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Development of a theoretical framework describing relatives' involvement in palliative care
Örebro University, Department of Health Sciences.
Örebro University, Department of Health Sciences.
2001 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 34, no 4, p. 554-562Article in journal (Refereed) Published
Abstract [en]

BACKGROUND:

The present study is based on four earlier studies in which the authors classified the relative's involvement in palliative care into different categories and described the involvement as "involvement in the light" or "involvement in the dark".

AIM:

The aim of the study was to develop a theoretical framework concerning the involvement of relatives based on an in-depth analysis of the results of the four earlier studies.

METHOD:

Walker & Avant's (1995) strategies for theory construction were used for development of the framework. A number of different concepts, assumptions and statements about relatives' involvement were penetrated in an in-depth analysis.

RESULTS:

From the concepts two theoretical "blocks" of the relatives' involvement were developed and these constitute the foundation for the framework. One is based on concrete descriptions of the concepts "to know", "to be" and "to do". The other describes how the concepts of "involvement in the light" and "involvement in the dark" differ. Factors that promoted involvement in the light were professional care based on humanistic values, a stronger sense of coherence on the part of relatives, an appropriate illness trajectory, and other available resources. The opposite was the case for those who were involved in the dark. Five assumptions successively developed which together form the theoretical framework.

CONCLUSIONS:

An important conclusion that can be of importance in palliative care is that the manner in which the staff act toward the patient and relatives influence relatives' possibilities for involvement, patients' possibilities for an appropriate death, and the possibilities the staff have to give good care.

Place, publisher, year, edition, pages
2001. Vol. 34, no 4, p. 554-562
Keywords [en]
Attitude to Death, Attitude to Health, Choice Behavior, Family/*psychology, Health Knowledge; Attitudes; Practice, Helping Behavior, Humans, Models; Nursing, Nursing Methodology Research, Nursing Theory, Palliative Care/*psychology, Questionnaires, Social Support, Terminal Care/*psychology
National Category
Medical and Health Sciences Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:oru:diva-4427DOI: 10.1046/j.1365-2648.2001.01785.xPubMedID: 11380724OAI: oai:DiVA.org:oru-4427DiVA, id: diva2:138726
Available from: 2008-03-11 Created: 2008-03-11 Last updated: 2017-12-14Bibliographically approved

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Publisher's full textPubMedhttp://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed&cmd=Retrieve&list_uids=11380724&dopt=Citation

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Andershed, BirgittaTernestedt, Britt-Marie

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