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Participation in physical activity among adolescents with autism spectrum disorder: the perspectives of adolescents, parents and professionals
Örebro University, School of Health Sciences.ORCID iD: 0000-0001-9074-6559
2022 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Findings from previous research show generally lower levels of physical activity (PA) among adolescents with autism spectrum disorder (ASD). The reasons for the low PA participation are complex and depend on several factors, often described as barriers to PA. However, the overall picture concerning participation in PA among adolescents with ASD remains incomplete, as it lacks the adolescents’ own perspectives. The mission to promote healthy PA habits is shared by several actors, including the family or parents and the education, health and municipal services. In order to understand and comprehensively describe these adolescents’ PA participation, different PA contexts and perspectives need to be included. The overall aim of this thesis was therefore to study participation in PA among adolescents with ASD from the adolescents’ (study I), parents’ (study II) and professionals’ (study III) perspectives. The findings from study I showed a conditional participation behaviour in PA among adolescents with ASD. In studies II and III, the results revealed a need to give PA issues increased priority and support through collaborative efforts. Complementary roles are needed to promote participation in PA. In study IV, the feasibility of using a Q-sort tool to map conditions for participation in PA was investigated. The results showed that Q-sort is a feasible method that can be used to offer tailored support according to the adolescents’ individual-specific conditions for participation. In conclusion, a condition-controlled behaviour when participating in PA was described in all four studies. When promoting participation in PA, these individual-specific conditions for participation need to be recognized and tailored support offered. 

Place, publisher, year, edition, pages
Örebro: Örebro University , 2022. , p. 101
Series
Studies from The Swedish Institute for Disability Research, ISSN 1650-1128 ; 109
Keywords [en]
Autism spectrum disorder, adolescent, child, physical activity, physical education, participation, socio-ecological model
National Category
Other Health Sciences
Identifiers
URN: urn:nbn:se:oru:diva-99420ISBN: 9789175294612 (print)OAI: oai:DiVA.org:oru-99420DiVA, id: diva2:1665218
Public defence
2022-09-16, Örebro universitet, Campus USÖ, hörsal C1, Södra Grev Rosengatan 32, Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2022-06-07 Created: 2022-06-07 Last updated: 2022-11-02Bibliographically approved
List of papers
1. Perceptions of Physical Activity Participation Among Adolescents with Autism Spectrum Disorders: A Conceptual Model of Conditional Participation
Open this publication in new window or tab >>Perceptions of Physical Activity Participation Among Adolescents with Autism Spectrum Disorders: A Conceptual Model of Conditional Participation
2018 (English)In: Journal of autism and developmental disorders, ISSN 0162-3257, E-ISSN 1573-3432, Vol. 48, no 5, p. 1792-1802Article in journal (Refereed) Published
Abstract [en]

Adolescents with an autism spectrum disorder (ASD) are less physically active compared to typically developing peers. The reasons for not being physically active are complex and depend on several factors, which have not been comprehensively described from the adolescent's perspective. Therefore, the aim was to describe how adolescents with an ASD perceive, experience and reflect on their participation in physical activity. Interviews with 24 adolescents diagnosed with high-functioning ASD, aged 12-16 years, were analysed with qualitative content analysis with an inductive approach. They expressed a variety of reasons determining their willingness to participate, which were conceptualized as: Conditional participation in physical activities. The present study presents an alternative perspective on participation in physical activity, with impact on intervention design.

Place, publisher, year, edition, pages
New York, NY, USA: Springer, 2018
Keywords
Autism spectrum disorder; Adolescent; Physical activity; Participation
National Category
Occupational Health and Environmental Health Psychology (excluding Applied Psychology)
Identifiers
urn:nbn:se:oru:diva-63403 (URN)10.1007/s10803-017-3436-2 (DOI)000429476300029 ()29236210 (PubMedID)2-s2.0-85037992493 (Scopus ID)
Note

Funding Agencies:

Sunnerdahls Handikappfond  

Kempe-Carlgrenska fonden  

Region Örebro County, Sweden 

Available from: 2017-12-19 Created: 2017-12-19 Last updated: 2022-11-02Bibliographically approved
2. Parents' perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder
Open this publication in new window or tab >>Parents' perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder
2020 (English)In: Autism, ISSN 1362-3613, E-ISSN 1461-7005, Vol. 24, no 8, p. 2243-2255, article id 1362361320942092Article in journal (Refereed) Published
Abstract [en]

