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Dealing with ethical and existential issues at end of life through co-creation
Åbo Akademi University, Vaasa, Finland.
Örebro universitet, Institutionen för hälsovetenskaper.
2019 (Engelska)Ingår i: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, artikel-id UNSP 0969733019874496Artikel i tidskrift (Refereegranskat) Epub ahead of print
Abstract [en]

Background: In research on co-creation in nursing, a caring manner can be used to create opportunities for the patient to reach vital goals and thereby increase the patient's quality of life in palliative home care. This can be described as an ethical cornerstone and the goal of palliative care. Nurses must be extra sensitive to patients' and their relatives' needs with regard to ethical and existential issues and situations in home care encounters, especially at the end of life.

Aim: The aim of this study was to explore nurses' experiences of dealing with ethical and existential issues through co-creation at the end of life in palliative home care.

Research design, participants, and research context: The material consisted of texts from interviews with 12 nurses in a home care context. A hermeneutical approach was used, and the method was inspired by a thematic analysis.

Ethical considerations: Informed consent was sought from the participants regarding study participation and the storage and handling of data for research purposes. Ethical permission to conduct the study was given from organizations that participated in this study.

Findings: A main theme and four subthemes emerged. The main theme was "Deep co-creative relationships are needed to manage ethical and existential issues at the end of life." A model was created to display the findings and relations between ethical issues and situations and the need for a deep trustful caring relationship to solve problems in palliative home care.

Discussion: Together, the themes can be considered as a tool for learning and dealing with ethical and existential issues at the end of life in home care. The themes can also be seen as a part of nurses' ethical competence within this context.

Conclusion: The quality of life at the end of life can be improved through co-creation, despite difficult ethical and existential issues. Future research should focus on co-creation from the patients' perspective.

Ort, förlag, år, upplaga, sidor
Sage Publications, 2019. artikel-id UNSP 0969733019874496
Nyckelord [en]
Co-creation, end-of-life care, ethical issues, hermeneutics, nurses, palliative home care, thematic analysis
Nationell ämneskategori
Omvårdnad Medicinsk etik
Identifikatorer
URN: urn:nbn:se:oru:diva-77441DOI: 10.1177/0969733019874496ISI: 000488427100001PubMedID: 31522601OAI: oai:DiVA.org:oru-77441DiVA, id: diva2:1362153
Tillgänglig från: 2019-10-18 Skapad: 2019-10-18 Senast uppdaterad: 2019-10-18Bibliografiskt granskad

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Bergdahl, Elisabeth

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