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Decision-making about prenatal screening: are pregnant women and partners satisfied with their decision?
Örebro universitet, Institutionen för hälsovetenskap och medicin. Region Örebro län. Family Medicine Research Centre.ORCID-id: 0000-0002-5316-0492
Örebro universitet, Institutionen för hälsovetenskap och medicin.ORCID-id: 0000-0003-3702-3831
Örebro universitet, Institutionen för hälsovetenskap och medicin.ORCID-id: 0000-0002-9209-5179
Örebro universitet, Institutionen för läkarutbildning.
2013 (engelsk)Manuskript (preprint) (Annet vitenskapelig)
Abstract [en]

Objective The combined test for Down syndrome is offered to pregnant women. Qualitative studies have shown that the decision, whether or not to accept the test,is a rational one for most couples, although for some it may be difficult. Little is known about the couples’ satisfaction with the decision afterwards; the aim of this study was to extend that knowledge

Method Pregnant women and their partners were invited to fill out a questionnaire at approximately pregnancy week 20. The questionnaire, which covered aspects of their decision on prenatal testing, was based on the Decision Regret Scale, with additional questions

Results The response rate was 77% (295/359 women and 223/315 partners). The decision whether or not to participate in the combined test was seen as mutual by 95% of the women and 96% of the partners, and was perceived as uncomplicated by 93% of both women and partners. The decision was considered as difficult/very difficult by 6%. With a range of 93% – 99% women and partners were satisfied with their decision afterwards, but 1%–7% were not

Conclusion The majority of the participants were satisfied wither their decision. However, a small minority were not, which is important to recognize.

sted, utgiver, år, opplag, sider
2013.
HSV kategori
Forskningsprogram
Omvårdnadsvetenskap
Identifikatorer
URN: urn:nbn:se:oru:diva-38383OAI: oai:DiVA.org:oru-38383DiVA, id: diva2:761485
Tilgjengelig fra: 2014-11-06 Laget: 2014-11-06 Sist oppdatert: 2019-08-29bibliografisk kontrollert
Inngår i avhandling
1. Couples' experiences of an extended information visit about prenatal screening: decision making and satisfaction
Åpne denne publikasjonen i ny fane eller vindu >>Couples' experiences of an extended information visit about prenatal screening: decision making and satisfaction
2014 (engelsk)Doktoravhandling, med artikler (Annet vitenskapelig)
Abstract [en]

The overall aim of this thesis was to describe pregnant women's and partners' views and experiences on early prenatal screening with the combined test, with special focus on the two-step information model.

Interviews were performed with 15 couples who had taken part in the extended information visit about prenatal screening, describing their perceptions of the information model (I) and ten couples or women of those, for a follow-up interview exploring their decision-making process (II). Seven couples, who had not taken part in the extended information visit, were interviewed describing their views and experiences about prenatal screening (III). A questionnaire was answered by 295 women and by 223 partners about their satisfaction about the decision whether or not to participate in the combined test, and their assessment of whether or not this choice had been difficult (IV).

The results showed that different opinions were expressed about the offer of the extended information visit. The separate visit was welcomed by most couples (I). The decision-making process regarding whether to take part in the test or not was described by most couples as a fairly straightforward decision, while for others it was a more complex process that required a great deal of consideration (II). An apprehension of the test, by some of those who had refrained the extended information visit, was that it was an expression of society's involvement in decisions that belong to the expectant parents (III). Ninety-three percent of both women and partners considered the decision about participating in the combined tests as uncomplicated, and well over 90%, of both women and partners were satisfied with their decision (IV).

The conclusions in this thesis, are that the decision whether or not to participate in the combined test is multidimensional and influenced by different views. The two-step information model helped the pregnant woman and the partner to make a decision in a fairly straightforward process or a more complex process with mixed feelings.

sted, utgiver, år, opplag, sider
Örebro: Örebro university, 2014. s. 69
Serie
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 59
Emneord
decision-making, patient education, patient satisfaction, prenatal screening
HSV kategori
Forskningsprogram
Omvårdnadsvetenskap
Identifikatorer
urn:nbn:se:oru:diva-36105 (URN)978-91-7529-045-4 (ISBN)
Disputas
2014-11-21, Prismahuset, Hörsal 2, Örebro universitet, Fakultetsgatan 1, Örebro, 09:00 (svensk)
Opponent
Veileder
Tilgjengelig fra: 2014-08-25 Laget: 2014-08-25 Sist oppdatert: 2017-10-17bibliografisk kontrollert

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