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Balance exercise facilitates everyday life for people with multiple sclerosis: A qualitative study
Örebro University, School of Medical Sciences. University Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden; Department of Physiotherapy, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.ORCID iD: 0000-0002-2598-2317
Health Care Management, Region Örebro County, Örebro, Sweden.ORCID iD: 0000-0002-9760-3785
Örebro University, School of Health Sciences. Örebro University Hospital. Department of Physiotherapy.ORCID iD: 0000-0002-6768-5740
2018 (English)In: Physiotherapy Research International, ISSN 1358-2267, E-ISSN 1471-2865, Vol. 23, no 4, article id e1728Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: The aim of this qualitative study was to describe the experience and perceived effects on everyday life for people with multiple sclerosis after participating in a balance exercise programme focusing on core stability, dual tasking, and sensory strategies (the CoDuSe programme).

METHODS: A qualitative approach was chosen, using face-to-face interviews analysed with content analysis. Twenty-seven people with multiple sclerosis (20 women, 7 men) who had participated in the CoDuSe programme were included. All could walk 20 m with or without walking aids but could not walk further than 200 m. The CoDuSe programme was given twice weekly during a 7-week period.

RESULTS: The analysis revealed five categories. Learning to activate the core muscles described how the participants gained knowledge of using their core muscles and transferred this core muscle activation into everyday life activities. Improved bodily confidence covered narratives of being more certain of the ability to control their bodies. Easier and safer activities showed how they could now perform activities in everyday life more safely and easily. Increased independence and participation involved the participants' improved ability and self-confidence to execute activities by themselves, as well as their increased participation in activities in daily living. Experiences of the balance exercise programme revealed that they found the programme novel and challenging. The overall theme was balance exercise facilitates everyday life.

CONCLUSION: Participating in the CoDuSe programme was perceived to facilitate everyday life for people with multiple sclerosis. Taking part in the balance exercise programme taught the participants how to activate and use the core muscles, which increased their bodily confidence. Having increased bodily confidence helped them to perform everyday life activities with more ease and safety, which increased their independence and participation. The participants described the CoDuSe programme as novel and challenging, yet feasible.

Place, publisher, year, edition, pages
John Wiley & Sons, 2018. Vol. 23, no 4, article id e1728
Keywords [en]
Exercise, multiple sclerosis, postural balance, qualitative research
National Category
Occupational Therapy Other Health Sciences
Research subject
Disability Science
Identifiers
URN: urn:nbn:se:oru:diva-68373DOI: 10.1002/pri.1728ISI: 000447159800008PubMedID: 29962013Scopus ID: 2-s2.0-85050613048OAI: oai:DiVA.org:oru-68373DiVA, id: diva2:1237185
Funder
Swedish Research Council
Note

Funding Agencies:

Norrbacka-Eugenia Foundation

Uppsala-Örebro Regional Research Committee

Available from: 2018-08-07 Created: 2018-08-07 Last updated: 2020-12-01Bibliographically approved
In thesis
1. Impaired balance and fall risk in people with multiple sclerosis
Open this publication in new window or tab >>Impaired balance and fall risk in people with multiple sclerosis
2018 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The symptoms from the neurological disease multiple sclerosis vary from person to person and over time. Impaired balance is common in people with multiple sclerosis and can lead to falls. Fall frequency is high in people with multiple sclerosis, above 50%. Multiple sclerosis affects not only the person having the disease but also their next of kin. To be able to reduce fall risk it is important to know when, why and where people with multiple sclerosis fall, and how to improve balance and reduce falls with exercise. It is also important to know how the falls affect the residing next of kin to people with multiple sclerosis.

The overall aim of this thesis was to gain enhanced knowledge by investigating when and why people with MS fall and how these falls possibly affect their next of kin, and also to evaluate the effects and perceptions of participating in a specific balance exercise.

Data were gathered using four different data collections, and this thesis contains both qualitative and quantitative data.

The major finding in this thesis is that people with multiple sclerosis fall in the course of everyday life activities, most often in their own homes due to various intrinsic and extrinsic factors. Balance can be improved and falls reduced and everyday life may be made easier and facilitated after participating in the CoDuSe balance exercise. This is important also for the next of kin, since they are adapting, adjusting and renouncing their activities due to the falls of the PwMS, in order to make it work for the whole family.

Place, publisher, year, edition, pages
Örebro: Örebro University, 2018. p. 94
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 184
Keywords
Balance, exercise, falls, falls efficacy, gait, multiple sclerosis, next of kin, physiotherapy, qualitative research, randomized controlled trial
National Category
General Practice
Identifiers
urn:nbn:se:oru:diva-68025 (URN)978-91-7529-263-2 (ISBN)
Public defence
2018-11-16, Örebro universitet, Campus USÖ, hörsal C3, Södra Grev Rosengatan 32, Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2018-07-23 Created: 2018-07-23 Last updated: 2018-12-10Bibliographically approved

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Carling, AnnaNilsagård, YlvaForsberg, Anette

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