Children with Cerebral Palsy and Their Parents Have Different Experiences of Pain Management: A Qualitative Study
2024 (English)In: Children, E-ISSN 2227-9067, Vol. 11, no 9, article id 1055Article in journal (Refereed) Published
Abstract [en]
Aim: The aim of this study is to explore and compare experiences of pain management strategies for children with CP from the perspectives of children themselves and their parents.
Methods: A secondary inductive analysis of previously collected qualitative data was performed. Fourteen children with CP and one parent of each child were interviewed separately about the management of the child's pain. A dyadic data analysis was used to compare parents' and children's perspectives.
Findings: The main thematic categories of pain management identified were self-care, psychological strategies, physical interventions and professional treatment. Experiences described by the child and parent differed within all participating dyads but to different degrees. On a group level, children described more use of psychological strategies than parents did. Parents described more professional treatment strategies.
Conclusions: Parents and children described different experiences of pain management strategies, and both perspectives are needed to understand the child's situation.
Place, publisher, year, edition, pages
MDPI, 2024. Vol. 11, no 9, article id 1055
Keywords [en]
child vs. parent experiences, childhood cerebral palsy, childhood pain, lived experience, pain management, parenting
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:oru:diva-116396DOI: 10.3390/children11091055ISI: 001323453100001PubMedID: 39334588Scopus ID: 2-s2.0-85205214476OAI: oai:DiVA.org:oru-116396DiVA, id: diva2:1901807
2024-09-302024-09-302024-10-16Bibliographically approved