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Community nurses' experiences of the Swedish Dignity Care Intervention for older persons with palliative care needs: A qualitative feasibility study in municipal home health care
Örebro University, School of Health Sciences.ORCID iD: 0000-0002-8661-004x
Centre for Collaborative Palliative Care, Faculty of Health and Life Sciences, School of Health and Caring Sciences, Linnaeus University, Växjö, Sweden.
Centre for Research and Development, Uppsala University/Region Gävleborg, Gävle, Sweden.
Örebro University, School of Health Sciences.ORCID iD: 0000-0002-9209-5179
2021 (English)In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 16, no 4, article id e12372Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: The Swedish Dignity Care Intervention (DCI-SWE) is an intervention for people with palliative care needs to enhance their dignity. The original DCI was developed in Scotland, where it was tested by nurses in municipal care. In this study, the DCI has been tested for the first time in a Swedish home health care context. The aim was to describe experiences of the DCI-SWE from the perspectives of community nurses (CNs).

METHODS: This was a feasibility study with a qualitative design. Three focus group interviews and one individual interview were performed with CNs (n = 11). Reflective diaries and field notes were written by the CNs and researchers, respectively. Data were analysed using inductive content analysis.

RESULTS: Two main categories and six subcategories were identified. The first main category, 'Practising the palliative approach while responding to palliative care needs', consisted of the subcategories: gives structure while providing palliative care; gives older people opportunities to be confirmed; and responding to existential and sensitive needs. The second main category, 'Aspects influencing the use of the DCI-SWE' had two subcategories about facilitators and barriers to the use of the DCI-SWE, and another about how to establish the DCI-SWE in the context of home health care.

CONCLUSION: The DCI-SWE offers CNs an overview of older people's concerns while providing palliative care, and gives the older people opportunities to be listened to. Essential prerequisites for using the DCI-SWE in municipal home health care are that CNs are comfortable holding conversations and are given time and space for these by the organisation. Other aspects facilitating the use of the DCI-SWE are managers' engagement and support, continuing training for CNs and CNs' opportunities for reflection.

Place, publisher, year, edition, pages
Blackwell Publishing, 2021. Vol. 16, no 4, article id e12372
Keywords [en]
Community nurses, dignity, feasibility studies, home care services, older people, palliative care
National Category
Nursing
Identifiers
URN: urn:nbn:se:oru:diva-90456DOI: 10.1111/opn.12372ISI: 000628320700001PubMedID: 33713554Scopus ID: 2-s2.0-85102420679OAI: oai:DiVA.org:oru-90456DiVA, id: diva2:1537645
Note

Funding Agency:

Research School of Successful Ageing, Örebro University, Örebro, Sweden  

Available from: 2021-03-16 Created: 2021-03-16 Last updated: 2021-09-01Bibliographically approved
In thesis
1. Evaluating the Swedish Dignity Care Intervention within municipality healthcare: for older persons with palliative care needs
Open this publication in new window or tab >>Evaluating the Swedish Dignity Care Intervention within municipality healthcare: for older persons with palliative care needs
2021 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Background: Palliative care in Sweden is not equal in terms of age, disease, and place of care. An essential value within palliative care is dignity, therefore healthcare emphasizing this value must be prioritized. However, older persons are concerned their dignity would not be considered and dignity interventions are rare. The overall aim of the thesis was to evaluate the Swedish Dignity Care Intervention (DCI-SWE) and its implementation within municipal palliative healthcare in order to conserve older persons’ dignity and quality of life. Methods: Qualitative and mixed methods were used. Data were collected with an integrative review (study I), focus group and individual interviews with community nurses (CNs) (studies II, IV), healthcare professionals and managers (study IV), individual interviews with older persons and relatives (study III), reflective diaries and field notes (studies II, IV), and questionnaires measuring older persons’ dignity-related distress and quality of life (study III). Data were analysed using thematic synthesis (study I), inductive content analysis(study II), inductive thematic analysis and comparative statistical analysis (study III), directed content analysis and descriptive statistical analysis (study IV). Results: Within dignity-conserving care, broad outcomes like dignity-related distress and quality of life have been used. However, communication outcomes should also be considered (study I). The DCISWE has clear benefits if it is used with background of who the older person is and with respect of personal needs (studies II - IV). The feasibility of the DCI-SWE depends on the healthcare organization’s engagement and capacity (studies II, IV). The DCI-SWE can support CNs in communicating with older persons (studies II, IV). However, more communication training is needed, and managers leadership is an important component (studies II, IV). The implementation intervention needs further development, and the use of a behavior change model may be beneficial. 

Place, publisher, year, edition, pages
Örebro: Örebro University, 2021. p. 137
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 242
Keywords
Community-based healthcare, Dignity, Evaluation, Implementation, Intervention, Older persons, Palliative care
National Category
Other Health Sciences
Identifiers
urn:nbn:se:oru:diva-92383 (URN)978-91-7529-380-6 (ISBN)
Public defence
2021-09-17, Örebro universitet, Forumhuset, Hörsal F, Fakultetsgatan 1, Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2021-06-16 Created: 2021-06-16 Last updated: 2021-09-01Bibliographically approved

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Söderman, AnnikaBlomberg, Karin

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