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Health, work, social trust, and financial situation in persons with Usher syndrome type 1
Örebro universitet, Institutionen för hälsovetenskaper. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden; Linneus HEAD centre, The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden.
Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden; Linneus HEAD centre, The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden.ORCID-id: 0000-0002-6965-6820
Örebro universitet, Institutionen för hälsovetenskaper. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden; Linneus HEAD centre, The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden.ORCID-id: 0000-0003-2690-6989
Linneus HEAD centre, The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden; Swedish Institute for Disability Research, Linköping University, Linköping, Sweden; Department of Behavioral Sciences and Learning, Linköping University, Linköping, Sweden .
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2018 (Engelska)Ingår i: Work: A journal of Prevention, Assessment and rehabilitation, ISSN 1051-9815, E-ISSN 1875-9270, Vol. 60, nr 2, s. 209-220Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

BACKGROUND: Research has demonstrated that persons with Usher syndrome type 1 (USH1) have significantly poorer physical and psychological health compared to a reference group.

PURPOSE: To explore the relation between work, health, social trust, and financial situation in USH1 compared to a reference group.

MATERIAL: Sixty-six persons (18-65 y) from the Swedish Usher database received a questionnaire and 47 were included, 23 working and 24 non-working. The reference group comprised 3,049 working and 198 non-working persons.

METHODS: The Swedish Health on Equal Terms questionnaire was used and statistical analysis with multiple logistic regression was conducted.

RESULTS: The USH1 non-work group had a higher Odds ratio (95% CI) in poor psychological and physical health, social trust, and financial situation compared to the USH1 work group and reference groups. Age, gender, hearing, and vision impairment did not explain the differences. The relation between the USH1 work and non-work groups showed the same pattern as the reference groups, but the magnitude of problems was significantly higher.

CONCLUSIONS: Both disability and unemployment increased the risk of poor health, social trust and financial situation in persons with USH1, but having an employment seemed to counteract the risks related to disability.

Ort, förlag, år, upplaga, sidor
IOS Press, 2018. Vol. 60, nr 2, s. 209-220
Nyckelord [en]
Employment, working life, health, psychological health, dual sensory loss, deafblindness
Nationell ämneskategori
Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi
Identifikatorer
URN: urn:nbn:se:oru:diva-68163DOI: 10.3233/WOR-182731ISI: 000436889900006PubMedID: 29865098Scopus ID: 2-s2.0-85049496022OAI: oai:DiVA.org:oru-68163DiVA, id: diva2:1235461
Forskningsfinansiär
Vetenskapsrådet
Anmärkning

Funding Agency:

Örebro University

Tillgänglig från: 2018-07-25 Skapad: 2018-07-25 Senast uppdaterad: 2020-03-11Bibliografiskt granskad
Ingår i avhandling
1. Life Strategies, Work and Health in People with Usher Syndrome
Öppna denna publikation i ny flik eller fönster >>Life Strategies, Work and Health in People with Usher Syndrome
2020 (Engelska)Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
Abstract [en]

Introduction: People with Usher syndrome (USH) have an inherited disorder causing congenital deafness or hearing loss combined with progressive vision loss and, in some cases, balance problems. Previous research has shown that people with USH have poor physical and psychological health. Research has, however, demonstrated that there are in-group health differences that have not yet been explored and that there is a lack of studies on life strategies as well as health in relation to working life.

Aim: The aim was to explore the relationship between work and health in people with USH1 and 2 and to explore the experiences of life strategies in people with USH 2.

Methods: A quantitative and a qualitative explorative design was employed comprising two cross-sectional studies of the relationship between work and health in people with USH2 (n=67) and USH1 (n=47). The third study, of life strategies, comprised focus group interviews with people with USH2a (n=14) analyzed by content analysis. The fourth study explored the lived experiences of working life by interviewing people with USH2 (n=7) using an interpretative phenomenological approach.

Results: Study 1 and 2 demonstrated significant differences in health between working and nonworking people. Nonworking people showed significantly poorer health. In study 3, a variety of strategies to prevent and resolve challenges in life, as well as to comfort oneself was identified. The lived experiences of working life in people with USH2 (study 4) disclosed feelings of satisfaction, striving towards a work life balance. Work also disclosed feelings of limitations and uncertainty about the future.

Conclusion: The results, which are discussed in relation to the Meikirsh model of health, demonstrated a complexity. Individual life strategies, psychological flexibility and environmental aspects, such as social determinants have to be considered to receive a comprehensive picture of the relationship between work and health in people with USH. This thesis provides new insights into the health of people with USH.

Ort, förlag, år, upplaga, sidor
Örebro: Örebro University, 2020. s. 81
Serie
Studies from The Swedish Institute for Disability Research, ISSN 1650-1128 ; 99
Nyckelord
Deafblindnesss, health, life strategies, lived experience, Usher syndrome, work
Nationell ämneskategori
Annan hälsovetenskap
Identifikatorer
urn:nbn:se:oru:diva-78667 (URN)978-91-7529-322-6 (ISBN)
Disputation
2020-02-28, Örebro universitet, Campus USÖ, hörsal C2, Södra Grev Rosengatan 32, Örebro, 10:00 (Svenska)
Opponent
Handledare
Anmärkning

Kerstin Möller och Berth Danermark är före detta ej längre aktiva handledare.

Tillgänglig från: 2019-12-16 Skapad: 2019-12-16 Senast uppdaterad: 2020-02-06Bibliografiskt granskad

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Ehn, MattiasWahlqvist, MoaDanermark, BerthMöller, Claes

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Work: A journal of Prevention, Assessment and rehabilitation
Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi

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