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Patient-centered outcomes and outcome measurements for people aged 65 years and older-a scoping review
Örebro University, School of Medical Sciences. Department of Geriatrics, School of Medical Sciences, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.ORCID iD: 0000-0001-7868-4244
Centre of Clinical Research, Region Värmland, Karlstad, Sweden.
Örebro University, School of Medical Sciences. Department of Emergency, School of Medical Sciences, Faculty of Medicineand , Health Örebro University, Örebro, Sweden.ORCID iD: 0000-0003-3290-4111
2024 (English)In: BMC Geriatrics, E-ISSN 1471-2318, Vol. 24, no 1, article id 528Article, review/survey (Refereed) Published
Abstract [en]

INTRODUCTION: The aging population is a challenge for the healthcare system that must identify strategies that meet their needs. Practicing patient-centered care has been shown beneficial for this patient-group. The effect of patient-centered care is called patient-centered outcomes and can be appraised using outcomes measurements.

OBJECTIVES: The main aim was to review and map existing knowledge related to patient-centered outcomes and patient-centered outcomes measurements for older people, as well as identify key-concepts and knowledge-gaps. The research questions were: How can patient-centered outcomes for older people be measured, and which patient-centered outcomes matters the most for the older people? STUDY DESIGN: Scoping review.

METHODS: Search for relevant publications in electronical databases, grey literature databases and websites from year 2000 to 2021. Two reviewers independently screened titles and abstracts, followed by full text review and extraction of data using a data extraction framework.

RESULTS: Eighteen studies were included, of which six with involvement of patients and/or experts in the process on determine the outcomes. Outcomes that matter the most to older people was interpreted as: access to- and experience of care, autonomy and control, cognition, daily living, emotional health, falls, general health, medications, overall survival, pain, participation in decision making, physical function, physical health, place of death, social role function, symptom burden, and time spent in hospital. The most frequently mentioned/used outcomes measurements tools were the Adult Social Care Outcomes Toolkit (ASCOT), EQ-5D, Gait Speed, Katz- ADL index, Patient Health Questionnaire (PHQ9), SF/RAND-36 and 4-Item Screening Zarit Burden Interview.

CONCLUSIONS: Few studies have investigated the older people's opinion of what matters the most to them, which forms a knowledge-gap in the field. Future research should focus on providing older people a stronger voice in what they think matters the most to them.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2024. Vol. 24, no 1, article id 528
Keywords [en]
Older people, Patient-centered, Patient-centered outcomes, Patient-centered outcomes measurements, What matters the most
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:oru:diva-114303DOI: 10.1186/s12877-024-05134-7ISI: 001251014700001PubMedID: 38890618Scopus ID: 2-s2.0-85196266521OAI: oai:DiVA.org:oru-114303DiVA, id: diva2:1873797
Funder
Örebro UniversityRegion Örebro County, OLL 961450Available from: 2024-06-19 Created: 2024-06-19 Last updated: 2024-07-25Bibliographically approved

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Andersson, ÅsaKurland, Lisa

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