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Minor and Parental Access to Electronic Health Records: Differences Across Four Countries
Healthcare Sciences and E-health, Dept Women's and Children's Health, Uppsala University, Sweden.
Örebro University, Örebro University School of Business.ORCID iD: 0000-0002-2597-1079
Örebro University, Örebro University School of Business.ORCID iD: 0000-0002-4772-4730
General Medicine and Primary Care, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, USA.
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2022 (English)In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 294, p. 495-499Article in journal (Refereed) Published
Abstract [en]

An increasing number of countries are implementing patient access to electronic health records (EHR). However, EHR access for parents, children and adolescents presents ethical challenges of data integrity, and regulations vary across providers, regions, and countries. In the present study, we compare EHR access policy for parents, children and adolescents in four countries. Documentation from three areas: upper age limit of minors for which parents have access; age at which minors obtain access; and possibilities of access restriction and extension was collected from Sweden, Norway, Finland, and Estonia. Results showed that while all systems provided parents with automatic proxy access, age limits for its expiry differed. Furthermore, a lower minimum age than 18 for adolescent access was present in two of four countries. Differences between countries and potential implications for adolescents are discussed. We conclude that experiences of various approaches should be explored to promote the development of EHR regulations for parents, children and adolescents that increases safety, quality, and equality of care.

Place, publisher, year, edition, pages
IOS Press, 2022. Vol. 294, p. 495-499
Keywords [en]
Adolescents, Children, International comparison, Parents, Patient accessible electronic health records
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:oru:diva-99495DOI: 10.3233/SHTI220508PubMedID: 35612129OAI: oai:DiVA.org:oru-99495DiVA, id: diva2:1668762
Available from: 2022-06-13 Created: 2022-06-13 Last updated: 2022-06-13Bibliographically approved

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Scandurra, IsabellaMoll, Jonas

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