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Adolescents with congenital limb reduction deficiency: Perceptions of treatment during childhood and its meaning for their current and future situation
Örebro University, School of Health Sciences. (REAL)ORCID iD: 0000-0002-7670-0885
Örebro University, School of Health Sciences. Department of Prosthetics and Orthotics; University Health Care Research Center.ORCID iD: 0000-0003-4247-2236
Örebro University, School of Health Sciences.ORCID iD: 0000-0002-5567-9431
Örebro University, School of Health Sciences.ORCID iD: 0000-0002-9188-7510
2022 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 48, no 4, p. 613-622Article in journal (Refereed) Published
Abstract [en]

Background: Children with congenital limb reduction deficiency live with the decisions made by their parents and healthcare professionals about treatments to be carried out during the first years of life. To understand better the meaning of treatment during childhood, it is necessary to listen to adolescents who have had this experience. The aim of this study was to investigate the perceptions of adolescents with congenital limb reduction deficiency concerning the treatment they received during childhood and what it meant to them currently and in the future.

Methods: A descriptive design with a qualitative approach was used. Semi-structured interviews were conducted with 10 adolescents (six girls and four boys) with upper and/or lower limb reduction deficiency, median age 17.5 years (range 16–19). The interview data were analysed using a phenomenographic approach.

Results: The treatment received during childhood had contributed to shaping the adolescents, as shown in the emerging description categories Creating opportunities, Choosing one's own path and Belonging in a context. Their current situation fell into three categories: A continuous journey, indicating that they still used the skills learned during childhood; Leaving the door open, indicating that they were not currently using the skills learned during childhood, but felt that there could be opportunities ahead; and Closing a chapter, indicating that they had stopped using their prosthesis or assistive devices and no longer needed those skills. Further, the adolescents' thoughts about the future are portrayed in the categories Uncertainty about the future and Confidence about the future.

Conclusions: An understanding of the meaning of treatment received during childhood may help improve the delivery of treatment and continued support to meet the needs of children with congenital limb reduction deficiency in the short and long term.

Place, publisher, year, edition, pages
John Wiley & Sons, 2022. Vol. 48, no 4, p. 613-622
Keywords [en]
limb malformations, paediatric rehabilitation, phenomenography
National Category
Occupational Therapy Pediatrics Orthopaedics
Research subject
Occupational therapy; Pediatrics; Orthopaedics
Identifiers
URN: urn:nbn:se:oru:diva-96807DOI: 10.1111/cch.12967ISI: 000747423500001PubMedID: 35043417Scopus ID: 2-s2.0-85123703865OAI: oai:DiVA.org:oru-96807DiVA, id: diva2:1633023
Funder
Norrbacka-Eugenia FoundationFredrik och Ingrid Thurings Stiftelse
Note

Funding agencies:

Faculty of Medicine and Health, Örebro University, Örebro, Sweden

Research Committee, Region Örebro County, Sweden

Available from: 2022-01-28 Created: 2022-01-28 Last updated: 2023-12-08Bibliographically approved

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Sjöberg, LisHermansson, LiselotteLindner, HelenFredriksson, Carin

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