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Co-creating possibilities for patients in palliative care to reach vital goals: a multiple case study of home-care nursing encounters
FOU nu, Research and Development Centre, Jakobsbergs sjukhus, Järfälla, Sweden; Department of Medical and Health Sciences, Faculty of Health Sciences, Linköping University, Linköping, Sweden; Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden.
Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden; School of Health and Caring Sciences, Linnaeus University, Kalmar, Sweden.
Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden; Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden; Stockholms Sjukhem Foundation, Research and Development Department, Stockhom, Sweden.
Department of Health Care Sciences, Ersta Sköndal University College, Stockholm, Sweden.
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2013 (English)In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 20, no 4, p. 341-351Article in journal (Refereed) Published
Abstract [en]

The patient's home is a common setting for palliative care. This means that we need to understand current palliative care philosophy and how its goals can be realized in home-care nursing encounters (HCNEs) between the nurse, patient and patient's relatives. The existing research on this topic describes both a negative and a positive perspective. There has, however, been a reliance on interview and descriptive methods in this context. The aim of this study was to explore planned HCNEs in palliative care. The design was a multiple case study based on observations. The analysis includes a descriptive and an explanation building phase. The results show that planned palliative HCNEs can be described as a process of co-creating possibilities for the patient to reach vital goals through shared knowledge in a warm and caring atmosphere, based on good caring relations. However, in some HCNEs, co-creation did not occur: Wishes and needs were discouraged or made impossible and vital goals were not reached for the patients or their relatives. Further research is needed to understand why. The co-creative process presented in this article can be seen as a concretization of the palliative care ideal of working with a person-centered approach.

Place, publisher, year, edition, pages
Blackwell Publishing, 2013. Vol. 20, no 4, p. 341-351
Keywords [en]
case study research, home care, nurse-patient interaction, nurse-patient relationships, palliative care
National Category
Nursing
Identifiers
URN: urn:nbn:se:oru:diva-74604DOI: 10.1111/nin.12022ISI: 000326885000007PubMedID: 23336338Scopus ID: 2-s2.0-84887579739OAI: oai:DiVA.org:oru-74604DiVA, id: diva2:1320332
Available from: 2019-06-04 Created: 2019-06-04 Last updated: 2019-06-04Bibliographically approved

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