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From isolation and dependence to autonomy - expectations before and experiences after cochlear implantation in adult cochlear implant users and their significant others
Örebro University Hospital. Department of Clinical and Experimental Medicine/Technical Audiology, Linköping University, Linköping, Sweden; Department of ENT-Head Neck Surgery, County Council of Östergötland, Linköping, Sweden; Linnaeus Centre HEAD, Linköping University, Linköping, Sweden.
Department of Behavioural Sciences and Learning, Linköping University, Linköping, Sweden.
Department of ENT-Head Neck Surgery, County Council of Östergötland, Linköping, Sweden.
Linnaeus Centre HEAD, Linköping University, Linköping, Sweden; Department of Behavioural Sciences and Learning, Linköping University, Linköping, Sweden; Swedish Institute for Disability Research, Linköping University, Linköping, Sweden.
2015 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 37, no 6, p. 541-547Article in journal (Refereed) Published
Abstract [en]

Purpose: The aim of the study was to examine pre-operative expectations and the postoperative experiences related to cochlear implants (CI) in CI-users and their significant others.

Methods: A questionnaire was used and the responses were analysed by means of The Qualitative Content Analysis. All adults implanted between 1992 and 2010, who had had their implants for a minimum of 12 months (n = 120) were contacted. Response rate was high (90.8%), and all-inclusive answers were received from 101 CI-users (84.2%).

Results: The overall sense of increased well-being and life satisfaction was described as having lived in two different worlds, one with the auditory stimulation and one without. In the overall sense of increased well-being and satisfaction three interwoven subcategories, alienation - normality, fear - autonomy, and living a social life emerged. When CI-users and their significant others recalled the time prior to receiving the CI, a sense of fear was present with origins in the concern for the respondents' (CI-users) ability to cope and care independently in society. Conversely, after the implantation both parties emphasized the notion of a distinct transformation within the CI-user towards autonomy. Communication was highlighted as a large part of living social life.

Conclusion: The CI increases well-being and satisfaction for both CI-users and their significant others, which is especially evident regarding enhanced autonomy, normality and living social life.

Place, publisher, year, edition, pages
Informa Healthcare, 2015. Vol. 37, no 6, p. 541-547
Keyword [en]
Autonomy, cochlear implant, experience, hearing loss, well-being
National Category
Nursing
Identifiers
URN: urn:nbn:se:oru:diva-56658DOI: 10.3109/09638288.2014.935490ISI: 000351007500009PubMedID: 24989065Scopus ID: 2-s2.0-84924367108OAI: oai:DiVA.org:oru-56658DiVA: diva2:1083495
Note

Funding Agencies:

Swedish Association of Hard of Hearing People

Swedish Council for Working Life and Social Research  2010-0761

Available from: 2017-03-21 Created: 2017-03-21 Last updated: 2017-11-29Bibliographically approved

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