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Being the next of kin of an adult person with muscular dystrophy
Örebro universitet, Hälsovetenskapliga institutionen.
Örebro universitet, Hälsovetenskapliga institutionen.
Örebro universitet, Hälsovetenskapliga institutionen.
2006 (Engelska)Ingår i: Clinical Nursing Research, ISSN 1054-7738, E-ISSN 1552-3799, Vol. 15, nr 2, s. 86-104Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

A chronic disorder affects all members of the family in various ways. The aim of this study is to elucidate the next of kin's (N= 36) experiences when an adult family member has muscular dystrophy. The relationships were partner (36%, n= 14), parent (18%, n= 7), child (21%, n= 8), sibling (15%, n= 6), and other relative (3%, n= 1). Latent content analysis is employed and involves an interpretation of the interviewtext. The results showthe meaning of being close to a person with muscular dystrophy through the themes that emerged: exposure of the family; the span between obligation and love; being vigilant, protective, and supportive; and striving for an ordinary life. This study reveals a need for healthcare staff to understand the next of kin's narrated meaning of changes when a family member has a progressive disease.

Ort, förlag, år, upplaga, sidor
2006. Vol. 15, nr 2, s. 86-104
Nyckelord [en]
next of kin; family; chronic disease; muscular dystrophy; latent content analysis
Nationell ämneskategori
Tvärvetenskapliga studier inom samhällsvetenskap Omvårdnad
Forskningsämne
Vårdvetenskap
Identifikatorer
URN: urn:nbn:se:oru:diva-4551DOI: 10.1177/1054773805285706OAI: oai:DiVA.org:oru-4551DiVA, id: diva2:138850
Tillgänglig från: 2008-04-18 Skapad: 2008-04-18 Senast uppdaterad: 2018-01-13Bibliografiskt granskad

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Ahlström, GerdSunvisson, Helena

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Clinical Nursing Research
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