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Experiences of eating disorders from the perspectives of patients, family members and health care professionals: a meta-review of qualitative evidence syntheses
Örebro University Hospital. Örebro University, School of Law, Psychology and Social Work.ORCID iD: 0000-0003-1460-4238
Swedish Agency for Health Technology Assessment and Assessment of Social Services, Stockholm, Sweden; Sweden's Innovation Agency Vinnova, Stockholm, Sweden.
Swedish Agency for Health Technology Assessment and Assessment of Social Services, Stockholm, Sweden.
Swedish Agency for Health Technology Assessment and Assessment of Social Services, Stockholm, Sweden.
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2021 (English)In: Journal of Eating Disorders, E-ISSN 2050-2974, Vol. 9, no 1, article id 156Article, review/survey (Refereed) Published
Abstract [en]

BACKGROUND: Eating disorders are serious conditions that cause major suffering for patients and their families. Better knowledge about perceptions of eating disorders and their treatment, and which factors that facilitate or hinder recovery, is desired in order to develop the clinical work. We aimed to explore and synthesise experiences of eating disorders from the perspectives of those suffering from an eating disorder, their family members and health care professionals through an overarching meta-review of systematic reviews in the field.

METHODS: A systematic literature search was conducted in the databases PubMed, PsycInfo, Scopus, and CINAHL. Inclusion criteria were systematic reviews of qualitative research on experiences, perceptions, needs, or desires related to eating disorders from the perspective of patients, family members or health care professionals. Systematic reviews that fulfilled the inclusion criteria were assessed for relevance and methodological limitations by at least two researchers independently. The key findings were analysed and synthesised into themes.

RESULTS: We identified 17 systematic reviews that met our inclusion criteria. Of these, 13 reviews reported on the patients' perspective, five on the family members' perspective, and three on the health care professionals' perspective. The study population in the reviews was predominantly girls and young women with anorexia nervosa, whilst systematic reviews focusing on other eating disorders were scarce. The findings regarding each of the three perspectives resulted in themes that could be synthesised into three overarching themes: 1) being in control or being controlled, 2) balancing physical recovery and psychological needs, and 3) trusting relationships.

CONCLUSIONS: There were several similarities between the views of patients, family members and health care professionals, especially regarding the significance of building trustful therapeutic alliances that also included family members. However, the informants sometimes differed in their views, particularly on the use of the biomedical model, which was seen as helpful by health care professionals, while patients and family members felt that it failed to address their psychological distress. Acknowledging these differences is important for the understanding of anorexia nervosa and other eating disorders, and may help clinicians to broaden treatment approaches to meet the expectations of patients and family members.

Place, publisher, year, edition, pages
BMJ Publishing Group Ltd , 2021. Vol. 9, no 1, article id 156
Keywords [en]
Anorexia nervosa, Eating disorders, Evidence synthesis, Meta-review, Meta-synthesis, Qualitative research
National Category
Psychiatry
Identifiers
URN: urn:nbn:se:oru:diva-95760DOI: 10.1186/s40337-021-00507-4ISI: 000726270600001PubMedID: 34863276Scopus ID: 2-s2.0-85120753738OAI: oai:DiVA.org:oru-95760DiVA, id: diva2:1616942
Note

Funding agency:

Swedish Agency for Health Technology Assessment and Assessment of Social Services

Available from: 2021-12-06 Created: 2021-12-06 Last updated: 2021-12-16Bibliographically approved

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Gustafsson, Sanna Aila

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