chronic heart failure or chronic obstructive pulmonary disease: a randomised controlled trial
Örebro University, School of Health Sciences.
Linköping University, Sweden; Uppsala University, Uppsala, Sweden.
Centre for Clinical Research, County Council of Värmland, Karlstad, Sweden.
Örebro University, School of Health Sciences.ORCID iD: 0000-0001-5418-3154
(English)Manuscript (preprint) (Other academic)
National Category
Other Health Sciences
Identifiers
URN: urn:nbn:se:oru:diva-66492OAI: oai:DiVA.org:oru-66492DiVA, id: diva2:1196670
Available from: 2018-04-10 Created: 2018-04-10 Last updated: 2018-04-10Bibliographically approved
In thesis
1. Patient participation from the patient's preferences, that's what counts
Open this publication in new window or tab >>Patient participation from the patient's preferences, that's what counts
2018 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Patient participation is a core element in legislation in most western countries today. From the patient’s perspective, patient participation includes respect, equality, sharing of knowledge, joint planning, and self-management. However, participation is not always experienced, and the patient’s experiences and preferences are seldom mapped.

The general aim of this thesis was to enhance the knowledge on patient participation from the preferences of patients with long-term conditions in outpatient healthcare by evaluating a measure (The Patient Preferences for Patient Participation: the 4Ps) on patient participation and by investigating a self-management programme’s impact on patient participation.

Qualitative evaluations of the 4Ps included Think Aloud interviews with patient experts (n = 11) and research experts (n = 10) in Study I. Psychometric evaluations were performed in Study II (n = 108) and after amendments in Study III (n = 150). Effects of the self-management programme on patient participation were investigated in a randomised controlled trial with the 4Ps as the outcome measure in Study III (n = 118), and in Study IV were influences investigated qualitatively in nine focus group interviews (n = 36).

The 4Ps was found to be sufficiently valid and reliable. As measured with the 4Ps, patients with long-term conditions had both set preferences in and experiences of patient participation, regardless of randomised to a self-management programme or not. Qualitatively the programme was found to include patient participation and to influence self-management.

The use of diverse methods was beneficial and complementary. The sufficiently valid and reliable 4Ps can fil the gap of a measure to map preferences for and experiences of patient participation. Patients with long-term conditions have set preferences for participation. The self-management programme can be applied to influence participation and future responsibilities.

Place, publisher, year, edition, pages
Örebro: Örebro University, 2018. p. 95
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 74
Keywords
Patient Participation, Patient Preferences, Measure, Content Analysis, Psychometric Evaluations, Self-Management, Long-Term Conditions
National Category
Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-65314 (URN)978-91-7529-241-0 (ISBN)
Public defence
2018-05-04, Örebro universitet, Prismahuset, Hörsal 1, Fakultetsgatan 1, Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2018-02-28 Created: 2018-02-28 Last updated: 2018-04-10Bibliographically approved

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Luhr, KristinaHolmefur, Marie

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
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  • modern-language-association-8th-edition
  • vancouver
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More styles
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  • de-DE
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  • en-US
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  • Other locale
More languages
Output format
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  • asciidoc
  • rtf