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Health, work, social trust, and financial situation in persons with Usher syndrome type 1
Örebro University, School of Health Sciences. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden; Linneus HEAD centre, The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden.
Örebro University, School of Health Sciences. Örebro University Hospital. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden; Linneus HEAD centre, The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden.ORCID iD: 0000-0002-6965-6820
Audiological Research Centre, Örebro University Hospital, Örebro, Sweden; Linneus HEAD centre, The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden; School of Health and Medical science, Örebro University, Örebro, Sweden .
Linneus HEAD centre, The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden; Swedish Institute for Disability Research, Linköping University, Linköping, Sweden; Department of Behavioral Sciences and Learning, Linköping University, Linköping, Sweden .
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2018 (English)In: Work: A journal of Prevention, Assessment and rehabilitation, ISSN 1051-9815, E-ISSN 1875-9270, Vol. 60, no 2, p. 209-220Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Research has demonstrated that persons with Usher syndrome type 1 (USH1) have significantly poorer physical and psychological health compared to a reference group.

PURPOSE: To explore the relation between work, health, social trust, and financial situation in USH1 compared to a reference group.

MATERIAL: Sixty-six persons (18-65 y) from the Swedish Usher database received a questionnaire and 47 were included, 23 working and 24 non-working. The reference group comprised 3,049 working and 198 non-working persons.

METHODS: The Swedish Health on Equal Terms questionnaire was used and statistical analysis with multiple logistic regression was conducted.

RESULTS: The USH1 non-work group had a higher Odds ratio (95% CI) in poor psychological and physical health, social trust, and financial situation compared to the USH1 work group and reference groups. Age, gender, hearing, and vision impairment did not explain the differences. The relation between the USH1 work and non-work groups showed the same pattern as the reference groups, but the magnitude of problems was significantly higher.

CONCLUSIONS: Both disability and unemployment increased the risk of poor health, social trust and financial situation in persons with USH1, but having an employment seemed to counteract the risks related to disability.

Place, publisher, year, edition, pages
IOS Press, 2018. Vol. 60, no 2, p. 209-220
Keywords [en]
Employment, working life, health, psychological health, dual sensory loss, deafblindness
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:oru:diva-68163DOI: 10.3233/WOR-182731ISI: 000436889900006PubMedID: 29865098Scopus ID: 2-s2.0-85049496022OAI: oai:DiVA.org:oru-68163DiVA, id: diva2:1235461
Funder
Swedish Research Council
Note

Funding Agency:

Örebro University

Available from: 2018-07-25 Created: 2018-07-25 Last updated: 2019-03-26Bibliographically approved

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Ehn, MattiasWahlqvist, MoaMöller, Claes

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