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Life situation of adults with congenital limb reduction deficiency in Sweden
Örebro universitet, Institutionen för hälsovetenskap och medicin. Department of Paediatrics, Limb Deficiency and Arm Prosthesis Centre, Örebro University Hospital, Örebro, Sweden.
Örebro universitet, Institutionen för hälsovetenskap och medicin. Region Örebro län. Centre for Health Care Sciences, Örebro University, Örebro, Sweden.ORCID-id: 0000-0002-9760-3785
Örebro universitet, Institutionen för hälsovetenskap och medicin.
2014 (Engelska)Ingår i: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 38, nr 18, s. 1562-1571Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Purpose: To describe the current life situation of adults with congenital limb reduction deficiencies (CLRD), living in Sweden, regarding their main daily occupation, leisure activities and self-reported general health.

Method: A cross-sectional survey was conducted using a study-specific questionnaire, sent by post. A hundred and seventeen persons with different extent, forms, and levels of CLRD (mean age 33 years) responded to the questionnaire.

Results: Work or study was the main occupation for 86 % of the participants and 50 % had completed a college or university education. Seven per cent were unemployed and three per cent were on sick leave. The participants were highly involved in social and physical activities during leisure time. The majority reported good or very good general health.

Conclusion: This study is the first investigation of the life situation of adults with CLRD described with a perspective from Swedish society. The participants were educated and worked to a great extent, which corresponds well to the Swedish population as a whole. Further research is needed especially with a focus on the internal perspective of life situation, different aspects of work capacity, occurences of strain injuries and the benefit of assistive devices among adults with CLRD.

Ort, förlag, år, upplaga, sidor
Informa Healthcare, 2014. Vol. 38, nr 18, s. 1562-1571
Nyckelord [en]
adults, congenital limb reduction deficiency, daily occupation, life situation
Nationell ämneskategori
Omvårdnad
Forskningsämne
Arbetsterapi
Identifikatorer
URN: urn:nbn:se:oru:diva-32602DOI: 10.3109/09638288.2013.854839ISI: 000341971300013PubMedID: 24236497Scopus ID: 2-s2.0-84907061453OAI: oai:DiVA.org:oru-32602DiVA, id: diva2:669428
Anmärkning

Funding agencies:

Norrbacka Eugenia-foundation, Stockholm  

Centre for Health Care Sciences, Örebro University Hospital

Tillgänglig från: 2013-12-03 Skapad: 2013-12-03 Senast uppdaterad: 2018-06-04Bibliografiskt granskad

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Sjöberg, LisNilsagård, YlvaFredriksson, Carin

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Institutionen för hälsovetenskap och medicinRegion Örebro län
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Disability and Rehabilitation
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