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Experiences of stakeholder collaboration when promoting participation in physical activity among adolescents with autism spectrum disorder
Örebro University, School of Health Sciences. University Health Care Research Center, Örebro University, Örebro, Sweden; The Swedish Institute for Disability Research (SIDR), Örebro University, Örebro, Sweden.ORCID iD: 0000-0001-9074-6559
The Swedish Institute for Disability Research (SIDR), Örebro University, Örebro, Sweden; Faculty of Health and Occupational Studies, University of Gävle, Gävle, Sweden.
Örebro University, School of Health Sciences.ORCID iD: 0000-0002-5093-4958
Örebro University, School of Health Sciences. University Health Care Research Center, Örebro University, Örebro, Sweden; The Swedish Institute for Disability Research (SIDR), Örebro University, Örebro, Sweden.ORCID iD: 0000-0002-6703-7575
2022 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 44, no 9, p. 1728-1736Article in journal (Refereed) Published
Abstract [en]

PURPOSE: Various stakeholders contribute to the development of healthy physical activity habits in adolescents with autism spectrum disorder (ASD). Parents and stakeholders seek collaborative actions but little is still known about such efforts. The purpose of this study was thus to explore how professionals from different services experience stakeholder collaboration when promoting participation in physical activity for these adolescents.

METHOD: Five focus group discussions were held with 17 professionals from education, health care, community, and sports organizations, engaged in the promotion of physical activity in adolescents with ASD. The data were analyzed with qualitative content analysis.

RESULTS: . The professionals though experienced that this collaboration was hampered by the low priority given to physical activity issues within different organizations, by limited resources, lack of knowledge, and unclear roles.

CONCLUSIONS: Notwithstanding the professionals' different roles, all agreed that physical activity issues need to be prioritized and that each stakeholder needs to acknowledge the shared responsibility of collaboration. However, more clear routines for collaboration that include joined efforts but also highlight the organization-specific responsibilities might enhance the collaborative efforts.

  • In-depth understanding of both the adolescents' needs and the environments in which physical activity is promoted is required if participation in physical activity among adolescents with ASD is to be enhanced.
  • Families and professionals within different organizations need to be supported to collaborate when mapping and meeting the adolescents' physical activity needs.
  • Issues regarding developing physical activity habits need to be prioritized.
  • Professionals, such as education, health, and community professionals who are important for the promotion of healthy physical activity habits need to be included in multi-stakeholder meetings.
Place, publisher, year, edition, pages
Informa Healthcare, 2022. Vol. 44, no 9, p. 1728-1736
Keywords [en]
Autism spectrum disorder, adolescent, collaboration, participation, physical activity
National Category
Psychiatry Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:oru:diva-89922DOI: 10.1080/09638288.2021.1887944ISI: 000620890000001PubMedID: 33621137Scopus ID: 2-s2.0-85101405257OAI: oai:DiVA.org:oru-89922DiVA, id: diva2:1531151
Note

Funding Agency:

Region Örebro County, Sweden 

Available from: 2021-02-25 Created: 2021-02-25 Last updated: 2023-12-08Bibliographically approved
In thesis
1. Participation in physical activity among adolescents with autism spectrum disorder: the perspectives of adolescents, parents and professionals
Open this publication in new window or tab >>Participation in physical activity among adolescents with autism spectrum disorder: the perspectives of adolescents, parents and professionals
2022 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Findings from previous research show generally lower levels of physical activity (PA) among adolescents with autism spectrum disorder (ASD). The reasons for the low PA participation are complex and depend on several factors, often described as barriers to PA. However, the overall picture concerning participation in PA among adolescents with ASD remains incomplete, as it lacks the adolescents’ own perspectives. The mission to promote healthy PA habits is shared by several actors, including the family or parents and the education, health and municipal services. In order to understand and comprehensively describe these adolescents’ PA participation, different PA contexts and perspectives need to be included. The overall aim of this thesis was therefore to study participation in PA among adolescents with ASD from the adolescents’ (study I), parents’ (study II) and professionals’ (study III) perspectives. The findings from study I showed a conditional participation behaviour in PA among adolescents with ASD. In studies II and III, the results revealed a need to give PA issues increased priority and support through collaborative efforts. Complementary roles are needed to promote participation in PA. In study IV, the feasibility of using a Q-sort tool to map conditions for participation in PA was investigated. The results showed that Q-sort is a feasible method that can be used to offer tailored support according to the adolescents’ individual-specific conditions for participation. In conclusion, a condition-controlled behaviour when participating in PA was described in all four studies. When promoting participation in PA, these individual-specific conditions for participation need to be recognized and tailored support offered. 

Place, publisher, year, edition, pages
Örebro: Örebro University, 2022. p. 101
Series
Studies from The Swedish Institute for Disability Research, ISSN 1650-1128 ; 109
Keywords
Autism spectrum disorder, adolescent, child, physical activity, physical education, participation, socio-ecological model
National Category
Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-99420 (URN)9789175294612 (ISBN)
Public defence
2022-09-16, Örebro universitet, Campus USÖ, hörsal C1, Södra Grev Rosengatan 32, Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2022-06-07 Created: 2022-06-07 Last updated: 2022-11-02Bibliographically approved

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Arnell, SusannGeidne, SusannaLundqvist, Lars-Olov

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