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On the verge between the scientific and the alternative: Swedish women’s claims about systemic side effects of the copper intrauterine device
Örebro University, School of Humanities, Education and Social Sciences.ORCID iD: 0000-0002-7766-8696
Department of Gender Studies, Lund University, Lund, Sweden.ORCID iD: 0000-0002-3186-9054
2023 (English)In: Public Understanding of Science, ISSN 0963-6625, E-ISSN 1361-6609, Vol. 32, no 2, p. 175-189Article in journal (Refereed) Published
Abstract [en]

The article intervenes in discussions on lay knowledge production about health in the Internet era, through the case of a group of women claiming that their use of copper intrauterine devices has led to systemic side effects. Based on online group interviews and written essays, we examine how women embracing these knowledge claims navigate various sources of information, focusing on the role of scientificity in these epistemic negotiations. The women were found to be involved in an active, scientifically oriented process of knowledge formation, which we refer to as a collective labour of scientific patchworking. Meanwhile, due to a perceived lack of scientifically based expertise on their condition, the women reported having little choice but turn to resources with weaker scientific foothold. We argue that the tendency to portray these women’s claims as unscientific simplifies the nature of lay knowledge production, potentially deepening divides between medical authorities and the public.

Place, publisher, year, edition, pages
Sage Publications, 2023. Vol. 32, no 2, p. 175-189
Keywords [en]
copper intrauterine device, epistemic democracy, health activism, social media, women’s health
Keywords [sv]
kopparspiral
National Category
Gender Studies
Research subject
Gender Studies
Identifiers
URN: urn:nbn:se:oru:diva-100517DOI: 10.1177/09636625221107505ISI: 000832744600001PubMedID: 35900002Scopus ID: 2-s2.0-85135146739OAI: oai:DiVA.org:oru-100517DiVA, id: diva2:1686221
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2018-00951Available from: 2022-08-09 Created: 2022-08-09 Last updated: 2023-02-03Bibliographically approved

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Gunnarsson, Lena

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