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Management of social isolation and loneliness in Parkinson’s disease: Design principles
Örebro University, Örebro University School of Business. (Informatics)ORCID iD: 0000-0003-4314-2052
Örebro University, Örebro University School of Business. (Informatics)ORCID iD: 0000-0002-2372-4226
Örebro University, Örebro University School of Business. (Informatics)ORCID iD: 0000-0002-4772-4730
Örebro University, Örebro University School of Business. (Informatics)ORCID iD: 0000-0003-2304-7170
2023 (English)In: International Conference on Information Systems (ICIS 2023): Rising like a Phoenix: Emerging from the Pandemic and Reshaping Human Endeavors with Digital Technologies, Association for Information Systems (AIS), Association for Information Systems (AIS) , 2023, article id 2169Conference paper, Published paper (Refereed)
Abstract [en]

Persons with Parkinson’s disease (PwPs) may have difficulty participating in social activities due to motor and non-motor symptoms that may lead to social isolation and loneliness. This paper addresses how to manage social isolation and loneliness among PwPs using digital solutions. Information and Communication Technologies (ICT) have the potential to address social isolation and loneliness, but there are no current solutions that specifically target these issues among PwPs. In this paper, we present an ongoing project based on design science research (DSR) combined with a user-centered approach to identify challenges, requirements, and design objectives. The empirical work includes data from interviews and focus groups with PwPs and healthcare professionals. Based on the empirical material, we formulated design principles on identified challenges and requirements, which were instantiated into a high-fidelity prototype. This initial cycle serves as a foundation for ongoing improvements and evaluations in a continuous DSR process.

Place, publisher, year, edition, pages
Association for Information Systems (AIS) , 2023. article id 2169
Keywords [en]
Social isolation, loneliness, Information and Communication Technologies, design science research, user-centered design, design principles
National Category
Gerontology, specialising in Medical and Health Sciences Interaction Technologies
Research subject
Informatics; Human-Computer Interaction
Identifiers
URN: urn:nbn:se:oru:diva-111049Scopus ID: 2-s2.0-85192559354ISBN: 9781958200070 (electronic)ISBN: 9781713893622 (print)OAI: oai:DiVA.org:oru-111049DiVA, id: diva2:1831443
Conference
44th International Conference on Information Systems (ICIS 2023): "Rising like a Phoenix: Emerging from the Pandemic and Reshaping Human Endeavors with Digital Technologies", Hyderabad, India, December 10-13, 2023
Funder
EU, Horizon 2020, 754285Available from: 2024-01-25 Created: 2024-01-25 Last updated: 2025-01-16Bibliographically approved
In thesis
1. Connecting Lives: Designing Customized ICT Solutions for Social isolation and Loneliness among People living with Parkinson’s - A User-Centered Design Science Research
Open this publication in new window or tab >>Connecting Lives: Designing Customized ICT Solutions for Social isolation and Loneliness among People living with Parkinson’s - A User-Centered Design Science Research
2024 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Human beings are inherently social creatures, wired biologically and psychologically to seek connections with others. When deprived of social interactions, individuals may experience social isolation and loneliness, leading to various psychological and physiological consequences. People living with Parkinson’s disease (PwP) are particularly vulnerable to these issues due to the nature of their health condition. Information and communication technologies (ICT) have been shown to play an important role in managing social isolation and loneliness. However, it is crucial to recognize that a one-size-fits-all approach may not be effective for all individuals or groups. Instead, ICT solutions must be customized to meet the unique needs, experiences, and preferences of different individuals. Currently, there is a lack of ICT solutions for managing social isolation and loneliness among PwP. Therefore, this thesis aims to address this gap by exploring and designing a customized ICT solution for PwP. To do this, the research presented in this thesis integrates design science research (DSR) and user centred design (UCD) methodologies, employing qualitative interviews, focus group discussions, literature reviews, usability evaluations and co-design workshops. Challenges and needs of PwP were identified and used to develop an initial set of design principles, personas, and scenarios. Subsequently, a prototype was developed, demonstrated, and evaluated with both experts and PwP. The design principles and the prototype were refined in four design cycles. The thesis contributes to both research and practice by producing a prototype as an artefactual contribution and the design principles which represents the first step towards the development of nascent design theory, thereby contributing to a prescriptive knowledge base. Furthermore, the integration of DSR with UCD contributes to an enhanced understanding of how to effectively combine these methodologies to design ICT solutions for PwP. The insights gained also offer valuable implications for the generalizability of these methodologies, extending their applicability to a wider user demographic, such as older adults in general.

Place, publisher, year, edition, pages
Örebro: Örebro University, 2024. p. 219
Series
Örebro Studies in Informatics ; 23
Keywords
Social isolation, Loneliness, Information and communication technologies, Design science research, User-centred design, User-centred design science research, Parkinson’s disease
National Category
Information Systems, Social aspects
Identifiers
urn:nbn:se:oru:diva-115692 (URN)9789175295763 (ISBN)9789175295770 (ISBN)
Public defence
2024-10-16, Örebro universitet, Hörsalen, Musikhögskolan, Fakultetsgatan 1, Örebro, 13:15 (English)
Opponent
Supervisors
Available from: 2024-08-30 Created: 2024-08-30 Last updated: 2024-10-01Bibliographically approved

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Thangavel, GomathiMemedi, MevludinMoll, JonasHedström, Karin

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Citation style
  • apa
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  • vancouver
  • Other style
More styles
Language
  • de-DE
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Output format
  • html
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  • asciidoc
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