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Being the next of kin of an adult person with muscular dystrophy
Örebro University, Department of Health Sciences.
Örebro University, Department of Health Sciences.
Örebro University, Department of Health Sciences.
2006 (English)In: Clinical Nursing Research, ISSN 1054-7738, E-ISSN 1552-3799, Vol. 15, no 2, p. 86-104Article in journal (Refereed) Published
Abstract [en]

A chronic disorder affects all members of the family in various ways. The aim of this study is to elucidate the next of kin's (N= 36) experiences when an adult family member has muscular dystrophy. The relationships were partner (36%, n= 14), parent (18%, n= 7), child (21%, n= 8), sibling (15%, n= 6), and other relative (3%, n= 1). Latent content analysis is employed and involves an interpretation of the interviewtext. The results showthe meaning of being close to a person with muscular dystrophy through the themes that emerged: exposure of the family; the span between obligation and love; being vigilant, protective, and supportive; and striving for an ordinary life. This study reveals a need for healthcare staff to understand the next of kin's narrated meaning of changes when a family member has a progressive disease.

Place, publisher, year, edition, pages
2006. Vol. 15, no 2, p. 86-104
Keywords [en]
next of kin; family; chronic disease; muscular dystrophy; latent content analysis
National Category
Social Sciences Interdisciplinary Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:oru:diva-4551DOI: 10.1177/1054773805285706OAI: oai:DiVA.org:oru-4551DiVA, id: diva2:138850
Available from: 2008-04-18 Created: 2008-04-18 Last updated: 2018-01-13Bibliographically approved

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Ahlström, GerdSunvisson, Helena

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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf