oru.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Utilization of healthcare by very-low-birthweight infants during their first year of life
Örebro University, Department of Nursing and Caring Sciences.
Department of Paediatrics, Örebro Medical Centre Hospital, Örebro, Sweden.
Örebro University, Department of Nursing and Caring Sciences. Department of Statistics, Örebro University and Örebro Medical Centre Hospital, Örebro, Sweden,.
Örebro University, Department of Nursing and Caring Sciences.
2001 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 90, no 2, p. 213-217Article in journal (Refereed) Published
Abstract [en]

New knowledge in perinatal medicine has resulted in increased survival of very-low-birthweight (VLBW) infants. After leaving hospital, the child is seen at regular medical check-ups, but there is often a persistent worry about the child which affects the family as a whole. This can lead to an increased utilization of healthcare. Our objective was therefore to describe the utilization of healthcare by VLBW infants during their first year of life and its relation to high-risk diagnoses in the neonatal period. The study group comprised 36 infants born at gestational ages of < or = 31 wk and with a birthweight of < or = 1500 g, and was compared with a control group of 36 full-term infants. Utilization of healthcare by the VLBW infants was higher than that by the control group in paediatric and ophthalmic outpatient clinics. The total number of contacts with healthcare was on average 38.7 versus 17.4. High-risk diagnoses in the neonatal period did not correlate with utilization of care, except for visits to the paediatric outpatient clinic, especially planned visits. Further studies focusing on how to support these families after leaving hospital are therefore needed.

Place, publisher, year, edition, pages
2001. Vol. 90, no 2, p. 213-217
Keywords [en]
Neonatal care;very-low-birthweight infants;utilization of healthcare
National Category
Nursing
Research subject
Nursing Science; Caring Sciences w. Medical Focus
Identifiers
URN: urn:nbn:se:oru:diva-2947DOI: 10.1111/j.1651-2227.2001.tb00286.xISI: 000167243800019PubMedID: 11236053Scopus ID: 2-s2.0-0035103687OAI: oai:DiVA.org:oru-2947DiVA, id: diva2:135711
Available from: 2005-11-28 Created: 2005-11-28 Last updated: 2017-12-14Bibliographically approved
In thesis
1. Att vara förälder till ett för tidigt fött barn: en prospektiv studie om upplevelsen av föräldraskap och möten med vården
Open this publication in new window or tab >>Att vara förälder till ett för tidigt fött barn: en prospektiv studie om upplevelsen av föräldraskap och möten med vården
2005 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Alternative title[en]
Parenting a prematurely born child : a prospective study of the experiences of parenthood and interaction with health care professionals
Abstract [en]

The present doctoral thesis focuses mainly on the experiences of 20 women and men of becoming and being parents of a prematurely born child and on their perceptions of their contacts with health and medical care services. An additional aim was to investigate the utilisation of health care during the first year of life and its relation to high-risk diagnoses in the neonatal period.

Data were obtained by interviews of the 20 sets of parents to infants born at a gestational age of <34 weeks with no serious congenital defects. These parents were interviewed 1-2 weeks after the infant’s birth and at 2, 6 and 18 months of age. The interview texts were subjected to phenomenological and content analysis. Data was also obtained from the records of 36 infants born at a gestational age of <31 weeks and with a birth weight of <1500 g and 36 full-term infants. The records included information regarding contact with health care services including the child health centres (CHCs) and the outpatient clinics of the paediatric and ophthalmic clinics. Finally data from the other two quantitative studies were obtained from three questionnaires: Quality of Care from The Patient’s Perspective, The Swedish Parenthood Stress Questionnaire and The Toddler Behaviour Questionnaire.

The result of the studies showed that the utilisation of health care by the very low birth weight infants was higher than that by the fullterm infants in paediatric and ophthalmic outpatient clinics. High-risk diagnoses in the neonatal period did not correlate with utilisation of care except for visits to the paediatric outpatient clinic, especially planned visits.

The internalisation of parenthood was described by the parents as a time-dependent process, with four syntheses of experiences – alienation, responsibility, confidence and familiarity.

The development and construction of the mothers’ and fathers’ parental identity followed a pattern that could be summarised into three themes: Unexpected start of parenthood, integration of parenthood into the sense of identity and recognition of parental identity. Important turning points in experiences of parenthood often occurred when the infant could be removed from the incubator, when it was discharged from the ward, and when the infant appeared normal compared to full-term infants.

The quality of care was judged, from the parents’ and nurses’ perspective. In general the subjective importance of the given care was rated higher than the care actual given in both neonatal care and care at the CHCs. Higher ratings were given to neonatal care compared with the care at CHSs for medico-technical competence. It was also of importance, of both parents, to receive an optimal identity-oriented approach and socio-cultural atmosphere in the neonatal care and the care at the CHSs. High-risk diagnoses in the newborn did not affect the answers.

Parental stress of very preterm children, at 18 months of age, did not differ notably from those parents of children born somewhat less premature, but they assessed their children as being rather later in the development of social behaviours. Parents of children who had had a difficult neonatal period were not more stressed when the child was 18 months old than those who had no problems in the neonatal period.

In sum, this research project showed that the parents’ expectations and experiences of becoming mothers and fathers in preterm birth was a process of integrating the unexpected start of parenthood into the parents’ sense of identity and their way of being. When the parents developed a relationship with the infant, actively participated in its care on the basis of their own preferences, and received recognition as parents, this process was strengthened. It is therefore important that the professional caring of the staff should meet and involve the natural caring of the parents.

Place, publisher, year, edition, pages
Örebro: Örebro universitetsbibliotek, 2005. p. 137
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 2
Keywords
Preterm infant, utilisation of health care, quality of care, parental identity, parental stress, toddlers behaviour
National Category
Nursing
Research subject
Caring Sciences w. Medical Focus
Identifiers
urn:nbn:se:oru:diva-197 (URN)91-7668-460-1 (ISBN)
Public defence
2005-12-16, Wilandersalen, Universitetssjukhuset, Örebro, 09:00 (English)
Opponent
Supervisors
Available from: 2005-11-28 Created: 2005-11-28 Last updated: 2017-10-18Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMedScopus

Authority records BETA

Jackson, KarinBodin, LennartTernestedt, Britt-Marie

Search in DiVA

By author/editor
Jackson, KarinBodin, LennartTernestedt, Britt-Marie
By organisation
Department of Nursing and Caring Sciences
In the same journal
Acta Paediatrica
Nursing

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 97 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf