oru.sePublications
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
EMPARK: Internet of Things for Empowerment and Improved Treatment of Patients with Parkinson's Disease
Örebro University, Örebro University School of Business.
Örebro University, Örebro University School of Business.ORCID iD: 0000-0002-2372-4226
Örebro University, Örebro University School of Business.
Örebro University, Örebro University School of Business.ORCID iD: 0000-0002-1337-2394
2018 (English)Conference paper, Poster (with or without abstract) (Other (popular science, discussion, etc.))
Resource type
Text
Abstract [en]

Objective: This study aims to assess the effects of patient-directed feedback from remote symptom, medication, and disease activity monitoring on patient empowerment and treatment in Parkinson’s disease (PD).

Background: There is a need to empower patients with PD to be able to understand better and control their disease using prescribed medication and following recommendations on lifestyle. The research project EMPARK will develop an Internet of Things system of sensors, mobile devices to deliver real-time, 24/7 patient symptom information with the primary goal to support PD patients empowerment and better understanding of their disease. The system will be deployed in patient homes to continuously measure movements, time-in-bed and drug delivery from a micro-dose levodopa system. Subjective symptom scoring, time of meals and physical activities will be reported by the patients via a smartphone application. Interfaces for patients and clinicians are being developed based on the user center design methodology to ensure maximal user acceptance. 

Methods: This is a randomized controlled trial where 30 PD patients from 2 university clinics in Sweden will be randomized to receive (intervention group) or not (control group) continuous feedback from the results of the EMPARK home monitoring for 2 weeks. Disease-specific (UPDRS, PDQ-39), Quality of Life (QoL) (modified EuroQoL EQ-5D) and empowerment questionnaires will be collected prior and after the intervention. The correlation of technology-based objective and patient-reported subjective parameters will be assessed in both groups. Interviews will be conducted with the clinicians and observations will be made about the patient-clinician interaction to assess the potential treatment benefits of the intervention.

Results: Preliminary results from workshops with patients and clinicians show potential to improve patient empowerment and disease control among patients. Completion of the trial will show the degree of patient empowerment, individualized treatment, and patientclinician interactions.

Conclusions: Raising patients’ awareness about disease activity and home medication is possible among PD patients by providing them with feedback from the results of a home monitoring system. This randomized, controlled trial aims to provide evidence that this approach leads to improved patient empowerment and treatment results.

Place, publisher, year, edition, pages
John Wiley & Sons, 2018.
National Category
Computer and Information Sciences
Research subject
Informatics
Identifiers
URN: urn:nbn:se:oru:diva-69955OAI: oai:DiVA.org:oru-69955DiVA, id: diva2:1259714
Conference
International Congress of Parkinson´s Disease and Movement Disorders, Hong Kong, People's Republic of China, 5-9 October, 2018
Funder
Knowledge FoundationAvailable from: 2018-10-30 Created: 2018-10-30 Last updated: 2018-11-14Bibliographically approved

Open Access in DiVA

EMPARK - Internet of Things for Patient Empowerment and Improved Treatment in Parkinson´s Disease(1809 kB)8 downloads
File information
File name FULLTEXT01.pdfFile size 1809 kBChecksum SHA-512
ca9935fde0c013c4c8bbb0dc083867beb8f9059a8267da5ce4dc7886ec140ec67ec2537109821bc2bd82cbf895616472b8dc06fee816f8338d2a50cf317f3942
Type fulltextMimetype application/pdf

Authority records BETA

Karni, LiranMemedi, MevludinKolkowska, EllaKlein, Gunnar O.

Search in DiVA

By author/editor
Karni, LiranMemedi, MevludinKolkowska, EllaKlein, Gunnar O.
By organisation
Örebro University School of Business
Computer and Information Sciences

Search outside of DiVA

GoogleGoogle Scholar
Total: 8 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

urn-nbn

Altmetric score

urn-nbn
Total: 76 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf