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Family member's expectation of the psychiatric healthcare professionals' approach towards them
Örebro universitet, Hälsoakademin.
Örebro universitet, Hälsoakademin.
Örebro universitet, Handelshögskolan vid Örebro universitet.ORCID-id: 0000-0001-7210-1925
Karolinska Institutet, Stockholm, Sweden.
2011 (engelsk)Inngår i: Journal of Psychiatric and Mental Health Nursing, ISSN 1351-0126, E-ISSN 1365-2850, Vol. 18, nr 2, s. 146-157Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

The importance of involving family members in the care of individuals with schizophrenia or other psychotic illnesses has received increasing attention within psychiatric health-care services. However, several studies suggest that family members often experience a lack of involvement. Furthermore, research indicates that family members’ experience of the professional’s approach has bearing on whether they feel involved or not. Thus, the aims of this study were to investigate the level of importance that the family members of individuals with schizophrenia or other psychotic illnesses ascribe to the professionals’ approach, the level of agreement between their experiences and what they consider as important, and aspects they consider to be important with regards to contact with professionals. Seventy family members from various parts of Sweden participated. Data were collected by the Family Involvement and Alienation Questionnaire and open-ended questions. The median level and quartiles were used to describe the distribution, and percentage agreement was analysed. Open-ended questions were analysed by qualitative content analysis. The results reveal that the majority of the participants consider Openness, Confirmation, and Cooperation as important aspects of a professional’s approach. Continuity emerged as an additional aspect. The results show a low level of agreement between the participants’ experience and what they consider as important.

sted, utgiver, år, opplag, sider
Oxford: Blackwell Publishing, 2011. Vol. 18, nr 2, s. 146-157
Emneord [en]
family expectation, family involvement, professional-family relations, professionals´approach, psychiatric healtcare services
HSV kategori
Forskningsprogram
Vårdvetenskap
Identifikatorer
URN: urn:nbn:se:oru:diva-14645DOI: 10.1111/j.1365-2850.2010.01647.xISI: 000287096200010PubMedID: 21299727Scopus ID: 2-s2.0-79551628836OAI: oai:DiVA.org:oru-14645DiVA, id: diva2:397980
Tilgjengelig fra: 2011-02-16 Laget: 2011-02-16 Sist oppdatert: 2018-05-02bibliografisk kontrollert
Inngår i avhandling
1. Familjemedlem till person med psykossjukdom: bemötande och utanförskap i psykiatrisk vård
Åpne denne publikasjonen i ny fane eller vindu >>Familjemedlem till person med psykossjukdom: bemötande och utanförskap i psykiatrisk vård
2012 (svensk)Doktoravhandling, med artikler (Annet vitenskapelig)
Abstract [en]

This thesis focused on the situation of family members of persons with psychotic illness, particular on their experience of the approach of the healthcare professionals and of their feelings of alienation regarding the professional care of their family member. A further aim was to explore how siblings who have participated in a support group for siblings experienced their situation.

A questionnaire was developed that enabled the aims of this thesis to be investigated (I). Seventy family members from various parts of Sweden participated, and data were collected via the questionnaire developed in study I (II-III). Thirteen siblings who previously had participated in a support group participated in follow-up focus groups interviews (IV).

The questionnaire developed was shown to be reliable and valid in these studies (I). In many cases, the participants had experienced an approach from professionals that indicated that they did not experience openness, confirmation and cooperation, and that they felt powerless and socially isolated in relation to the care. There was also found to be a certain degree of association between how the participants experienced the approach and whether they felt alienation (II). The majority of the participants considered openness, confirmation, and cooperation to be important aspects of professional’s approach. The result also identified a low level of agreement between the participants’ experience and what they considered to be significant in the professional’s approach (III). The findings revealed the complexity of being a sibling of an individual with psychotic illness. Participating in a support group for siblings can be of importance in gaining knowledge and minimizing feelings of being alone (IV).

Although the psychiatric care services in Sweden have been aware of the importance of cooperating with family members, the results indicated that there is a need for further research in this area. 

sted, utgiver, år, opplag, sider
Örebro: Örebro universitet, 2012. s. 82
Serie
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 35
Emneord
Alienation, Family participation, Support group, Professional´s approach, Psychiatric health care services, Sibling.
HSV kategori
Forskningsprogram
Vårdvetenskap
Identifikatorer
urn:nbn:se:oru:diva-21460 (URN)978-91-7668-858-8 (ISBN)
Disputas
2012-03-26, Örebro universitet, Hörsal P1, Fakultetsgatan 1, Örebro, 14:00 (svensk)
Opponent
Veileder
Tilgjengelig fra: 2012-02-02 Laget: 2012-02-02 Sist oppdatert: 2017-10-17bibliografisk kontrollert

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