To Örebro University

oru.seÖrebro University Publications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Patient preferences for patient participation: Psychometric evaluation of The 4Ps tool in patients with chronic heart or lung disorders
Örebro University, School of Health Sciences. University Health Care Research Center, Region Örebro County, Örebro, Sweden.
School of Education, Health and Social Studies, Dalarna University, Falun, Sweden; Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.
Örebro University, School of Health Sciences.ORCID iD: 0000-0001-5403-4183
Örebro University, School of Health Sciences.ORCID iD: 0000-0001-5418-3154
2018 (English)In: Nordic journal of nursing research, ISSN 2057-1585, E-ISSN 2057-1593, Vol. 38, no 2, p. 68-76Article in journal (Refereed) Published
Abstract [en]

The Patient Preferences for Patient Participation tool (The 4Ps) was developed to aid clinical dialogue and to help patients to 1) depict, 2) prioritise, and 3) evaluate patient participation with 12 pre-set items reiterated in the three sections. An earlier qualitative evaluation of The 4Ps showed promising results. The present study is a psychometric evaluation of The 4Ps in patients with chronic heart or lung disease (n¼108) in primary and outpatient care. Internal scale validity was evaluated using Rasch analysis, and two weeks test–retest reliability of the three sections using kappa/weighted kappa and a prevalence- and bias-adjusted kappa. The 4Ps tool was found to be reasonably valid with a varied reliability. Proposed amendments are rephrasing of two items, and modifications of the rating scale in Section 2. The 4Ps is suggested for use to increase general knowledge of patient participation, but further studies are needed with regards to its implementation.

Place, publisher, year, edition, pages
Sage Publications, 2018. Vol. 38, no 2, p. 68-76
Keywords [en]
Chronic heart failure, chronic obstructive pulmonary disease, clinical tool, instrument testing, patient participation
National Category
Health Sciences Nursing Other Health Sciences
Identifiers
URN: urn:nbn:se:oru:diva-66035DOI: 10.1177/2057158517713156Scopus ID: 2-s2.0-85132305747OAI: oai:DiVA.org:oru-66035DiVA, id: diva2:1192837
Available from: 2018-03-23 Created: 2018-03-23 Last updated: 2023-12-08Bibliographically approved
In thesis
1. Patient participation from the patient's preferences, that's what counts
Open this publication in new window or tab >>Patient participation from the patient's preferences, that's what counts
2018 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Patient participation is a core element in legislation in most western countries today. From the patient’s perspective, patient participation includes respect, equality, sharing of knowledge, joint planning, and self-management. However, participation is not always experienced, and the patient’s experiences and preferences are seldom mapped.

The general aim of this thesis was to enhance the knowledge on patient participation from the preferences of patients with long-term conditions in outpatient healthcare by evaluating a measure (The Patient Preferences for Patient Participation: the 4Ps) on patient participation and by investigating a self-management programme’s impact on patient participation.

Qualitative evaluations of the 4Ps included Think Aloud interviews with patient experts (n = 11) and research experts (n = 10) in Study I. Psychometric evaluations were performed in Study II (n = 108) and after amendments in Study III (n = 150). Effects of the self-management programme on patient participation were investigated in a randomised controlled trial with the 4Ps as the outcome measure in Study III (n = 118), and in Study IV were influences investigated qualitatively in nine focus group interviews (n = 36).

The 4Ps was found to be sufficiently valid and reliable. As measured with the 4Ps, patients with long-term conditions had both set preferences in and experiences of patient participation, regardless of randomised to a self-management programme or not. Qualitatively the programme was found to include patient participation and to influence self-management.

The use of diverse methods was beneficial and complementary. The sufficiently valid and reliable 4Ps can fil the gap of a measure to map preferences for and experiences of patient participation. Patients with long-term conditions have set preferences for participation. The self-management programme can be applied to influence participation and future responsibilities.

Place, publisher, year, edition, pages
Örebro: Örebro University, 2018. p. 95
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 74
Keywords
Patient Participation, Patient Preferences, Measure, Content Analysis, Psychometric Evaluations, Self-Management, Long-Term Conditions
National Category
Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-65314 (URN)978-91-7529-241-0 (ISBN)
Public defence
2018-05-04, Örebro universitet, Prismahuset, Hörsal 1, Fakultetsgatan 1, Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2018-02-28 Created: 2018-02-28 Last updated: 2018-04-10Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textScopus

Authority records

Luhr, KristinaNilsson, UlricaHolmefur, Marie

Search in DiVA

By author/editor
Luhr, KristinaNilsson, UlricaHolmefur, Marie
By organisation
School of Health Sciences
In the same journal
Nordic journal of nursing research
Health SciencesNursingOther Health Sciences

Search outside of DiVA

GoogleGoogle Scholar

doi
urn-nbn

Altmetric score

doi
urn-nbn
Total: 477 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf