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Validation of the Swedish Multiple Sclerosis Register Further Improving a Resource for Pharmacoepidemiologic Evaluations
Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden.
Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden; Academic Specialist Center, Stockholm Health Services, Stockholm, Sweden; Department of Neurology, Karolinska University Hospital, Stockholm, Sweden.
Clinical and Translational Neuroscience, Southern Clinical and Translational Neuroscience, Southern California Permanente Medical Group, Kaiser Permanente, Pasadena CA, USA.
Clinical Epidemiology Division, Department of Medicine Solna, Karolinska Institutet, Stockholm, Sweden.
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2019 (English)In: Epidemiology, ISSN 1044-3983, E-ISSN 1531-5487, Vol. 30, no 2, p. 230-233Article in journal (Refereed) Published
Abstract [en]

The Swedish Multiple Sclerosis Register is a national register monitoring treatment and clinical course for all Swedish multiple sclerosis (MS) patients, with high coverage and close integration with the clinic. Despite its great value for epidemiologic research, it has not previously been validated. In this brief report, we summarize a large validation of >3,000 patients in the register using clinical chart review in the context of the COMBAT-MS study. While further improving the data quality for a central cohort of patients available for future epidemiologic research, this study also allowed us to estimate the accuracy and completeness of the register data.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2019. Vol. 30, no 2, p. 230-233
Keywords [en]
Multiple sclerosis, Pharmacoepidemiology, Register, Validation
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:oru:diva-72870DOI: 10.1097/EDE.0000000000000948ISI: 000458417200017PubMedID: 30721167Scopus ID: 2-s2.0-85061114400OAI: oai:DiVA.org:oru-72870DiVA, id: diva2:1292897
Note

Funding Agencies:

Patient-Centered Outcomes Research Institute (PCORI) Award  MS-1511-33196 

Swedish Foundation for MS Research  

Biogen  

Roche  

Biogen Idec  

Genzyme  

Novartis 

Available from: 2019-03-01 Created: 2019-03-01 Last updated: 2019-03-01Bibliographically approved

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Gunnarsson, Martin

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CiteExportLink to record
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