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Making it work: experience of living with a person who falls due to multiple sclerosis
Örebro University, School of Medical Sciences. University Health Care Research Centre; Department of Physiotherapy.ORCID iD: 0000-0002-2598-2317
Health Care Management, Region Örebro County, Örebro, Sweden.ORCID iD: 0000-0002-9760-3785
Örebro University, School of Medical Sciences.ORCID iD: 0000-0002-6768-5740
2018 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, p. 1-8Article in journal (Refereed) Epub ahead of print
Abstract [en]

PURPOSE: The purpose of this study was to describe how everyday life is experienced by next of kin sharing residence with a person who falls due to multiple sclerosis (MS).

METHODS: Twenty face-to-face interviews were analysed using a qualitative content analysis.

RESULTS: The overall theme "Making it work" represents the next of kin's struggle to make life work. It comprises three themes: "Taking responsibility", "Making adjustments", and "Standing aside for someone else". The two first themes reflect what relatives do to make the situation work, and the last theme represents what they give up.

CONCLUSION: Next of kin who share residence and everyday life with a person with MS are affected by that person's occasional falls. They often take on the responsibility of preventing such falls and adapt their lives practically and emotionally. However, adaptation is neither always enough or always possible. In these cases, relatives often deprioritize their own needs and free time to make everyday life in the home work. Implications for rehabilitation By highlighting that next of kin also are affected by the falls of their cohabiting person with multiple sclerosis enhances the importance of fall prevention activities that should include the next of kin. Next of kin to people who occasionally fall due to multiple sclerosis can be in need of both practical and emotional support from the health care system. Enhanced information from the health care system can empower and help them to take care of themselves while managing to live with, care for, and protect the person with multiple sclerosis from falls.

Place, publisher, year, edition, pages
Informa Healthcare, 2018. p. 1-8
Keywords [en]
Accidental falls, family, multiple sclerosis, qualitative research
National Category
Nursing Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:oru:diva-69584DOI: 10.1080/09638288.2018.1514078PubMedID: 30299167OAI: oai:DiVA.org:oru-69584DiVA, id: diva2:1256309
Available from: 2018-10-16 Created: 2018-10-16 Last updated: 2018-11-19Bibliographically approved

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Carling, AnnaNilsagård, YlvaForsberg, Anette

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