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Evaluating patient reported outcomes and experiences in a novel proton beam clinic: challenges, activities, and outcomes of the ProtonCare project
Faculty of Health Sciences, Kristianstad University, Kristianstad, Sweden.
Institute of Health and Care Sciences, Göteborg University, Göteborg, Sweden.
Department of Nursing, Umeå University, Umeå, Sweden.
Örebro University, School of Health Sciences. Örebro University Hospital.ORCID iD: 0000-0002-4475-0650
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2023 (English)In: BMC Cancer, E-ISSN 1471-2407, Vol. 23, no 1, article id 132Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The ProtonCare Study Group (PCSG) was formed with the purpose to develop and implement a framework for evaluation of proton beam therapy (PBT) and the related care at a novel clinic (Skandionkliniken), based on patient reported data.

METHOD: A logic model framework was used to describe the process of development and implementation of a structured plan for evaluation of PBT for all diagnoses based on patient reported data. After the mission for the project was determined, meetings with networks and stakeholders were facilitated by PCSG to identify assumptions, resources, challenges, activities, outputs, outcomes, and outcome indicators.

RESULT: This paper presents the challenges and accomplishments PCSG made so far. We describe required resources, activities, and accomplished results. The long-term outcomes that were outlined as a result of the process are two; 1) Improved knowledge about health outcomes of patients that are considered for PBT and 2) The findings will serve as a base for clinical decisions when patients are referred for PBT.

CONCLUSION: Using the logical model framework proved useful in planning and managing the ProtonCare project. As a result, the work of PCSG has so far resulted in long-lasting outcomes that creates a base for future evaluation of patients' perspective in radiotherapy treatment in general and in PBT especially. Our experiences can be useful for other research groups facing similar challenges. Continuing research on patients´ perspective is a central part in ongoing and future research. Collaboration, cooperation, and coordination between research groups/networks from different disciplines are a significant part of the work aiming to determine the more precise role of PBT in future treatment options.

Place, publisher, year, edition, pages
Springer Nature, 2023. Vol. 23, no 1, article id 132
Keywords [en]
Cancer nursing, Patient reported outcomes, Proton beam therapy, Radiotherapy, Research program planning
National Category
Nursing Cancer and Oncology
Identifiers
URN: urn:nbn:se:oru:diva-104121DOI: 10.1186/s12885-023-10586-yISI: 000931458600003PubMedID: 36759789Scopus ID: 2-s2.0-85147787768OAI: oai:DiVA.org:oru-104121DiVA, id: diva2:1736278
Available from: 2023-02-13 Created: 2023-02-13 Last updated: 2024-07-04Bibliographically approved

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