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Trajectories of Income and Social Benefits for Mothers and Fathers of Children With Cancer: A National Cohort Study in Sweden
Örebro University, School of Medical Sciences. (Clinical Epidemiology and Biostatistics)ORCID iD: 0000-0002-2088-0530
Örebro University, School of Medical Sciences. Clinical Epidemiology Unit, Department of Medicine, Karolinska Institute, Sweden; Department of Epidemiology and Public Health, University College London, London, United Kingdom. (Clinical Epidemiology and Biostatistics)ORCID iD: 0000-0001-6328-5494
Unit of Biostatistics, Institute of Environmental Medicine, Karolinska Institute, Stockholm, Sweden.
Division of Childhood Cancer Research, Department of Women's and Children's Health, Karolinska Institute, Stockholm, Sweden.
2018 (English)In: Cancer, ISSN 0008-543X, E-ISSN 1097-0142, Vol. 124, no 7, p. 1492-1500Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The contribution of different income sources from work and social benefits to trajectories of income for the parents of children with cancer has not been empirically investigated.

METHODS: Using Swedish registers, parents of children with an incidence cancer diagnosis between 2004 and 2009 were identified and matched with parents of children without cancer (reference parents). A total of 20,091 families were followed from the year before the diagnosis to a maximum of 8 years. Generalized linear models estimated the ratios of mean incomes from work and social benefits and of its total.

RESULTS: Around the time of the child's cancer diagnosis, the total income was on average up to 6% higher among the mothers of children with cancer compared with reference mothers, but no differences were noted among fathers. Income from work dropped to the lowest level around the time of a cancer diagnosis, with swift recovery noted for fathers but not for mothers. Sickness and childcare-related benefits were up to 6 times larger for the parents of children with cancer than reference parents. As social benefits diminished after approximately 3 years, the total income of mothers of children with cancer became lower than that of reference mothers, and the gap widened over time.

CONCLUSIONS: Social benefits appeared to ease the financial burden during the years around a cancer diagnosis. However, mothers experienced persistently lower income after benefits diminished. Experiences differed by single-parent versus dual-parent households, the survival of the child with cancer, and other relevant characteristics. Further investigation is needed for potential long-term consequences for mothers, including their career and future pension in retirement.

Place, publisher, year, edition, pages
John Wiley & Sons, 2018. Vol. 124, no 7, p. 1492-1500
Keywords [en]
cancer, child, employment, parents, social benefits, trajectory
National Category
Cancer and Oncology
Identifiers
URN: urn:nbn:se:oru:diva-66384DOI: 10.1002/cncr.31123ISI: 000428314500023PubMedID: 29430634Scopus ID: 2-s2.0-85041703748OAI: oai:DiVA.org:oru-66384DiVA, id: diva2:1196246
Funder
Swedish Childhood Cancer Foundation, PROJ10/048 PR2014-0072Forte, Swedish Research Council for Health, Working Life and Welfare, 2014-2128Available from: 2018-04-09 Created: 2018-04-09 Last updated: 2018-07-19Bibliographically approved

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Hiyoshi, AyakoMontgomery, Scott

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