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Experiences of Close Relatives of Older Adults in Need of a Nursing Home: It Is We Who Manage Their Fragile Daily Life
Örebro University, School of Health Sciences.ORCID iD: 0000-0002-0906-6087
Örebro University, School of Health Sciences.ORCID iD: 0000-0001-5418-3154
Örebro University, School of Health Sciences.ORCID iD: 0000-0002-4863-5844
Örebro University, School of Health Sciences. Örebro University Hospital. University Health Care Research Cente.ORCID iD: 0000-0002-5799-3045
2023 (English)In: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 2023, article id 9490086Article in journal (Refereed) Published
Abstract [en]

Home-based care is expanding, and we need to know more about what kind of support older adults need and how such support should be designed. One way to gain more knowledge is to study the experiences that underlie a nursing home application. However, older adults in need of nursing homes are often too weak to participate in research. Thus, this study aimed to describe the experiences of close relatives of the daily life of older adults in need of a nursing home. A qualitative approach was used, where fifteen relatives of nursing home applicants in central Sweden were interviewed using a study-specific interview guide. The interviews were analysed using thematic analysis. The findings are presented in one main theme "Being the person who manages a fragile life situation" with three underlying themes: Balancing and fulfilling expectations, striving to achieve a status quo, experiencing a breaking point, a change is inevitable, and waiting and moving into a nursing home, a period of tension. The main theme describes how the participants contributed to managing the older adults' life situation and acted as a representative in contacts with health and social care. They tried to offer support in their daily life but over time experienced a breaking point when ageing in place was no longer sustainable, resulting in a nursing home application. The rationale for a nursing home application was often a combination of the older adult's own wishes and the fact that their relatives felt there was a combined need for extensive care and physical proximity to staff, which cannot be provided in ordinary housing. Sometimes the decision to apply was also based on relatives no longer having the capacity to continue managing an older adult's fragile situation.

Place, publisher, year, edition, pages
John Wiley & Sons, 2023. Vol. 2023, article id 9490086
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:oru:diva-105060DOI: 10.1155/2023/9490086ISI: 000934532800002Scopus ID: 2-s2.0-85177827274OAI: oai:DiVA.org:oru-105060DiVA, id: diva2:1744526
Available from: 2023-03-20 Created: 2023-03-20 Last updated: 2024-09-09Bibliographically approved
In thesis
1. Perspectives on the daily life of older adults applying for a nursing home
Open this publication in new window or tab >>Perspectives on the daily life of older adults applying for a nursing home
2024 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Background: Ageing in place is a societal norm in most European countries, Sweden included. Consequently, accommodations in nursing homes are limited and older adults with somatic disease but without a dementia diagnosis are expected to be able to age in place. Nevertheless, nursing home applications are submitted daily to Swedish municipalities. Hence, the overall aim of the dissertation was to study different perspectives of the daily life of older adults who have applied for admission to a nursing home.

Methods: Interviewing 11 older adults waiting for nursing home admission (Study I), interviewing 15 relatives (Study II), analysing 160 granted nursing home decisions (Study III) and comparing 17 nursing home applicants with 17 non-nursing home applicants with respect to difficulties in everyday life, life satisfaction, and depression (StudyIV).

Results: By identifying and clustering the recurring aspects of daily life in all four studies, eight aspects of daily life emerged. These aspects affected the older adult’s daily life and contributed to the nursing home application. They were: Difficulties in performing everyday activities; Dependency in daily life; Lack of social cohesion; Being in a depressive mood; Having anxiety that affected daily life, The impact of relatives, Not having proximity to care staff, and Suffering from a life-changing event.

Discussion: This dissertation showed how the treatment from staff in home-based care was a crucial aspect of why older adults applied for a place in a nursing home. Another crucial aspect was proximity to staff, which addresses the need for an additional ordinary housing alternative. Additionally, there is a need to improve information on housing alternatives and their level of care, as this dissertation showed how older adults, and their relatives considered a nursing home application as the only solution to their current life situation.

Place, publisher, year, edition, pages
Örebro: Örebro University, 2024. p. 101
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 297
Keywords
Ageing in place, Daily life, Nursing home, Occupational therapy theory, Older adults
National Category
Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-113734 (URN)978-91-7529-571-8 (ISBN)978-91-7529-572-5 (ISBN)
Public defence
2024-10-04, Örebro universitet, Forumhuset, Hörsal F, Fakultetsgatan 1, Örebro, 10:00 (Swedish)
Opponent
Supervisors
Available from: 2024-05-21 Created: 2024-05-21 Last updated: 2024-09-10Bibliographically approved

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Spang, LisaHolmefur, MariePettersson, CeciliaLidström-Holmqvist, Kajsa

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