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Struggling to Enable Physical Activity for Children with Disabilities: A Narrative Model of Parental Roles
Department of Health Sciences, Karlstad University, Karlstad, Sweden; Center for Clinical Research and the Habilitation services, Region Värmland County Council, Sweden.
Örebro University, School of Medical Sciences. Örebro University Hospital. Department of Health Sciences, Karlstad University, Karlstad, Sweden; Center for Clinical Research and the Habilitation services, Region Värmland County Council, Sweden.
Department of Health Sciences, Karlstad University, Karlstad, Sweden; Icahn School of Medicine at Mount Sinai NY, USA.
Department of Health Sciences, Karlstad University, Karlstad, Sweden.
2022 (English)In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 24, no 1, p. 196-209Article in journal (Refereed) Published
Abstract [en]

This article presents a narrative model based on in-depth interviews with parents of children 6-12 years old with a variety of disabilities. It is a grounded theory study aiming to explore the parents' experiences of enabling health-promoting physical activity (PA) for their children. The core of the generated theory struggling between roles to facilitate PA describes how the parents, in different contexts and over time, are forced to take on roles as experts, coaches, minesweepers, and activists to facilitate adapted PA for their children. How tiresome this struggle became depended on contextual factors, the extent of effort put into the separate roles, and the interaction between them. The study revealed a complex picture unique for each family but at the same time suitable despite the character of the child's disability. This study adds knowledge to better support parents enabling PA on equal terms for all children.

Place, publisher, year, edition, pages
Stockholm University Press, 2022. Vol. 24, no 1, p. 196-209
Keywords [en]
Child, Disability, Parenting, Physical Activity, Health Promotion, Grounded Theory
National Category
Pediatrics Occupational Health and Environmental Health
Identifiers
URN: urn:nbn:se:oru:diva-100469DOI: 10.16993/sjdr.839ISI: 000818479500001Scopus ID: 2-s2.0-85133330020OAI: oai:DiVA.org:oru-100469DiVA, id: diva2:1688414
Funder
Karlstad University
Note

Funding agency:

County of Värmland

Available from: 2022-08-18 Created: 2022-08-18 Last updated: 2022-08-18Bibliographically approved

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Wikström, Sverre

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