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The Ugandan version of the Pediatric Evaluation of Disability Inventory (PEDI-UG). Part II: Psychometric properties
University Health Care Research Center.ORCID iD: 0000-0002-9222-8066
Department of Paediatrics & Child Health, Makerere University College of Health Sciences, Kampala, Uganda; Mulago Hospital, Kampala, Uganda; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.
Örebro University, School of Medical Sciences. Örebro University Hospital. University Health Care Research Center, Sweden; Department of Prosthetics and Orthotics, Örebro University Hospital, Örebro, Sweden.ORCID iD: 0000-0002-6410-2474
Department of Paediatrics & Child Health, Makerere University College of Health Sciences, Kampala, Uganda; Mulago Hospital, Kampala, Uganda.
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2018 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 44, no 4, p. 562-571Article in journal (Refereed) Published
Abstract [en]

Background: The Pediatric Evaluation of Disability Inventory (PEDI) has been recommended as a gold standard in paediatric rehabilitation. A Ugandan version of PEDI (PEDI-UG) has been developed by culturally adapting and translating the original PEDI. The aim of this study was to investigate the psychometric properties of the PEDI-UG in Ugandan children by testing the instrument's rating scale functioning, internal structure, and test-retest reliability.

Methods: Two hundred forty-nine Ugandan children (125 girls) aged 6 months to 7.5 years (Mean = 3.4, SD = 1.9) with typical development were tested using the PEDI-UG. Forty-nine children were tested twice to assess test-retest reliability. Validity was investigated by Rasch analysis and reliability by intraclass correlation coefficient.

Results: The PEDI-UG domains showed good unidimensionality based on principal component analysis of residuals. Most activities (95%) showed acceptable fit to the Rasch model. Six misfit items were deleted from the Functional Skills scales and one from the Caregiver Assistance scales. The category steps on the Caregiver Assistance scales' rating scale were reversed but functioned well when changed from a 6-point to 4-point rating scale. The reliability was excellent; intraclass correlation coefficient was 0.87-0.92 for the domains of the Functional Skills scales and 0.86-0.88 for the domains of the Caregiver Assistance scales.

Conclusion: The PEDI-UG has good to excellent psychometric properties and provides a valid measure of the functional performance of typically developing children from the age of 6 months to 7.5 years in Uganda. Further analysis of all items, including misfit and deleted items, in children with functional disability is recommended.

Place, publisher, year, edition, pages
John Wiley & Sons, 2018. Vol. 44, no 4, p. 562-571
Keywords [en]
children, disability, PEDI, Uganda, validation studies
National Category
Pediatrics Psychology (excluding Applied Psychology)
Identifiers
URN: urn:nbn:se:oru:diva-65823DOI: 10.1111/cch.12562ISI: 000435441700007PubMedID: 29532497Scopus ID: 2-s2.0-85043570914OAI: oai:DiVA.org:oru-65823DiVA, id: diva2:1190661
Funder
Sida - Swedish International Development Cooperation AgencySwedish Research Council, 5925
Note

Funding Agencies:

Frimurare Barnhus Foundation  

African Population and Health Research Center (APHRC)  

International Development Research Center (IDRC)  

Ford Foundation  

Karolinska Institutet  

Belgian Technical Cooperation (BTC)  L07UGA023 

Available from: 2018-03-15 Created: 2018-03-15 Last updated: 2021-05-21Bibliographically approved
In thesis
1. Cross-cultural adaptation and psychometric properties of two questionnaires for the assessment of occupational performance in children with disability: Children's Hand-use Experience Questionnaire (CHEQ) and Pediatric Evaluation of Disability Inventory (PEDI)
Open this publication in new window or tab >>Cross-cultural adaptation and psychometric properties of two questionnaires for the assessment of occupational performance in children with disability: Children's Hand-use Experience Questionnaire (CHEQ) and Pediatric Evaluation of Disability Inventory (PEDI)
2021 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Globally, 93–150 million children live with some form of disability, most of them live in developing countries. Occupational performance describes a person’s ability to execute tasks that are meaningful, in the context in which the person lives. The Children’s Hand-use Experience Questionnaire (CHEQ) and the Pediatric Evaluation of Disability Inventory (PEDI) are measurement tools developed to measure different aspects of occupational performance. However, before using these tools in another cultural context, evidence of validity in that context should be established.

The overall aim of this thesis was to investigate the evidence of validity for CHEQ and the Uganda version of PEDI (PEDI-UG).

Study I established the validity of revised CHEQ 1.0 for children with unilateral cerebral palsy (CP). The study suggested improvements and inclusion of younger children. This led to the development of CHEQ 2.0, which was culturally adapted and validated for Jordan in Study II. Study III indicated that PEDI-UG had good psychometric properties when tested on typically developing children, and it suggested improvements and further analysis in children with disability. Therefore, study IV investigated the psychometric properties on Ugandan children with CP and confirmed the instrument’s validity. However, the differential item functioning analysis comparing children with CP and typically developing children, and the developmental trajectories for both groups, suggested that a separate conversion table should be used to transform the total sum score from raw scores to a 0–100 scaled score. This thesis shows the importance of cultural adaptations and psychometric validation of measurement tools before they can be used in new cultural contexts. The Arabic CHEQ 2.0and PEDI-UG can be used in the evaluation of rehabilitation interventions and will help to fill the need for measurement tools in these countries.

Place, publisher, year, edition, pages
Örebro: Örebro University, 2021. p. 97
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 236
Keywords
Measurement tool, occupational performance, Rasch analysis, reliability, cross-cultural, validity evidence, Jordan, Uganda
National Category
Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-90691 (URN)978-91-7529-385-1 (ISBN)
Public defence
2021-05-28, Örebro universitet, Campus USÖ, hörsal C1, Södra Grev Rosengatan 32, Örebro, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2021-03-24 Created: 2021-03-24 Last updated: 2021-05-26Bibliographically approved

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Amer, AhmedJarl, GustavEliasson, Ann-ChristinHermansson, Liselotte

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