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Family conditions and dietary control in phenylketonuria
Örebro University, School of Health and Medical Sciences.ORCID iD: 0000-0001-6328-5494
2007 (English)In: Journal of Inherited Metabolic Disease, ISSN 0141-8955, E-ISSN 1573-2665, Vol. 30, no 5, p. 708-715Article in journal (Refereed) Published
Abstract [en]

Objective This investigation is an attempt to describe coping with phenylketonuria (PKU) in order to understand some aspects underlying good compliance. Methods The coping concept was applied to PKU in two questionnaires. Self- and parental ratings were combined with assessments of phenylalanine levels and the severity of the disease. All Swedish patients with PKU born in 1980–91, a total of 53 children and youths with their parents, were invited to participate in the study and 41 (77%) of them did so. Results The patients turned out to have good compliance with the diet. The main result was that patients with separated or divorced parents were more likely to have higher phenylalanine levels and this association was not diminished by adjustment for the potential confounding factors. Conclusion Patients’ need for support must be judged individually according to different family conditions.

Place, publisher, year, edition, pages
Berlin: Springer , 2007. Vol. 30, no 5, p. 708-715
Keywords [en]
Adaptation; Psychological, Adolescent, Adolescent Psychology, Attitude to Health, Child, Child Psychology, Chronic Disease, Divorce/psychology, Family Characteristics, Female, Humans, Logistic Models, Male, Odds Ratio, Patient Compliance/*psychology, Phenylalanine/blood, Phenylketonurias/blood/*diet therapy/*psychology, Questionnaires, Severity of Illness Index, Stress; Psychological, Sweden, Molecular medicine, genetics, pathology
National Category
Medical and Health Sciences Clinical Medicine Cell and Molecular Biology
Research subject
Internal Medicine
Identifiers
URN: urn:nbn:se:oru:diva-3781DOI: 10.1007/s10545-007-0493-2PubMedID: 17570079OAI: oai:DiVA.org:oru-3781DiVA, id: diva2:138079
Available from: 2009-01-05 Created: 2009-01-05 Last updated: 2018-01-13Bibliographically approved

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Montgomery, Scott M.

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