oru.sePublikationer
Ändra sökning
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Long-term ophthalmic health care in Usher syndrome type I from an ICF perspective
Örebro universitet, Hälsoakademin.
Örebro universitet, Hälsoakademin.ORCID-id: 0000-0001-6557-6359
Visa övriga samt affilieringar
2009 (Engelska)Ingår i: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 31, nr 15, s. 1283-1292Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

 

PURPOSE: The aim was to explore ophthalmic health care in female patients with Usher Syndrome type I (USH I) over 20 years and to evaluate the relationship between the ophthalmic health care and the health state of the patients from a health perspective. METHODS: A retrospective study of records from ophthalmology departments (OD) and low vision clinics (LVC) from 1985 to 2004. Assessment of the reports was performed based on the International Classification of Functioning, Disability and Health (ICF). Findings were analysed by manifest content analysis with ICF as a framework and using four themes: health care system, procedure examinations, patient's functioning and disability and procedure actions. RESULTS: The records of nine female patients (aged 25-39 years, 1985) with USH I were selected from the national database of USH. A great number of notes were collected (OD 344 and LVC 566). Procedure examinations were exclusively oriented towards body structure and function. All patients showed aggravated visual impairment over and above the hearing and vestibular impairment. Procedure actions were oriented towards environmental factors. No correlation was found between procedures performed and patient's experience of disability. CONCLUSIONS: The high degree of resource allocation was not correlated to the patients' impairment. The study indicates that the ophthalmic health care was characterised by inefficiency. This conclusion is very serious because patients very likely face severe disability and emotional difficulties. ICF is ought to be incorporated in ophthalmic health care strategy to improve the health care.

Ort, förlag, år, upplaga, sidor
Taylor & Francis, 2009. Vol. 31, nr 15, s. 1283-1292
Nationell ämneskategori
Medicin och hälsovetenskap
Forskningsämne
Medicin
Identifikatorer
URN: urn:nbn:se:oru:diva-2959DOI: 10.1080/09638280802519669ISI: 000268212200008PubMedID: 19280439Scopus ID: 2-s2.0-70350437864OAI: oai:DiVA.org:oru-2959DiVA, id: diva2:135786
Tillgänglig från: 2008-04-04 Skapad: 2008-04-04 Senast uppdaterad: 2017-12-14Bibliografiskt granskad
Ingår i avhandling
1. Impact on participation and service for persons with deafblindness
Öppna denna publikation i ny flik eller fönster >>Impact on participation and service for persons with deafblindness
2008 (Engelska)Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
Abstract [en]

Persons with deafblindness experience difficulties in daily life and they experience service to sometimes barrier. The overall aim of this thesis is therefore to discover, evaluate and explain: 1. mechanisms that might have impact on participation restrictions for people who have visual and hearing impairment i.e. deafblindness and 2. mechanisms that might barrier service to these people. Service is used as an umbrella term for health care, education and certain service for persons with disabilities. Materials from multiple sources have been used: literature (Study I No 96 papers). Interviews (Study I and V) with 32 and 3 adults with deafblindness respectively. Questionnaires (Study II and III): answered by 33 and 34 adults and youth with deafblindness. Patient records (Study IV and V): records from 9 and 3 adult females with USH I respectively. Materials mostly retrospectively cover the period from 2005 and about 40–50 years. Both quantitative and qualitative methods were used. International Classification of Functioning, Disability and Health (ICF) were consequently used as a framework to describe as well as a tool to analyze mechanisms. Further, the Ecological approach, Disability as a laminated system and Life course approach were used in order to evaluate and explain mechanisms. The conclusions that can be drawn from an ecological, laminated and life course approach are: Participation restrictions for people with deafblindness are far-reaching and are embedded in a complex process of interaction between the person with deafblindness and the environment. Services entail systematical barriers. In order to improve service it is extremely important to understand the role of participation restrictions in deafblindness. Primary activity limitation is to not see and hear enough for comprehension. Hence, not taking part in the visible and audible world is primary participation restriction. Performing activities without basic information includes risk. One important aspect of deafblindness is exposure. Persons with deafblindness require rehabilitation in a life perspective. In order to increase people’s participation and protection requirement of individually adapted support and assistive devices is necessary. ICF and the UN convention support service alterations.

Ort, förlag, år, upplaga, sidor
Örebro: Örebro universitet, 2008. s. 111
Serie
Studies from The Swedish Institute for Disability Research, ISSN 1650-1128 ; 26
Nyckelord
deafblindness, ICF, participation restriction, service barrier, Usher Syndrome
Nationell ämneskategori
Samhällsvetenskap Samhällsvetenskap Socialt arbete Socialt arbete
Forskningsämne
Medicinsk handikappvetenskap
Identifikatorer
urn:nbn:se:oru:diva-2027 (URN)978-91-7668-595-2 (ISBN)
Disputation
2008-04-25, Aulan, B, Örebro universitet, SE -701 82 Örebro, 13:00 (Engelska)
Opponent
Handledare
Tillgänglig från: 2008-04-04 Skapad: 2008-04-04 Senast uppdaterad: 2017-10-18Bibliografiskt granskad

Open Access i DiVA

Fulltext saknas i DiVA

Övriga länkar

Förlagets fulltextPubMedScopus

Personposter BETA

Möller, KerstinMöller, ClaesDanermark, Berth

Sök vidare i DiVA

Av författaren/redaktören
Möller, KerstinMöller, ClaesDanermark, Berth
Av organisationen
Hälsoakademin
I samma tidskrift
Disability and Rehabilitation
Medicin och hälsovetenskap

Sök vidare utanför DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetricpoäng

doi
pubmed
urn-nbn
Totalt: 568 träffar
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf