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A qualitative evaluation of the National Expert Team regarding the assessment and diagnosis of deafblindness in Sweden
Örebro University, School of Health Sciences. Örebro University Hospital. Audiological Research Centre, Örebro University, Örebro, Sweden. (The Swedish Institute for Disability Research (SIDR))ORCID iD: 0000-0001-7352-8234
2017 (English)In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 19, no 4, p. 362-374Article in journal (Refereed) Published
Abstract [en]

Deafblindness is a rare condition with multiple causes. Given its rarity, professionals generally have limited knowledge of this condition and insufficient experience managing it. Accordingly, in Sweden, a National Expert Team was established to assess and diagnose deafblindness. The aim of this study was to identify the conceptions of persons with deafblindness, parents of children with deafblindness and professionals involved in their care, rehabilitation and education regarding their participation in the assessment and diagnostic procedures performed by this national team. A phenomenographic design was employed. The main findings were illustrated by five descriptive categories: An opportunity for improvement in daily living, ability to interact with the cream of the crop, personal effort, effects of genetics beyond drawing blood and limited professional interaction.

Place, publisher, year, edition, pages
Routledge, 2017. Vol. 19, no 4, p. 362-374
Keywords [en]
Deafblindness, diagnostic procedure, dual sensory loss, phenomenography, qualitative methods
National Category
Nursing
Identifiers
URN: urn:nbn:se:oru:diva-64426DOI: 10.1080/15017419.2016.1268972ISI: 000419256200007Scopus ID: 2-s2.0-85006940256OAI: oai:DiVA.org:oru-64426DiVA, id: diva2:1175886
Note

Funding Agencies:

National Resource Center for Deafblindness (NKCdb)  

Stiftelsen Mo Gard 

Available from: 2018-01-19 Created: 2018-01-19 Last updated: 2018-08-13Bibliographically approved

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Anderzen-Carlsson, Agneta

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CiteExportLink to record
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  • apa
  • ieee
  • modern-language-association-8th-edition
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Language
  • de-DE
  • en-GB
  • en-US
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  • nn-NO
  • nn-NB
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Output format
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