The parents of adolescents with autism spectrum disorder have a vital and proactive role in encouraging healthy physical activity habits, and they possess important knowledge about the adolescents' needs when it comes to enhancing participation in physical activity. But promoting healthy physical activity habits in adolescents can be difficult. The purpose of this study was thus to describe parents' perceptions of their adolescent child's participation in physical activity and to describe the parental role in promoting such participation. Twenty-eight parents of adolescents aged 12-16 years with autism spectrum disorder were interviewed. The interviews were analyzed using an inductive content analysis approach. The parents described how challenging participation in physical activities could be for their adolescents. Despite this, they wanted to see their children participate more in physical activity but found the promotion of physical activity to be an overwhelming task that was difficult to cope with on their own. The results reveal a need for support and collaborative efforts among different actors to give these issues increased priority in order to promote the adolescents' physical activity participation. Lay abstract What is already known about the topic?The parents of adolescents with autism spectrum disorder have a vital and proactive role in encouraging healthy physical activity habits. But promoting healthy physical activity habits in adolescents can be difficult. The purpose of this study was thus to describe the parental perceptions of their adolescent child's participation in physical activity and to describe the parental role in promoting such participation. Twenty-eight parents of adolescents aged 12-16 years with autism spectrum disorder were interviewed. What this paper adds?The parents described how challenging participation in physical activities could be for their adolescents. Despite this, they wanted to see their children participate more in physical activity but found the promotion of physical activity to be an overwhelming task that was difficult to cope with on their own. Implications for practice, research, or policy.The results reveal a need for support and collaborative efforts among different actors to give these issues increased priority in order to promote the adolescents' physical activity participation.

Place, publisher, year, edition, pages
Sage Publications, 2020
Keywords
adolescent, autism spectrum disorder, family, parent, participation, physical activity
National Category
Psychology
Identifiers
urn:nbn:se:oru:diva-85046 (URN)10.1177/1362361320942092 (DOI)000552729100001 ()32713182 (PubMedID)2-s2.0-85088439335 (Scopus ID)
Note

Funding Agency:

Region Örebro County, Sweden

Available from: 2020-08-27 Created: 2020-08-27 Last updated: 2022-11-02Bibliographically approved
3. Experiences of stakeholder collaboration when promoting participation in physical activity among adolescents with autism spectrum disorder
Open this publication in new window or tab >>Experiences of stakeholder collaboration when promoting participation in physical activity among adolescents with autism spectrum disorder
2022 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 44, no 9, p. 1728-1736Article in journal (Refereed) Published
Abstract [en]

PURPOSE: Various stakeholders contribute to the development of healthy physical activity habits in adolescents with autism spectrum disorder (ASD). Parents and stakeholders seek collaborative actions but little is still known about such efforts. The purpose of this study was thus to explore how professionals from different services experience stakeholder collaboration when promoting participation in physical activity for these adolescents.

METHOD: Five focus group discussions were held with 17 professionals from education, health care, community, and sports organizations, engaged in the promotion of physical activity in adolescents with ASD. The data were analyzed with qualitative content analysis.

RESULTS: . The professionals though experienced that this collaboration was hampered by the low priority given to physical activity issues within different organizations, by limited resources, lack of knowledge, and unclear roles.

CONCLUSIONS: Notwithstanding the professionals' different roles, all agreed that physical activity issues need to be prioritized and that each stakeholder needs to acknowledge the shared responsibility of collaboration. However, more clear routines for collaboration that include joined efforts but also highlight the organization-specific responsibilities might enhance the collaborative efforts.

  • In-depth understanding of both the adolescents' needs and the environments in which physical activity is promoted is required if participation in physical activity among adolescents with ASD is to be enhanced.
  • Families and professionals within different organizations need to be supported to collaborate when mapping and meeting the adolescents' physical activity needs.
  • Issues regarding developing physical activity habits need to be prioritized.
  • Professionals, such as education, health, and community professionals who are important for the promotion of healthy physical activity habits need to be included in multi-stakeholder meetings.
Place, publisher, year, edition, pages
Informa Healthcare, 2022
Keywords
Autism spectrum disorder, adolescent, collaboration, participation, physical activity
National Category
Psychiatry Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:oru:diva-89922 (URN)10.1080/09638288.2021.1887944 (DOI)000620890000001 ()33621137 (PubMedID)2-s2.0-85101405257 (Scopus ID)
Note

Funding Agency:

Region Örebro County, Sweden 

Available from: 2021-02-25 Created: 2021-02-25 Last updated: 2023-12-08Bibliographically approved
4. Feasibility of using Q-sort to map conditional participation in physical activity in adolescents with autism spectrum disorder
Open this publication in new window or tab >>Feasibility of using Q-sort to map conditional participation in physical activity in adolescents with autism spectrum disorder
(English)Manuscript (preprint) (Other academic)
National Category
Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-100810 (URN)
Available from: 2022-08-24 Created: 2022-08-24 Last updated: 2022-11-02Bibliographically approved

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