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Informal carers: A focus on the real caregivers of people with cancer
School of Nursing and Midwifery, University of Dundee, Dundee, United Kingdom.
School of Nursing and Midwifery, University of Dundee, Dundee, United Kingdom; Department of Neurobiology, Care Science and Society, Division of Nursing, Karolinska Institutet, Huddinge, Sweden.
School of Nursing and Midwifery, University of Dundee, Dundee, United Kingdom.
2012 (English)In: Forum of Clinical Oncology: Quarterly Official Publication of the Hellenic Society of Medical Oncology, ISSN 1792-345X, E-ISSN 1792-362X, Vol. 3, no 3, p. 58-65Article in journal (Refereed) Published
Abstract [en]

Background: Those who become active caregivers out of their simple need to be included in their loved ones' experience may act as a force in the support and sustenance of the person with cancer. Apart from family members, individuals "considered as family" by the patient may actively participate in the patient's cancer journey. The purpose of this clinical review is to raise clinician awareness on the multiple responsibilities assumed and the impact of active caregiving experienced by informal carers of patients with cancer, also offering a number of practical suggestions to promote person-centred support. Patients & Methods: An electronic search for original and review articles published between January 1990 and July 2011 in three research and evidence databases (MedLine, CINAHL, EMBASE) was carried out using the terms "caregiver" and "cancer". Results: Informal caregivers are often required to assume numerous roles and make changes in their lives until they find themselves striving to balance a host of responsibilities. By being practically and emotionally involved, however, caregivers' own lives can be affected, sometimes overwhelmingly. The physical, emotional, social, and financial stress that caregivers can face in this role may result in the neglect of their own needs, adversely affecting their quality of life. Conclusions: Research-driven support interventions such as peer support groups or psychological/emotional therapy, as well as honest, open and personalised communication with health care professionals and ongoing assessment of their needs can be of utmost importance in supporting those who contribute the most to the patients' cancer journey.

Place, publisher, year, edition, pages
Hellenic Society of Medical Oncology , 2012. Vol. 3, no 3, p. 58-65
Keywords [en]
Burden, Cancer, Caregiver roles, Caregiver support, Caregiving impact, Informal carer, adult, attitude to health, cancer patient, caregiver, caregiver burden, clinical practice, coping behavior, emotional stress, emotionality, female, health care need, health personnel attitude, health service, human, male, mental stress, patient care, personal experience, physical stress, quality of life, review, social support, wellbeing
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:oru:diva-36565Scopus ID: 2-s2.0-84868296820OAI: oai:DiVA.org:oru-36565DiVA, id: diva2:747345
Available from: 2014-09-16 Created: 2014-09-16 Last updated: 2018-02-20Bibliographically approved

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Wengström, Yvonne

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