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Experiences of communication in women with endometriosis: perceived validation and invalidation in different contexts, and associations with health-related quality of life
Department of Obstetrics and Gynecology in Norrköping, and Department of Biomedical and Clinical Sciences, Linköping University, Linköping, Sweden; Department of Health, Medicine and Caring Sciences, Linköping University, Linköping, Sweden.
Örebro University, School of Behavioural, Social and Legal Sciences. Behavioural Medicine, Department of Clinical Neuroscience, Karolinska Institute, Stockholm, Sweden.ORCID iD: 0000-0001-8350-1836
School of Behavioral, Social and Legal Sciences, Örebro University, Örebro, Sweden.
School of Behavioral, Social and Legal Sciences, Örebro University, Örebro, Sweden.
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2023 (English)In: Journal of Psychosomatic Obstetrics and Gynaecology, ISSN 0167-482X, E-ISSN 1743-8942, Vol. 44, no 1, article id 2264483Article in journal (Refereed) Published
Abstract [en]

Endometriosis, a chronic gynecological disease affecting approximately 10% of women of reproductive age, has a significant impact on physical and mental health. This cross-sectional study aimed to explore experiences of validating and invalidating communication in three contexts (with healthcare providers, employers, and family/friends), and whether this may predict health-related quality of life (HRQoL) in women with endometriosis. Data was collected through a digital survey distributed to women with self-reported endometriosis in Sweden. The survey included measures of validating and invalidating communication, depressive symptoms, anxiety, and HRQoL. A total of 427 women participated. The results indicated that women experienced varying levels of validating and invalidating communication in different contexts, with close family/friends providing the highest level of validation, and healthcare providers the lowest. Furthermore, a combined construct of high levels of validation and low levels of invalidation from healthcare providers and from close family and friends were significant predictors of HRQoL. These findings highlight the importance of supportive communication and understanding from healthcare providers and close social networks in promoting the well-being of women with endometriosis. Future research should further explore the impact of validating communication within healthcare settings and develop interventions to improve communication and support for women with endometriosis.

Place, publisher, year, edition, pages
Taylor & Francis, 2023. Vol. 44, no 1, article id 2264483
Keywords [en]
Endometriosis, anxiety, communication, depression, invalidation, quality of life, validation
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:oru:diva-108821DOI: 10.1080/0167482X.2023.2264483ISI: 001074086200001PubMedID: 37787069Scopus ID: 2-s2.0-85172992846OAI: oai:DiVA.org:oru-108821DiVA, id: diva2:1803799
Available from: 2023-10-10 Created: 2023-10-10 Last updated: 2023-10-13Bibliographically approved

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